Enhancing the decision-making process when considering artificial nutrition in advanced dementia care

2019 ◽  
Vol 25 (5) ◽  
pp. 216-223 ◽  
Author(s):  
Diana De ◽  
Carol Thomas

Background: Nutritional problems often manifest during late-stage dementia, and some families may request to instigate artificial nutrition and hydration (ANH) therapies. In the US, an estimated one-third of nursing home patients with a severe cognitive impairment have artificial feeding tubes inserted. Fear that a relative could experience extreme hunger or thirst if they are not mechanically fed tends to be the main driver behind family's requests to implement artificial or enteral feeding methods. In contrast, artificial hydration is rarely given to older people with dementia in the UK and this practice of non-intervention tends to apply across all healthcare and hospice type environments. Aim: This literature review aims to evaluate the evidence to support the use and non-use of ANH. Method: A literature review was undertaken to examine the evidence around ANH for patients with dementia to offer support to families or carers contemplating feeding choices. Conclusion: This paper challenges the implementation of invasive ANH worldwide. It highlights how resorting to ANH does not necessarily lead to improvements in comfort, survival or wound healing. The risk of aspiration does not appear to significantly alter either.

2005 ◽  
Vol 165 (15) ◽  
pp. 1729 ◽  
Author(s):  
H. Roeline W. Pasman ◽  
Bregje D. Onwuteaka-Philipsen ◽  
Didi M. W. Kriegsman ◽  
Marcel E. Ooms ◽  
Miel W. Ribbe ◽  
...  

2004 ◽  
Vol 18 (3) ◽  
pp. 154-162 ◽  
Author(s):  
H Roeline W Pasman ◽  
Bregje D Onwuteaka-Philipsen ◽  
Marcel E Ooms ◽  
Petra T van Wigcheren ◽  
Gerrit van der Wal ◽  
...  

2010 ◽  
Vol 5 (2) ◽  
pp. 29 ◽  
Author(s):  
Emma L Teper ◽  
Julian C Hughes ◽  
◽  

The prevalence of dementia across Europe and the world is increasing. People die with and from dementia and, as such, advanced dementia can be considered a terminal condition. This, alongside the realisation that care for people with dementia is deficient, has led to increasing interest in palliative care in dementia. Palliative care can be a rather broad term with different meanings, but nonetheless guidelines and expert opinions have been developed with the aim of improving overall care for people with dementia. Although at times the evidence on which these guidelines are based is somewhat sparse, they provide guidance in specific areas relevant to dementia. The main areas covered are pain, infection and fevers, artificial nutrition and hydration, resuscitation and psychological, social and spiritual needs. We shall consider the evidence on which guidance is based and then highlight a recent ethical framework developed to help thinking around the issues that arise in dementia care.


US Neurology ◽  
2011 ◽  
Vol 07 (01) ◽  
pp. 10
Author(s):  
Emma L Teper ◽  
Julian C Hughes ◽  
◽  

The prevalence of dementia across Europe and the world is increasing. People die with and from dementia and, as such, advanced dementia can be considered a terminal condition. This, alongside the realization that care for people with dementia is deficient, has led to increasing interest in palliative care in dementia. Palliative care can be a rather broad term with different meanings, but nonetheless guidelines and expert opinions have been developed with the aim of improving overall care for people with dementia. Although at times the evidence on which these guidelines are based is somewhat sparse, they provide guidance in specific areas relevant to dementia. The main areas covered are pain, infection and fevers, artificial nutrition and hydration, resuscitation, and psychological, social, and spiritual needs. We shall consider the evidence on which guidance is based and then highlight a recent ethical framework developed to help thinking around the issues that arise in dementia care.


2007 ◽  
Vol 14 (1) ◽  
pp. 3-20
Author(s):  
Simon Gabe ◽  
Gwen Sayers

AbstractIn the UK, restraining medical patients in order to provide care is widely considered to be outmoded and difficult to justify. The prevailing clinical intuition that restraining patients is generally wrong (even when restraint is essential in order to provide artificial nutrition and hydration) has prompted us to develop a policy that is compatible with common law, the Mental Capacity Act 2005 and the Human Rights Act 1998. The nature and scope of the problem are illustrated with clinical cases. These, in turn, serve to demonstrate the tension that arises between article 2, article 3 and article 8 rights, when incompetent patients are restrained in order to feed.


2006 ◽  
Vol 18 (2) ◽  
pp. 227-240 ◽  
Author(s):  
H. Roeline W. Pasman ◽  
Bregje D. Onwuteaka-Philipsen ◽  
Didi M. W. Kriegsman ◽  
Marcel E. Ooms ◽  
Gerrit van der Wal ◽  
...  

Background: To investigate the characteristics of patients in whom artificial nutrition and hydration (ANH) is forgone, duration of survival after the decision and factors that are associated with duration of survival.Methods: Observational study based on written questionnaires in 32 Dutch nursing homes. Of 178 nursing home patients with dementia, their treating nursing home physician (NHP) filled in a questionnaire directly after the decision was made to forgo ANH. The maximum follow-up was 6 weeks. Cox proportional hazards analysis was used to determine predictors of survival.Results: Decisions to forgo ANH in Dutch nursing homes were made most often in patients with severe dementia who also had an acute illness. More than half the patients (59%) died within 1 week after the decision. Patients with dyspnea and/or apathy were more likely to die during follow-up than patients without these symptoms. Patients who were considered more severely ill by the NHP were more likely to die than those who were considered less severely ill. The presence of restlessness indicated a higher chance of survival.Conclusions: The clinical judgment of the NHP of the severity of illness appeared to be a strong predictor of patient survival. NHPs should not rely solely on their clinical judgment concerning survival, but they should also consider the presence or absence of dyspnea, apathy and restlessness.


2004 ◽  
Vol 18 (3) ◽  
pp. 321-335 ◽  
Author(s):  
H.Roeline W Pasman ◽  
B.Anne Mei The ◽  
Bregje D Onwuteaka-Philipsen ◽  
Miel W Ribbe ◽  
Gerrit van der Wal

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