Home Health Care For Children With Medical Complexity: Workforce Gaps, Policy, And Future Directions

Abstract Background and Objectives Recent Medicare home health payment changes reduce reimbursement for care provided to patients without a preceding hospitalization. Beneficiaries may enter home health without a preceding hospitalization via referral from a community provider or through incurring multiple episodes of home health care. We assess potential implications of this change by examining the characteristics of patients accessing Medicare home health through each of these pathways. Research Design and Methods Nationally representative retrospective cohort study of 1,224 (weighted n = 5,913,080) older adults who participated in the National Health and Aging Trends Study between 2011 and 2015 and received Medicare-funded home health within 1 year of interview. Patient characteristics before home health were drawn from the National Health and Aging Trends Study, while characteristics during home health, referral source, and number of episodes incurred were drawn from linked Outcomes and Assessment Information Set and Medicare claims. We tested for differences in characteristics by referral source and number of episodes using weighted chi-square tests and t tests. Results Patients referred to home health from the community were more than twice as likely to be Medicaid-enrolled (24.0% vs 12.5%, p < .001), have dementia (29.5% vs 12.4%, p < .001), and have received 80 or more hours/month of family caregiver assistance (20.7% vs 10.1%, p < .001) prior to home health entry compared to those referred from a hospital or skilled nursing facility. Patients who incurred multiple episodes in a spell of home health care were more likely to have high clinical severity during home health (48.3% vs 28.1%, p < .001), compared to those with a single episode. Discussion and Implications Greater social vulnerability and care needs before home health were associated with community referral, while greater clinical severity during home health was associated with incurring multiple episodes of care. Findings suggest that recent payment changes may threaten home health access among beneficiaries with greater social vulnerability and/or medical complexity.

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Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity

Clinical Pediatrics ◽

10.1177/0009922819894006 ◽

2019 ◽

Vol 59 (2) ◽

pp. 178-187 ◽

Cited By ~ 1

Author(s):

Renee D. Boss ◽

Jessica C. Raisanen ◽

Kathryn Detwiler ◽

Karen Fratantoni ◽

Susan M. Huff ◽

...

Keyword(s):

Health Care ◽

Lived Experience ◽

Home Health Care ◽

Child Survival ◽

Well Being ◽

Home Health ◽

Central Component ◽

Medical Conditions ◽

Children With Medical Complexity ◽

Care Gaps

Background. For children with complex medical conditions, pediatric home health care is a chronic need. It is a clinical service delivered entirely outside of clinical settings, granting families unparalleled expertise regarding service quality. Methods. Telephone interviews with parents whose children have extensive experiences with home health care. Results: Five themes emerged: (1) benefits of home health care include child survival and family stability; (2) family life is inextricable from home health care schedules, staffing, and services; (3) home health care gaps threaten family physical, mental, and financial well-being; (4) Out-of-pocket costs are common; and (5) families must fight for services as their children’s medical conditions evolve. Conclusions. Families understand better than prescribers, providers, or policy makers what is working, and what is not, with home health care. Family expertise should be the foundation for training other families, clinicians, and home health care agencies, and should be a central component of policy and advocacy in this area.

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Home Health Care Utilization in Children With Medicaid

PEDIATRICS ◽

10.1542/peds.2021-050534 ◽

2022 ◽

Author(s):

Sarah A. Sobotka ◽

David E. Hall ◽

Cary Thurm ◽

James Gay ◽

Jay G. Berry

Keyword(s):

Health Care ◽

Home Health Care ◽

Chronic Conditions ◽

Chronic Condition ◽

Home Health ◽

Care Utilization ◽

Coding System ◽

Nursing Assistant ◽

Children With Medical Complexity ◽

Technology Assistance

BACKGROUND: Although many children with medical complexity (CMC) use home health care (HHC), little is known about all pediatric HHC utilizers. Our objective was to assess characteristics of pediatric HHC recipients, providers, and payments. METHODS: We conducted a retrospective analysis of 5 209 525 children age 0-to-17 years enrolled Medicaid in the 2016 IBM Watson MarketScan Medicaid Database. HHC utilizers had ≥ 1 HHC claim. Healthcare Common Procedure Coding System (HCPCS) and Current Procedural Terminology (CPT) codes were reviewed to codify provider types when possible: registered nurse (RN), licensed practical nurse (LPN), home health aide (HHA), certified nursing assistant (CNA), or companion/personal attendant. Enrollee clinical characteristics, HHC provider type, and payments were assessed. Chronic conditions were evaluated with Agency for Healthcare Research and Quality’s Chronic Condition Indicators and Feudtner’s Complex Chronic Conditions. RESULTS: Of the 0.8% of children who used HHC, 43.8% were age <1 year, 25% had no chronic condition, 38.6% had a noncomplex chronic condition, 21.5% had a complex chronic condition without technology assistance, and 15.5% had technology assistance (eg, tracheostomy). HHC for children with technology assistance accounted for 72.6% of all HHC spending. Forty-five percent of HHC utilizers received RN/LPN-level care, 7.9% companion/personal attendant care, 5.9% HHA/CNA-level care, and 36% received care from an unspecified provider. For children with technology assistance, the majority (77.2%) received RN/LPN care, 17.5% companion/personal assistant care, and 13.8% HHA/CNA care. CONCLUSIONS: Children using HHC are a heterogeneous population who receive it from a variety of providers. Future investigations should explore the role of nonnurse caregivers, particularly with CMC.

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