scholarly journals Ethics as Obligation: Reconciling Diverging Research Practices With Marginalized Communities

2020 ◽  
Vol 19 ◽  
pp. 160940692096433
Author(s):  
Jill McCracken
Keyword(s):  
Community Based Participatory Research ◽  
Ethical Challenges ◽  
Community Based ◽  
Research Practices ◽  
Formerly Incarcerated ◽  
Community Impact ◽  
Marginalized Communities ◽  
Institutional Review ◽  
Research Findings ◽  
Material Conditions

This article argues that research design is impacted by ideological frameworks, and when conducting community-based participatory research (CBPR), can create challenges and conflicts throughout the Institutional Review Board (IRB) and other institution’s approval processes. I explore the ideological frameworks that underpin conventional and CBPR methodologies to show how collaboration can influence the questions asked and answered, the roles of researchers in the project, and how research findings can better impact the community at the center of the research. I offer a snapshot of our CBPR project with women who were currently and formerly incarcerated and document the challenges we encountered given our CBPR methodology and the unique population at the center of our study. I explore the ethical challenges, complications, and delays that emerged from these conflicting ideologies and methodologies. I propose that how we engage in research and our research practices impact the questions we ask and answer, how people are represented, and ultimately the material conditions of people’s lives. I conclude with recommendations for researchers and IRBs, and even more importantly, community partners to make CBPR projects more inclusive and ethically sound and to hold researchers and IRBs accountable to more inclusive research practices that can create more effective research outcomes and greater community impact.

scholarly journals Understanding the Most Important Facilitators and Barriers for Online Education during COVID-19 through Online Photovoice Methodology

2020 ◽  
Vol 10 (1) ◽  
pp. 166
Author(s):  
İbrahim Doyumğaç ◽  
Ahmet Tanhan ◽  
Mustafa Said Kiymaz
Keyword(s):  
Distance Education ◽  
Online Education ◽  
Interpretative Phenomenological Analysis ◽  
Community Based Participatory Research ◽  
Learning Opportunities ◽  
Economic Resources ◽  
Community Based ◽  
Main Research ◽  
Institutional Review ◽  
Facilitators And Barriers

There are three main research goals in this study including (a) understanding the most important facilitators (support, strength) and complicators (barrier, concern, issues, problems) for online or distance education during COVID-19 from the unique perspective of college students, academicians, and teachers through Online Photovoice (OPV); (b) advocating with the volunteer participants and partners as allies to share the results with the key people and institutions through online avenues to enhance facilitators and address complicators; and finally, (c) investigating participants’ attribution of facilitators and complicators based on Ecological Systems Theory (EST) levels. The researchers utilized the adapted Turkish version of OPV to collect and used Online Interpretative Phenomenological Analysis (OIPA) to analyze the data. Community-Based Participatory Research (CBPR) grounded in EST constructed the theoretical framework for the research. In total, 115 participants completed and consented for the study. Sixteen main facilitator-related themes emerged, and the five most expressed were having technology (n = 31, 35%), internet (n = 28, 32%), communication (n =18, 20%), emotions (n = 17, 19%), and economic resources (n = 16, %18). Thirteen main complicators-related themes emerged, and the five most reported barriers were lacks of technological resources (n = 41, 47%), internet (n = 40, 46%), appropriate learning environments, learning opportunities (n = 32, 36%) appropriate resources for online or distance education (n = 18, 20%), and interaction (n = 14, 16%). Participants attributed the facilitator and complicators to EST levels respectively as follows: individual/intrapsychic factors (84%; 69%), microsystem (45%; 59%), exosystem (36%; 43%), and macrosystem (34%; 44%). The researchers provided practical recommendations. The researchers obtained an institutional review board approval for this study.

scholarly journals TAPPING NATURAL NETWORKS TO ADDRESS DEMENTIA IN A LATINO COMMUNITY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S583-S584
Author(s):  
Caroline Gelman ◽  
Nancy Giunta
Keyword(s):  
Older Adults ◽  
Community Based Participatory Research ◽  
Tailored Intervention ◽  
Community Members ◽  
Community Based ◽  
Marginalized Communities ◽  
East Harlem ◽  
Latino Community ◽  
Culturally Tailored ◽  
Lack Of Information

Abstract The need for health education regarding Alzheimer’s disease and related dementias (ADRD), specifically designed for Latinos, has been well-documented. Many Latino older adults and their families delay seeking formal help for ADRD symptoms due to lack of information and access to culturally sensitive services. This paper presents preliminary findings of community-based participatory research to develop El Barrio SHARE, a culturally-tailored intervention tapping natural helpers (NHs) to address a need identified by community members in East Harlem, NY. It trains people who often interact with elders in the course of their work (e.g., hairdressers, bodega clerks), and are well-positioned to observe and detect ADRD-related problems and potentially link elders to relevant services. Findings from a process evaluation developing the 10-module NH training suggest that (a) participants seek information that debunks myths and stigma surrounding ADRD, and (b) the need for culturally-tailored, participant-centered interventions in marginalized communities is critical.

