Knowledge of Disease and Health Information Needs of the Patients with Inflammatory Bowel Disease in a Developing Country

2005 ◽  
Vol 100 ◽  
pp. S301
Author(s):  
Mohammadreza Rezailashkajani ◽  
Delnaz Roshandel ◽  
Shahin Ansari ◽  
Mohammad R. Zali
Keyword(s):  
Inflammatory Bowel Disease ◽  
Health Information ◽  
Developing Country ◽  
Bowel Disease ◽  
Information Needs ◽  
Inflammatory Bowel

scholarly journals Inflammatory bowel disease: An evaluation of health information on the internet

2017 ◽  
Vol 23 (9) ◽  
pp. 1676 ◽  
Author(s):  
Samy A Azer ◽  
Thekra I AlOlayan ◽  
Malak A AlGhamdi ◽  
Malak A AlSanea
Keyword(s):  
Inflammatory Bowel Disease ◽  
Health Information ◽  
Bowel Disease ◽  
The Internet ◽  
Inflammatory Bowel

Occurrence of inflammatory bowel disease in central Italy: A study based on health information systems

2014 ◽  
Vol 46 (9) ◽  
pp. 777-782 ◽  
Author(s):  
Riccardo Di Domenicantonio ◽  
Giovanna Cappai ◽  
Massimo Arcà ◽  
Nera Agabiti ◽  
Anna Kohn ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Information Systems ◽  
Health Information ◽  
Bowel Disease ◽  
Central Italy ◽  
Health Information Systems ◽  
Inflammatory Bowel

scholarly journals Information Needs and Concerns of Patients with Inflammatory Bowel Disease: What Can We Learn from Participants in a Bilingual Clinical Cohort?

PLoS ONE ◽  
2016 ◽  
Vol 11 (3) ◽  
pp. e0150620 ◽  
Author(s):  
Valérie Pittet ◽  
Carla Vaucher ◽  
Michel H. Maillard ◽  
Marc Girardin ◽  
Philippe de Saussure ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Information Needs ◽  
Clinical Cohort ◽  
Inflammatory Bowel

How Is the Administrator's Experience in Managing Health Facebook Groups?

2022 ◽  
pp. 397-417
Author(s):  
Claudia Pernencar ◽  
Inga Saboia
Keyword(s):  
Inflammatory Bowel Disease ◽  
Social Media ◽  
Health Information ◽  
User Experience ◽  
Bowel Disease ◽  
User Interaction ◽  
Structured Interviews ◽  
Daily Lives ◽  
The Status ◽  
Inflammatory Bowel

This decade, patients with chronic conditions take advantage of technological resources to share experiences, look for help, and get together in groups. Social media has become a productive spot of health information for users. This chapter clarifies the administrators' user experience of social media health groups within the context of the Inflammatory Bowel Disease (IBD). Semi-structured interviews with 7 Portuguese and Brazilian managers of Facebook groups were carried out. The authors propose a model of participation in online communities that take into account the variables of Presence–Interconnection between users in daily lives; Relationship–Aspects of experience where users meet; Reputation–Positioning of users related to the status; Groups–Relationship issues between members; Conversations – Extension of the user interaction; Sharing–Represents the exchange, distribution, and reception and Education–The information transmitted. Findings reinforced that administrators' groups use social media to lead patients´ empowerment.

scholarly journals The Information Needs and Preferences of Persons with Longstanding Inflammatory Bowel Disease

2012 ◽  
Vol 26 (8) ◽  
pp. 525-531 ◽  
Author(s):  
Samantha Wong ◽  
John R Walker ◽  
Rachel Carr ◽  
Lesley A Graff ◽  
Ian Clara ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Information Needs ◽  
Population Based ◽  
Information Delivery ◽  
Medical Specialist ◽  
Amount Of Information ◽  
Inflammatory Bowel ◽  
Long Term Prognosis

BACKGROUND: Understanding the information needs and preferred vehicles of information delivery to patients with inflammatory bowel disease (IBD) will enhance their care.OBJECTIVE: To survey persons with longstanding IBD as to their information needs and preferred vehicles of information delivery.METHODS: The population-based Manitoba IBD Cohort (n=271, mean disease duration 11 years) was surveyed to assess its information needs across 23 issues, both retrospectively at the time of diagnosis and currently.RESULTS: Most participants (64%) were initially diagnosed by a gastroenterologist, or otherwise by a family physician (19%) or surgeon (12%). Recalling time of diagnosis, at least 80% rated as very important information about common symptoms of IBD, possible complications, long-term prognosis, medication side effects, self management of symptoms and when to involve the doctor, yet only 10% to 36% believed they received the right amount of information about these issues. Dietary guidance was also regarded as important by 80% to 89%, yet only 8% to 16% received the correct amount of information. Regarding current needs, a large proportion believed it would be very helpful to have more information about long-term prognosis (66%) and diet considerations (60% to 68%). The following information sources were regarded as very acceptable: medical specialist (81%); brochure (79%); family doctor (64%); and website (64%), with 51% ranking the medical specialist as the first choice. In a comparison of the responses of this cohort to those of a recently diagnosed sample, there was remarkable consistency in the information needs and most desired sources of information.DISCUSSION: In the present population-based cohort with longstanding disease, dietary information was regarded as the least adequately addressed. There was clear openness to receiving information through other routes than just the medical specialist, suggesting that optimizing brochures and websites would be an important adjunct source of information.CONCLUSION: Approximately 10 years after diagnosis, only a small percentage of persons with IBD believed they received the correct amount of information about the issues they regarded as most important to have discussed at diagnosis.

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