Parents’ Experiences of Health Care for Their Children With Cerebral Palsy

2015 ◽  
Vol 25 (8) ◽  
pp. 1139-1154 ◽  
Author(s):  
Emily Hayles ◽  
Desley Harvey ◽  
David Plummer ◽  
Anne Jones
Keyword(s):  
Health Care ◽  
Cerebral Palsy ◽  
Children With Cerebral Palsy ◽  
Parents Experiences

scholarly journals Challenges experienced by mothers caring for children with cerebral palsy in Zambia

2015 ◽  
Vol 71 (1) ◽  
Author(s):  
Carol Singogo ◽  
Margaret Mweshi ◽  
Anthea Rhoda
Keyword(s):  
Health Care ◽  
Cerebral Palsy ◽  
Social Isolation ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Care Providers ◽  
Community Members ◽  
Marital Problems ◽  
Children With Cerebral Palsy ◽  
Socially Isolated

Background: Mothers caring for children with disability experience a number of challenges.Aim: The aim of the study was to explore the challenges that mothers who cared for children with cerebral palsy (CP) living in Zambia experienced.Methods: During a qualitative study the experiences of 16 conveniently sampled mothers of children with CP, from the Ndola district in Zambia, were explored by means of interviews. The responses were thematically analysed. All the necessary ethical considerations were upheld.Results: Mothers experienced social isolation and marital problems, as well as negative attitudes from family, friends, community members and health care professionals. The physical environment created access challenges because of a lack of sidewalks, ramps, functioning lifts and small indoor spaces.Conclusion: Mothers of children with CP feel socially isolated owing to a lack of support from family, community members, and health care providers. This social isolation was exacerbated by attitudes of others towards the mothers; it was felt that mothers were responsible for their children’s condition. Mothers also experienced marital problems as a result of having a child with CP.

scholarly journals Parents’ experiences and needs regarding physical and occupational therapy for their young children with cerebral palsy

2016 ◽  
Vol 53-54 ◽  
pp. 314-322 ◽  
Author(s):  
Anne J.A. Kruijsen-Terpstra ◽  
Olaf Verschuren ◽  
Marjolijn Ketelaar ◽  
Larisa Riedijk ◽  
Jan Willem Gorter ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Young Children ◽  
Occupational Therapy ◽  
Children With Cerebral Palsy ◽  
Parents Experiences
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