scholarly journals Health-Related Quality of Life after Pediatric Liver Transplantation: A Qualitative Analysis of the Perspectives of Health Care Providers

2017 ◽  
Vol 2017 ◽  
pp. 1-8 ◽  
Author(s):  
Mar Miserachs ◽  
David B. Nicholas ◽  
Anthony R. Otley ◽  
Vicky Lee Ng
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Liver Transplantation ◽  
Health Care Providers ◽  
Pediatric Liver Transplantation ◽  
Care Providers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

With improved survival outcomes after pediatric liver transplantation (LT), health-related quality of life (HRQoL) is an important outcome metric. Understanding the elements contributing to HRQoL after LT in children would enable more targeted strategies towards optimizing best outcomes. This qualitative study aimed to explore health care providers (HCP) perceptions about HRQoL after pediatric LT. Thirteen experienced HCP participated in two focus group discussions. Data analysis via a thematic analysis approach revealed 4 major themes: “LT as a facilitator of better HRQoL,” “coping and adapting to LT,” “living with a transplanted liver,” and “the family context.” HCP identified elements that both enhance (improved physical health, peer relationship, and activities of daily living) and challenge (need for immunosuppression, transplant follow-up, and restrictions) the multidimensional domains of HRQoL. HCP perceived LT to be a stressful life-changing event for children and their families. Patients and their parents’ ability to cope and adjust positively to LT was perceived as a key contributor to better HRQoL. HCP perspective highlights the importance of promoting psychosocial support and a family-centered care delivery model towards the overarching goal of optimizing durable outcomes.

How Are You Feeling? Who Wants To Know? Patients’ and Oncologists’ Preferences for Discussing Health-Related Quality-of-Life Issues

2000 ◽  
Vol 18 (18) ◽  
pp. 3295-3301 ◽  
Author(s):  
S.B. Detmar ◽  
N.K. Aaronson ◽  
L.D. V. Wever ◽  
M. Muller ◽  
J.H. Schornagel
Keyword(s):  
Quality Of Life ◽  
Health Care Providers ◽  
Physical Symptoms ◽  
Psychosocial Issues ◽  
Care Providers ◽  
Health Related Quality ◽  
Wide Range ◽  
Related Quality ◽  
Health Related

PURPOSE: This study investigated (1) the attitudes of cancer patients toward discussing health-related quality-of-life (HRQL) issues; (2) the association between such attitudes and patients’ characteristics; and (3) oncologists’ attitudes and self-reported behavior regarding these same issues. PATIENTS AND METHODS: Two hundred seventy-three patients receiving palliative chemotherapy and ten physicians were asked to complete a series of questionnaires. RESULTS: Almost all patients wanted to discuss their physical symptoms and physical functioning and were also willing to address their emotional functioning and daily activities. However, 25% of the patients were only willing to discuss these latter two issues at the initiative of their physician. Patients varied most in their willingness to discuss their family and social life, with 20% reporting no interest in discussing these issues at all. Female patients were more reluctant to discuss various HRQL issues than male patients. Older and less well-educated patients were more likely to prefer that their physician initiate discussion of HRQL issues. All physicians considered it to be primarily their task to discuss the physical aspects of their patients’ health, whereas four physicians indicated that discussion of psychosocial issues was a task to be shared with other health care providers. All physicians indicated that they generally defer to their patients in initiating discussion of psychosocial issues. CONCLUSION: Although both patients and oncologists seem willing to discuss a wide range of HRQL issues, communication regarding psychosocial issues may be hampered by competing expectations as to who should take the lead in initiating such discussions.

scholarly journals Factors associated with health-related quality of life in Japanese patients with hip osteoarthritis: A cross-sectional study

2020 ◽  
Vol 27 (2) ◽  
pp. 113-118
Author(s):  
Shigeharu Tanaka ◽  
Shawn M Robbins ◽  
Yu Inoue ◽  
Ryo Tanaka
Keyword(s):  
Quality Of Life ◽  
Health Care Providers ◽  
Japanese Orthopaedic Association ◽  
Hip Osteoarthritis ◽  
Japanese Patients ◽  
Care Providers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background/Purpose: Chronic symptoms related with hip osteoarthritis (OA) can negatively affect health-related quality of life (HRQoL). The purpose of this study was to examine factors related to a HRQoL measure that considers an Asian lifestyle in Japanese patients with hip OA. Methods: Forty-seven female subjects participated. The dependent variable was the Japanese Orthopaedic Association Hip Disease Evaluation Questionnaire (JHEQ), which assessed HRQoL. Potential factors were measured as independent variables. After screening, potential variables were entered into a multiple regression analysis to determine which variables were related to HRQoL. Results: In the regression model, knee extension muscle strength on the unaffected side and hip flexion range of motion (ROM) on the affected side were associated with HRQoL. Higher strength and higher ROM were related to greater HRQoL. Conclusion: Results can help health-care providers develop appropriate rehabilitation programs for improving HRQoL in patients with hip OA.

