scholarly journals Prostate Cancer Support Groups

2014 ◽  
Vol 9 (2) ◽  
pp. 163-172 ◽  
Author(s):  
John L. Oliffe ◽  
Suzanne Chambers ◽  
Bernie Garrett ◽  
Joan L. Bottorff ◽  
Michael McKenzie ◽  
...  

To understand prostate cancer (PCa) specialists’ views about prostate cancer support groups (PCSGs), a volunteer sample of Canada-based PCa specialists ( n = 150), including urologists ( n = 100), radiation oncologists ( n = 40), and medical oncologists ( n = 10) were surveyed. The 56-item questionnaire used in this study included six sets of attitudinal items to measure prostate cancer specialists’ beliefs about positive and negative influences of PCSGs, reasons for attending PCSGs, the attributes of effective PCSGs, and the value of face-to-face and web-based PCSGs. In addition, an open-ended question was included to invite additional input from participants. Results showed that PCSGs were positively valued, particularly for information sharing, education and psychosocial support. Inclusivity, privacy, and accessibility were identified as potential barriers, and recommendations were made for better marketing PCSGs to increase engagement. Findings suggest prostate cancer specialists highly valued the role and potential benefits of face-to-face PCSGs. Information provision and an educational role were perceived as key benefits. Some concerns were expressed about the ability of web-based PCSGs to effectively engage and educate men who experience prostate cancer.

2007 ◽  
Vol 2 (2) ◽  
pp. 143-155 ◽  
Author(s):  
John L. Oliffe ◽  
Michael Halpin ◽  
Joan L. Bottorff ◽  
T. Gregory Hislop ◽  
Michael McKenzie ◽  
...  

Many prostate cancer support groups (PCSGs) have formed in North America during the past decade, yet their operation or factors influencing sustainability are poorly understood. This article reports micro (intragroup), meso (intergroup), and macro (group/structure) analyses drawn from the fieldwork and participant observations conducted for an ethnographic study of PCSGs based in British Columbia, Canada. The findings indicate that effective group leadership is integral to group sustainability and the recruitment and retention of attendees. At the meso level, intergroup connections and communication were often informal; however, the primary purpose of all the PCSGs was to provide information and support to men and their families. Many PCSGs were uncertain how formal associations with cancer fund-raising societies would influence group effectiveness. Macro issues such as prostate cancer activism resided with individual group “champions” through activities coordinated by provincial and national PCSG organizations. However, activism did not guarantee group sustainability. The study findings reveal why some groups flourish while others appear untenable, and form the basis for discussion about how PCSG sustainability might be best achieved.


2014 ◽  
Vol 15 (1) ◽  
Author(s):  
Bernard M Garrett ◽  
John L Oliffe ◽  
Joan L Bottorff ◽  
Michael McKenzie ◽  
Christina S Han ◽  
...  

2009 ◽  
Vol 18 (9) ◽  
pp. 916-926 ◽  
Author(s):  
John L. Oliffe ◽  
John Ogrodniczuk ◽  
Joan L. Bottorff ◽  
T. Gregory Hislop ◽  
Michael Halpin

2020 ◽  
pp. 136078042090584
Author(s):  
Richard Green

This article examines men’s prostate cancer experiences through the lens of patient expertise. Qualitative interviews were conducted with 29 men treated for prostate cancer, recruited from two prostate cancer support groups (PCSGs) in the South-East of England. Different forms of expertise, as classified by Collins, were found to be possessed by these men. How these different forms of expertise were acquired, used, and shared with others are explored, and a concept of communal licensing is posited to better understand these activities. The acquisition and usage of these different forms of expertise, through the employment of moral discourses that emphasise responsibility for one’s own health, are found to serve to blur the boundaries between lay person and expert.


2015 ◽  
Vol 23 (4) ◽  
pp. 1135-1135
Author(s):  
John L. Oliffe ◽  
Lawrence W. Mróz ◽  
Joan L. Bottorff ◽  
Debbie E. Braybrook ◽  
Amanda Ward ◽  
...  

Cureus ◽  
2021 ◽  
Author(s):  
Shana Santarelli ◽  
Nicole Ambrose ◽  
Zachariah Taylor ◽  
Paulette Dreher ◽  
Noah May

2013 ◽  
Vol 23 (5) ◽  
pp. 555-561 ◽  
Author(s):  
Yangmu Xu ◽  
Laura S. Testerman ◽  
Jason E. Owen ◽  
Erin O. Bantum ◽  
Andrea A. Thornton ◽  
...  

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