Defining quality of life for individuals with neurodevelopmental disorders: Challenges within an inpatient population

2021 ◽  
pp. 174462952098283
Author(s):  
Emma Harriman ◽  
Adenekan Oyefeso
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Neurodevelopmental Disorders ◽  
Exclusion Criteria ◽  
Specific Population ◽  
Community Inclusion ◽  
Intrapersonal Factors ◽  
Treatment Facilities ◽  
Inpatient Population

Purpose: The concept of Quality of Life (QoL) for people with neurodevelopmental disorders primarily focuses on deinstitutionalisation and community inclusion. This population, however, often presents with comorbid diagnoses and is sectioned to treatment facilities under the Mental Health Act. The aim of this paper is to review the existing literature on QoL and discuss the consideration of this specialised population and the environment when measuring QoL. Methods: Databases were searched using specific inclusion and exclusion criteria to ensure literature reviewed was relevant to the defined population. The challenges identified from the literature were categorised into interpersonal and intrapersonal factors. Results: A total of 30 articles were retrieved and considered in this review. Conclusions: This paper discusses how these individuals present with different behaviours and opportunities, which subsequently make it difficult to apply existing knowledge of QoL. The need to further examine the QoL in this specific population is discussed.

scholarly journals Indian aesthetic dance and yoga improves mental health among caregivers of children with neurodevelopmental disorders: a randomized trial

2020 ◽  
Vol 7 (7) ◽  
pp. 2532
Author(s):  
Jayashree R. Hegde ◽  
Sridhar K. Melukote ◽  
T. M. Srinivasan ◽  
Deepeshwar Singh
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Statistical Analysis ◽  
Randomized Trial ◽  
Neurodevelopmental Disorders ◽  
Control Group ◽  
High Adherence ◽  
Burden Scale ◽  
Health Related

Background: This study aimed to assess the effects of Indian aesthetic dance (IAD) and yoga on psychological behavioral and mental health-related problems among the caregivers of children with neurodevelopmental disorders (NDDs).Methods: One hundred one caregiver participants were randomly allocated to either intervention of IAD or a structured yoga program or in a control group. The invention groups received supervised eight-weeks IAD or yoga training for 3 alternative days, 75 min each day. In total, 96 subjects completed the study with after high adherence of 95% to intervention sessions. Caregivers were assessed with self-rated primary measures including the Zarit burden scale (ZBS), depression, anxiety, and stress (DASS-21) scale; and secondary measures were revised caregiver’s appraisal scale (RCAS) and WHO Quality of Life WHOQOL (BREF) scale. The assessments were done at pre (1st day), mid (ENT of 4th week), and post (end of 8th week) of interventions.Results: Statistical analysis showed there was a significant reduction in scores of ZBS (p<0.001), DASS-21 (p<0.001), and significant improvement was found in the subscales of RCAS and WHOQOL (BREF) (p<0.001).  Conclusions: The outcome of the study suggests that IAD and Yoga can be feasible interventions for alleviating symptoms of mental health-related issues among caregivers.

scholarly journals Vicarious Stigma and Self-Stigma Experienced by Parents of Children with Mental Health and/or Neurodevelopmental Disorders

2021 ◽  
Author(s):  
Marisa D. Serchuk ◽  
Patrick W. Corrigan ◽  
Sarah Reed ◽  
Jeneva L. Ohan
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Young Children ◽  
Impression Management ◽  
Neurodevelopmental Disorders ◽  
Strategic Disclosure ◽  
The Relationship

AbstractThe stigma of young children with mental health and/or neurodevelopmental disorders is experienced by their parents in at least two ways: self-stigma and vicarious stigma. Secrecy may diminish stigma through impression management or strategic disclosure. The present study explores the relationship between vicarious stigma, self-stigma, secrecy coping, depression, and quality of life. Additionally, we examine the structure of a novel measure of vicarious stigma. Fifty parents of children with mental health and/or neurodevelopmental disorders completed measures. Self-stigma and sadness due to vicarious stigma were significantly associated with greater depression and diminished quality of life. Higher secrecy coping was also associated with higher depression and lower quality of life, supporting the benefits of disclosure. This research meaningfully adds to our understanding of stigma in general, and as experienced by parents of children with mental health and/or neurodevelopmental disorders. Implications for ongoing stigma change development and evaluation are discussed.

Qualifying Quality of Life in Mental Health

PsycCRITIQUES ◽  
2007 ◽  
Vol 52 (33) ◽  
Author(s):  
Itai Danovitch
Keyword(s):  
Quality Of Life ◽  
Mental Health

Mental Health and Quality of Life in Native American Adults

2006 ◽  
Author(s):  
Bethanee Lemesurier ◽  
Jordan Tabb ◽  
Mary Pritchard ◽  
Theodore McDonald
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Native American

Quality of life and mental health of neuropediatric patients

2013 ◽  
Vol 44 (02) ◽  
Author(s):  
A Novak ◽  
K Klaus ◽  
R Seidl ◽  
H Werneck ◽  
M Schubert ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health

Understanding quality of life and treatment history of patients with Bertolotti syndrome compared with lumbosacral radiculopathy

