End-of-Life Care for People With Cancer From Ethnic Minority Groups

Abstract Older adults of Asian ethnic minority groups are often underrepresented in the literature on cultural aspects of end-of-life (EOL) decision making. This literature review aimed to systematically investigate the cultural aspects of EOL decision making for aging adults of Asian ethnic minority groups. In February 2019, systematic searches were conducted in PubMed using MeSH terms “end-of-life”, “decision-making”, and “culture OR cultural”. Articles with human subjects, full text in English, published in the past 10 years, with original, empirical findings were included. After multiple rounds of screening, the final sample included 22 results, with sample sizes ranging from 11 to over 9 millions representing South Asian, Chinese, Korean, Taiwanese, Singaporean, Asian and Asian/Pacific adults. The findings suggest the literature on older Asian adults is present, but limited. Future research is needed to explore cultural aspects of Asian ethnic minority groups in respect to older adult’s information preferences in EOL decision-making.

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EXPLORING HOW CARE PROVIDERS TALK ABOUT COMMUNICATION DIFFICULTIES WITH ETHNIC MINORITY PATIENTS

Innovation in Aging ◽

10.1093/geroni/igz038.841 ◽

2019 ◽

Vol 3 (Supplement_1) ◽

pp. S228-S228

Author(s):

Pernilla Ågård

Keyword(s):

Ethnic Minority ◽

End Of Life ◽

End Of Life Care ◽

Cross Cultural ◽

Social Constructionist ◽

Actual Process ◽

Life Care ◽

Care Providers ◽

Focus Group Study ◽

Communication Difficulties

Abstract Previous research into cross-cultural interactions in health care settings shows that care providers experience communicating with elderly ethnic minority patients as problematic. According to the social constructionist framework upon which this presentation draws, people negotiate the characteristics they ascribe to the world around them through talk. It is against this backdrop that the presentation – which is based on a focus group study with end-of-life care providers (n=60) – sets out to explore how care providers talk about communication difficulties with elderly ethnic minority patients. The presentation demonstrates how the study of communication difficulties can illustrative the challenges of cross-cultural interaction in end-of-life care settings. Through the attention on how communication difficulties are discussed, this presentation shifts the focus from the elderly ethnic minority patients and the reasons for why they are experienced as problematic when it comes to communication, to the actual process where these problems are negotiated.

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Racial/Ethnic Minority Access to End-of-Life Care: A Conceptual Framework

Home Health Care Services Quarterly ◽

10.1080/01621424.2011.641922 ◽

2012 ◽

Vol 31 (1) ◽

pp. 60-83 ◽

Cited By ~ 9

Author(s):

Jeff Laguna ◽

Susan Enguídanos ◽

Maria Siciliano ◽

Alexis Coulourides-Kogan

Keyword(s):

Conceptual Framework ◽

Ethnic Minority ◽

End Of Life ◽

End Of Life Care ◽

Life Care ◽

Racial Ethnic

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Dysphagia in Hospice Care: The Roles of Social Work and Speech-Language Pathologists

Perspectives on Swallowing and Swallowing Disorders (Dysphagia) ◽

10.1044/sasd23.4.173 ◽

2014 ◽

Vol 23 (4) ◽

pp. 173-186 ◽

Cited By ~ 2

Author(s):

Deborah Hinson ◽

Aaron J. Goldsmith ◽

Joseph Murray

Keyword(s):

Social Work ◽

End Of Life ◽

Case Studies ◽

End Of Life Care ◽

Hospice Care ◽

Patient Communication ◽

Life Care ◽

Speech Language Pathologists ◽

Four Levels

This article addresses the unique roles of social work and speech-language pathologists (SLPs) in end-of-life and hospice care settings. The four levels of hospice care are explained. Suggested social work and SLP interventions for end-of-life nutrition and approaches to patient communication are offered. Case studies are used to illustrate the specialized roles that social work and SLP have in end-of-life care settings.

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