Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity

2019 ◽  
Vol 59 (2) ◽  
pp. 178-187 ◽  
Author(s):  
Renee D. Boss ◽  
Jessica C. Raisanen ◽  
Kathryn Detwiler ◽  
Karen Fratantoni ◽  
Susan M. Huff ◽  
...  
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Home Health Care ◽  
Child Survival ◽  
Well Being ◽  
Home Health ◽  
Central Component ◽  
Medical Conditions ◽  
Children With Medical Complexity ◽  
Care Gaps

Background. For children with complex medical conditions, pediatric home health care is a chronic need. It is a clinical service delivered entirely outside of clinical settings, granting families unparalleled expertise regarding service quality. Methods. Telephone interviews with parents whose children have extensive experiences with home health care. Results: Five themes emerged: (1) benefits of home health care include child survival and family stability; (2) family life is inextricable from home health care schedules, staffing, and services; (3) home health care gaps threaten family physical, mental, and financial well-being; (4) Out-of-pocket costs are common; and (5) families must fight for services as their children’s medical conditions evolve. Conclusions. Families understand better than prescribers, providers, or policy makers what is working, and what is not, with home health care. Family expertise should be the foundation for training other families, clinicians, and home health care agencies, and should be a central component of policy and advocacy in this area.

scholarly journals Registered nurses’ experiences of information technology use in home health care - from a sustainable development perspective

BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Vicki Koltsida ◽  
Lise-Lotte Jonasson
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Sustainable Development ◽  
Registered Nurses ◽  
Home Health Care ◽  
Technology Use ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Home Health ◽  
It Use

Abstract Background The work of registered nurses in home health care is complicated and extensive, and information technology (IT) is used in everyday activities. Coordination between care and resource efficiency is important. There is a wealth of information that supports the notion of sustainable development, but what sustainable development means from the perspective of the registered nurse in home health care when using IT is limited. The term “sustainable development” is not clearly defined and is poorly researched in nursing. Sustainable development in this study includes the ecological, economic, social, technical and ethical dimensions. The aim of this study was to describe registered nurses’ experience of IT use in home health care through a sustainable development model. Methods This study was conducted using ten semi-structured lifeworld interviews with registered nurses. The method employed was a qualitative content analysis with a deductive approach. The deductive approach consisted of a model of sustainable development. Results Analysis of the interviews and the model of sustainable development provided categories: using IT from an ecological dimension, the registered nurses experienced reduced consumption and damage to the environment; using IT in the economical dimension, saving of time and resources was experienced; the use of IT affected social aspects such as the work environment and patient safety, and positive consequences, such as accessibility, were also mentioned; using IT from a technical dimension was characterized by the nurse’s attitude towards it – the registered nurses felt it improved the quality of care and gave users an overview of the organization; and from an ethical dimension, the registered nurses expressed the need for IT to be adaptable to the patient’s well-being and indicated that more awareness of risks in the care meeting may be needed. Conclusion The findings are discussed based on the synergies and conflicts that arise between the different dimensions of sustainable development. IT intertwines and overlaps with, and within, the environment, economy, society, technology and ethics. Registered nurses in home health care want to conduct good and safe care, while using IT could benefit patients.

The Caring Class

2021 ◽  
Author(s):  
Richard Schweid
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Home Health Care ◽  
Current System ◽  
Well Being ◽  
The United States ◽  
Home Health ◽  
Care Providers ◽  
South Bronx ◽  
Loved One

The number of elderly and disabled Americans in need of home health care is increasing annually, even as the pool of people — almost always women — willing to do this job gets smaller and smaller. This book takes readers inside the reality of home health care by following the lives of women training and working as home health aides in the South Bronx. The book examines home health care in detail, focusing on the women who tend to our elderly and disabled loved ones and how we fail to value their work. They are paid minimum wage so that we might be absent, getting on with our own lives. The book calls for a rethinking of home health care and explains why changes are urgent: the current system offers neither a good way to live nor a good way to die. By improving the job of home health aide, we can reduce income inequality and create a pool of qualified, competent home health care providers who would contribute to the well-being of us all. The book also serves as a guide into the world of our home health care system. Nearly 50 million US families look after an elderly or disabled loved one. The book explains the issues and choices they face. It explores the narratives, histories, and people behind home health care in the United States, examining how we might improve the lives of both those who receive care and those who provide it.

High-Value Pediatric Home Health Care for Children With Medical Complexity

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Sheldon M. Retchin ◽  
Elizabeth Rubio ◽  
William A. Dombi
Keyword(s):  
Health Care ◽  
Home Health Care ◽  
Home Health ◽  
Children With Medical Complexity ◽  
Medical Complexity

Home Health Care Utilization in Children With Medicaid

PEDIATRICS ◽  
2022 ◽  
Author(s):  
Sarah A. Sobotka ◽  
David E. Hall ◽  
Cary Thurm ◽  
James Gay ◽  
Jay G. Berry
Keyword(s):  
Health Care ◽  
Home Health Care ◽  
Chronic Conditions ◽  
Chronic Condition ◽  
Home Health ◽  
Care Utilization ◽  
Coding System ◽  
Nursing Assistant ◽  
Children With Medical Complexity ◽  
Technology Assistance

BACKGROUND: Although many children with medical complexity (CMC) use home health care (HHC), little is known about all pediatric HHC utilizers. Our objective was to assess characteristics of pediatric HHC recipients, providers, and payments. METHODS: We conducted a retrospective analysis of 5 209 525 children age 0-to-17 years enrolled Medicaid in the 2016 IBM Watson MarketScan Medicaid Database. HHC utilizers had ≥ 1 HHC claim. Healthcare Common Procedure Coding System (HCPCS) and Current Procedural Terminology (CPT) codes were reviewed to codify provider types when possible: registered nurse (RN), licensed practical nurse (LPN), home health aide (HHA), certified nursing assistant (CNA), or companion/personal attendant. Enrollee clinical characteristics, HHC provider type, and payments were assessed. Chronic conditions were evaluated with Agency for Healthcare Research and Quality’s Chronic Condition Indicators and Feudtner’s Complex Chronic Conditions. RESULTS: Of the 0.8% of children who used HHC, 43.8% were age <1 year, 25% had no chronic condition, 38.6% had a noncomplex chronic condition, 21.5% had a complex chronic condition without technology assistance, and 15.5% had technology assistance (eg, tracheostomy). HHC for children with technology assistance accounted for 72.6% of all HHC spending. Forty-five percent of HHC utilizers received RN/LPN-level care, 7.9% companion/personal attendant care, 5.9% HHA/CNA-level care, and 36% received care from an unspecified provider. For children with technology assistance, the majority (77.2%) received RN/LPN care, 17.5% companion/personal assistant care, and 13.8% HHA/CNA care. CONCLUSIONS: Children using HHC are a heterogeneous population who receive it from a variety of providers. Future investigations should explore the role of nonnurse caregivers, particularly with CMC.

scholarly journals Home Health Care Availability and Discharge Delays in Children With Medical Complexity

PEDIATRICS ◽  
2018 ◽  
Vol 143 (1) ◽  
pp. e20181951 ◽  
Author(s):  
Roy Maynard ◽  
Eric Christensen ◽  
Rhonda Cady ◽  
Abraham Jacob ◽  
Yves Ouellette ◽  
...  
Keyword(s):  
Health Care ◽  
Home Health Care ◽  
Home Health ◽  
Children With Medical Complexity ◽  
Health Care Availability ◽  
Medical Complexity ◽  
Care Availability
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