Institutional Review Board Basics for Pedagogy Research

2018 ◽  
Vol 4 (3) ◽  
pp. 172-177
Author(s):  
Whitney Boling ◽  
Kathryn Berlin ◽  
Rhonda N. Rahn ◽  
Jody L. Vogelzang ◽  
Gayle Walter
Keyword(s):  
United States ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
The United States ◽  
Institutional Review Board ◽  
Community Based ◽  
Institutional Review ◽  
History Of ◽  
Conducting Research ◽  
Human Participants

The institutional review board (IRB) process is often protracted and can be a source of frustration, especially when you want your research and publications to move apace. However, because of historical events, the IRB is an important requirement for conducting research with human participants and is regulated by federal oversite. When conducting research as part of a pedagogical study, it is important to identify which level of IRB review (exempt, expedited, or full board) is required. The purpose of this article is to highlight IRB basics within the United States for pedagogy research. Although there are guidelines internationally, this article specifically focuses on U.S. IRBs, including a brief history of the IRB, pedagogical and community-based participatory research, IRB review, tips for IRB submissions, and example case studies.

Community-based efforts in health promotion in indigenous villages on the Thailand-Myanmar border

2016 ◽  
Vol 31 (1) ◽  
Author(s):  
Ann N. Suk
Keyword(s):  
Health Promotion ◽  
Rural Communities ◽  
Child Nutrition ◽  
Community Based Participatory Research ◽  
Food Markets ◽  
Community Based ◽  
Rural Villages ◽  
Marginalized Communities ◽  
Effective Interventions ◽  
Access To Food

AbstractThis case study of mainly Karen and Mon communities in Kanchanaburi Province, western Thailand, offers insight into the challenges that these rural villages face with regard to food security and environmental health issues. As non-Thai communities, these villages receive little support from the Thai government, and are often vulnerable in terms of access to food markets, infrastructure, and education and livelihood opportunities. This discussion further considers the involvement of Pattanarak Foundation, a Thai NGO, in health promotion and economic development in these villages as an example of a community partnership at the grassroots level. Examining Pattanarak’s efforts to build skills in household vegetable gardening and livestock-raising, raise awareness about child nutrition issues, and improve community sanitation illustrates the value of a participatory process, and also demonstrates some of the challenges associated with on-the-ground health promotion in disadvantaged rural communities. Applying a community-based participatory research (CBPR) framework to pursue partnerships between communities, NGOs, and researchers may offer an avenue for effective interventions to improve health in marginalized communities.

Ethical Challenges Community-Based Researchers and Community-Based Organizations Face

2019 ◽  
pp. 101-120
Author(s):  
Margaret R. Boyd
Keyword(s):  
Higher Learning ◽  
Institutional Review Boards ◽  
Ethical Challenges ◽  
Community Based ◽  
Community Partners ◽  
Community Based Research ◽  
Professional Boundaries ◽  
Community Based Organizations ◽  
Institutional Review ◽  
Institutions Of Higher Learning

Community-based research (CBR) has grown rapidly since its origins and has helped to make substantial and positive changes within communities. The goals of CBR are to collaborate with community-based organizations (CBOs) and community partners in culturally sensitive, synergistic relationships to address community-defined problems and find community-relevant solutions. This chapter focuses on the ethical challenges that community-based researchers and CBOs face when working with traditional Institutional Review Boards (IRBs) to guide and evaluate their projects. Traditional IRB standards regarding informed consent, personal and professional boundaries, and decisions regarding risks and benefits to communities need to change. Academic researchers, community partners, IRBs, and institutions of higher learning must work together so that community-based researchers and CBOs can continue to work in community and communities for social justice and social change.

Comunidad Maya Pixan Ixim and University Researchers: Partnering in Community Health Development

2012 ◽  
Vol 34 (1) ◽  
pp. 37-40
Author(s):  
Luis Marcos ◽  
M. Rosales ◽  
Alexander Rödlach ◽  
John Stone
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Healthcare Research ◽  
Local Health ◽  
Participatory Action ◽  
Community Based ◽  
Marginalized Communities ◽  
Working Together

Applied anthropologists value participatory action research (PAR). In 2008, the Society for Applied Anthropology bestowed the 2008 Bronislaw Malinowski Award upon Orlando Fals-Borda, who is best known for developing the theory and methodology of this approach and his leadership in social and political activism on behalf of and with marginalized communities. Fals-Borda argues that PAR encourages value-driven and collaboratively-conducted research that transforms the relationship between marginalized communities and the organizations that serve them so as to improve their socio-political situation (Fals-Borda and Rahman 1991). Comparably, the Agency for Healthcare Research and Quality of the US Department of Health and Human Services has recognized the value of community-based participatory research for both researchers and the community being studied (Agency for Healthcare Research and Quality 2004:1). The Agency has emphasized the importance of academic professionals and community members working together in community-based participatory research as equal partners in developing, implementing, and using research findings to improve local health and healthcare. Community-based participatory research and participatory action research share many features.

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