Health-related quality of life in long-term survivors of pediatric liver transplantation

2000 ◽  
Vol 6 (3) ◽  
pp. 333-339 ◽  
Author(s):  
Deborah E. Midgley ◽  
Tatum A. Bradlee ◽  
Christopher Donohoe ◽  
Kevin P. Kent ◽  
Estella M. Alonso
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Pediatric Liver Transplantation ◽  
Health Related Quality ◽  
Pediatric Liver ◽  
Related Quality ◽  
Health Related ◽  
Long Term Survivors

scholarly journals Human connection: a valuable element for health-related quality of life outcomes in cardiac rehabilitation during COVID-19

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
D Candelaria ◽  
R Gallagher ◽  
L Ladak ◽  
H Glinatsis ◽  
S Randall
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Cardiac Rehabilitation ◽  
Patient Perceptions ◽  
Care Providers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Human Connection

Abstract Funding Acknowledgements Type of funding sources: None. Background The COVID-19 pandemic restrictions have pivoted in-person cardiac rehabilitation (CR) to remote delivery via telehealth. Patient perceptions on their CR participation in these models can guide CR coordinators improve program elements. Purpose To qualitatively explore patient perceptions and experiences on how CR influenced their health-related quality of life (HRQL). Methods A purposive sample of 16 patients were recruited, ensuring representation from four participating CR sites, gender, age, and mode of CR delivery. Semi-structured telephone or video interviews were conducted at six months following CR completion. Interviews were audio-recorded, transcribed verbatim and analysed using Braun and Clarke’s six-step thematic analysis. Results Perceptions and experiences of patients were positive overall and similar between the two models. Three main themes were identified: value of human connection, benefits of exercise and need for more individualised approaches, and importance of telehealth as an adjunct to in-person CR. Patients have expressed the value of interacting with health care professionals and socialising with peers in similar circumstances; and the absence of these interactions was palpable to those who attended telehealth. Exercises were beneficial but needed to be tailored to individual capabilities and preferences. Telehealth offered convenience and was generally accepted. However, telehealth should be complementary and not a replacement to in-person CR.  Conclusions Meaningful personal interactions with health care providers and other CR participants are most appreciated by patients in both in-person and telehealth models. Exercises are perceived to be more beneficial when individualised. Long-term outcomes from alternative CR delivery models should be evaluated.

Health-related quality of life and family function following pediatric liver transplantation

2008 ◽  
Vol 14 (4) ◽  
pp. 460-468 ◽  
Author(s):  
Estella M. Alonso ◽  
Katie Neighbors ◽  
Franca B. Barton ◽  
Sue V. McDiarmid ◽  
Stephen P. Dunn ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Pediatric Liver Transplantation ◽  
Health Related Quality ◽  
Family Function ◽  
Pediatric Liver ◽  
Related Quality ◽  
Health Related

scholarly journals ASSESSMENT OF MEDICATION KNOWLEDGE, MEDICATION ADHERENCE AND HEALTH RELATED QUALITY OF LIFE (HRQoL) AMONG OUT PATIENTS IN TERTIARY CARE CARDIAC HOSPITAL

2020 ◽  
Vol 9 (1) ◽  
Author(s):  
Mohamed Thayub S ◽  
Lydia Jeris W ◽  
RajGanesh R ◽  
Jaya Shree D ◽  
Kotturathu Mammen Cherian
Keyword(s):  
Quality Of Life ◽  
Medication Adherence ◽  
Health Care Providers ◽  
Care Providers ◽  
Health Related Quality ◽  
Medication Knowledge ◽  
Related Quality ◽  
Health Related ◽  
Study Population

Background: Cardiovascular disease (CVD) is the leading cause of mortality in India. Adherence to medication has been shown to reduce mortality and rate of hospital readmissions. Medication adherence as well as patient’s medication knowledge is also an important factor in validation and management of chronic illness. HRQoL indicates patient’s perceptions of their general, physical, mental health status and describes health burden in a population. Hence the aim of this was to assess the level of medication adherence, barrier to medication compliance, association between knowledge about medication and medication adherence and health related quality of life among CVD patients. Methods: A prospective observational study was conducted for a period3 months. Interview questionnaires for socio-demographic and clinical characteristics as well as the HRQoL, medication adherence, medication knowledge were used to collect data from 211 patients from the cardiovascular unit of Frontier Lifeline Hospital. Result: Of the study population 59% were male and had a mean age of 58 years.  The majority of participants (53%) were taking more than five medications. 34% of the study population had low adherence towards medication intake. The physical component of HRQOoL revealed that 28% of the participants had low scores in physical functioning, bodily pain and general health domains. Conclusion: Medication adherence may be a surrogate marker of Health Related Quality of Life among patients and hence health care providers should identify patients with poor medication adherence and monitor their medication use. Keywords: Medication Adherence, HRQoL , Medication Knowledge , Cardiovascular Patients

Sign in / Sign up

Export Citation Format

Share Document