Aspirations of People With Intellectual Disabilities Living in a Care Organization

2021 ◽  
pp. 146801732110530
Author(s):  
Toon Benoot ◽  
Rudi Roose ◽  
Wouter Dursin ◽  
Bram Verschuere ◽  
Judith McKenzie

Summary This article presents the results of a research project involving 10 people with intellectual disabilities concerning their idea of “a good life” in a residential care setting, within a context of personal budgets. We introduce the capability approach as a framework for focusing on the opportunities personal budgets offer for people with intellectual disabilities. We make use of qualitative interviews following a photovoice project in which people with intellectual disabilities documented their lives in order to research what they deem valuable and aspire to. Findings In the analysis section, we present the elements which the participants identified as limiting and enhancing for imagining their future. From their stories, we learn that their aspirations are nourished by the encounters and social bonds that they engage in within a residential care context. The results make clear that the use of money offers opportunities to elaborate on what is already known and enables the realization of aspirations, while interactions with significant others more often than not encourage participants to explore and try out changes and thus further develop people’s set of aspirations. Applications In drawing the discussion to a close, we explore the implications these stories might have for understanding the role of aspirations in the practice of care and support for people with intellectual disabilities. The findings encourage us to think about a relational pedagogy and to address this in the practices of personal budgets.

Author(s):  
Monika Mužáková ◽  
Iva Strnadová

This chapter explores life in Czechoslovakia (later Czech Republic) in the 20th Century for people with intellectual disabilities. It opens at the time that the Czech lands were part of the Austrian-Hungarian Empire. This was a period marked by efforts to increase the quality of institutional care for people with intellectual disabilities. The authors then describe the period of communism. They discuss the controversial nature of an Education Act (1948), which contained a well-established network of special schools for students with disabilities as a regular part of the school system, and yet it introduced the concept of “being uneducable” for students with severe and profound intellectual disabilities. The authors also debate the role of a parental movement in advocacy for the rights of people with intellectual disabilities. The chapter concludes with the period after the fall of communism, when compulsory education was introduced for all children with no exception.


2017 ◽  
Vol 31 (5) ◽  
pp. 778-784 ◽  
Author(s):  
Aidan J. Murch ◽  
Tanveen Choudhury ◽  
Michelle Wilson ◽  
Eleanor Collerton ◽  
Maya Patel ◽  
...  

2016 ◽  
Vol 20 (2) ◽  
pp. 152-164 ◽  
Author(s):  
Edurne García Iriarte ◽  
Janine Stockdale ◽  
Roy McConkey ◽  
Fiona Keogh

The movement of people with intellectual disabilities into the community is increasingly endorsed by public policy. Whilst staff are critical to a successful transition to the community, there is only scattered research on their role in supporting people to move. In this study, 32 staff and the 16 people with intellectual disabilities they supported to move from congregated settings to group homes or personalized living arrangements in the community were interviewed on two occasions, before (time 1) and after (time 2) the move. In congregated settings, staff steered the move to community living, they helped them to settle in community group homes and supported them to increase control over their lives in personalized community arrangements, where they support became increasingly more personalized and geared towards community participation and development of social relationships. Implications for staff training are drawn.


2015 ◽  
Vol 24 (13-14) ◽  
pp. 1955-1965 ◽  
Author(s):  
Addy Pruijssers ◽  
Berno van Meijel ◽  
Marian Maaskant ◽  
Noortje Keeman ◽  
Steven Teerenstra ◽  
...  

Author(s):  
Alimzhanova Aikerim Bolatovna ◽  
Issabek Nurdaulet Erkinuly ◽  
Zhaxylykbaeva Rimma Serikalievna ◽  
Kamzin Kaken Khamzauly ◽  
Mukhamedzhanov Dauren

2021 ◽  
pp. 174462952110371
Author(s):  
Gerd Ahlström ◽  
Eva Flygare Wallén ◽  
Magnus Tideman ◽  
Marianne Holmgren

The aim of this study was to describe the social care provided for different age groups of people with intellectual disability, 55 years or above, and to investigate the association between such care and frailty factors for those with diagnosed level of intellectual disabilities. Descriptive and logistic regression analyses were used. Commonest forms of social care among the 7936 people were Residential care, Daily activities and Contact person. Home help and Security alarm increased with age. The frailty factors significantly associated with increased social care were age, polypharmacy and severe levels of intellectual disabilities. Persons most likely to be in residential care were in the age group 65–79 with polypharmacy and severe disability. The results indicate a need for further research of how frailty factors are considered in social care and longstanding medication, especially then severe intellectual disability hinders communication. A national strategic plan for preventive interventions should be developed to ensure the best possible healthy ageing.


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