2019 ◽  
Vol 31 (2) ◽  
pp. 222-228 ◽  
Author(s):  
Joshua L. Golubovsky ◽  
Arbaz Momin ◽  
Nicolas R. Thompson ◽  
Michael P. Steinmetz
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Propensity Score ◽  
Disc Herniation ◽  
Symptom Onset ◽  
Patient Reported Outcomes ◽  
Lumbosacral Radiculopathy ◽  
Patient Reported ◽  
Age And Sex

OBJECTIVEBertolotti syndrome is a rare spinal condition that causes low-back pain due to a lumbosacral transitional vertebra (LSTV), which is a pseudoarticulation between the fifth lumbar transverse process and the sacral ala. Bertolotti syndrome patients are rarely studied, particularly with regard to their quality of life. This study aimed to examine the quality of life and prior treatments in patients with Bertolotti syndrome at first presentation to the authors’ center in comparison with those with lumbosacral radiculopathy.METHODSThis study was a retrospective cohort analysis of patients with Bertolotti syndrome and lumbosacral radiculopathy due to disc herniation seen at the authors’ institution’s spine center from 2005 through 2018. Diagnoses were confirmed with provider notes and imaging. Variables collected included demographics, diagnostic history, prior treatment, patient-reported quality of life metrics, and whether or not they underwent surgery at the authors’ institution. Propensity score matching by age and sex was used to match lumbosacral radiculopathy patients to Bertolotti syndrome patients. Group comparisons were made using t-tests, Fisher’s exact test, Mann-Whitney U-tests, Cox proportional hazards models, and linear regression models where variables found to be different at the univariate level were included as covariates.RESULTSThe final cohort included 22 patients with Bertolotti syndrome who had patient-reported outcomes data available and 46 propensity score–matched patients who had confirmed radiculopathy due to disc herniation. The authors found that Bertolotti syndrome patients had significantly more prior epidural steroid injections (ESIs) and a longer time from symptom onset to their first visit. Univariate analysis showed that Bertolotti syndrome patients had significantly worse Patient-Reported Outcomes Measurement Information System (PROMIS) mental health T-scores. Adjustment for prior ESIs and time from symptom onset revealed that Bertolotti syndrome patients also had significantly worse PROMIS physical health T-scores. Time to surgery and other quality of life metrics did not differ between groups.CONCLUSIONSPatients with Bertolotti syndrome undergo significantly longer workup and more ESIs and have worse physical and mental health scores than age- and sex-matched patients with lumbosacral radiculopathy. However, both groups of patients had mild depression and clinically meaningful reduction in their quality of life according to all instruments. This study shows that Bertolotti syndrome patients have a condition that affects them potentially more significantly than those with lumbosacral radiculopathy, and increased attention should be paid to these patients to improve their workup, diagnosis, and treatment.

Mental Health Status and Health-Related Quality of Life among Systemic Lupus Erythematosus (SLE) Patients in Thailand: A Multi-Site Study

2020 ◽  
Vol 103 (11) ◽  
pp. 1185-1193
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Health Status ◽  
Lupus Erythematosus ◽  
Self Esteem ◽  
Mental Health Status ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background: The systemic lupus erythematosus (SLE) patients oftentimes suffer from both physical and psychosocial challenges that may lead to low health-related quality of life (HRQoL). However, limited research has been done in this area. Objective: To examined mental health status and HRQoL among SLE patients in Thailand. Materials and Methods: The present study was a cross-sectional study conducted at the rheumatology clinic of four major hospitals in Thailand. The paper-based questionnaire consisted of demographic, health history such as depression, anxiety, stress Scale (DASS-21), and the Rosenberg self-esteem scale (RSE), and the disease-specific Lupus Quality of Life scale (LupusQoL). Depending on the variable’s level of measurement such as categorical or continuous, Spearman’s Rho or Pearson’s product moment correlation coefficients were used to explore the relationships among the variables. Hierarchical multiple regression was used to identify the predictors of LupusQoL. Results: Among the 387 participants, many might have experienced depression, anxiety, and stress (30%, 51%, and 29%, respectively). Self-esteem among the participants was good (31.8 out of 40). All eight domains of LupusQoL were affected with intimate relationship domain being impacted the most. The overall LupusQoL was significantly associated with the number of prescribed medications (r=–0.23), depression (r=–0.70), anxiety (r=–0.58), stress (r=–0.67), and self-esteem (r=0.59), p<0.001. Significant predictors of the overall LupusQoL were mental health status (depression, anxiety, and stress) and self-esteem, F (3, 81)=43.10, p<0.001, adjusted R²=0.60. Conclusion: SLE patients should be holistically assessed in both physical and psychological aspects. In addition to proper medical treatments, healthcare providers should use a multidisciplinary team approach to resolve the patients’ psychosocial issues, which in turn, may increase the patients’ quality of life. Self-care education may be necessary to help the patients manage the condition and decrease the number of medications. Keywords: Mental health, Quality of life, SLE, Thailand

Impact of Social Isolation Strategies Due to COVID-19 on Mental Health and Quality of Life in Brazil

2020 ◽  
Author(s):  
Luciano Magalhães Vitorino ◽  
Gerson Hiroshi Yoshinari Júnior ◽  
Gabriela Gonzaga ◽  
Isabela Faria Dias ◽  
Isabela Marum Góes Ribeiro ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Social Isolation
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