How Is the Administrator&#39;s Experience in Managing Health Facebook Groups?

Social Media ◽

Health Information ◽

User Experience ◽

Bowel Disease ◽

User Interaction ◽

Structured Interviews ◽

Daily Lives ◽

The Status ◽

This decade, patients with chronic conditions take advantage of technological resources to share experiences, look for help, and get together in groups. Social media has become a productive spot of health information for users. This chapter clarifies the administrators' user experience of social media health groups within the context of the Inflammatory Bowel Disease (IBD). Semi-structured interviews with 7 Portuguese and Brazilian managers of Facebook groups were carried out. The authors propose a model of participation in online communities that take into account the variables of Presence–Interconnection between users in daily lives; Relationship–Aspects of experience where users meet; Reputation–Positioning of users related to the status; Groups–Relationship issues between members; Conversations – Extension of the user interaction; Sharing–Represents the exchange, distribution, and reception and Education–The information transmitted. Findings reinforced that administrators' groups use social media to lead patients´ empowerment.

Advances in Medical Technologies and Clinical Practice - Communicating Rare Diseases and Disorders in the Digital Age ◽

How Is the Administrator's Experience in Managing Health Facebook Groups?

10.4018/978-1-7998-2088-8.ch011 ◽

2020 ◽

pp. 315-341

Author(s):

Claudia Pernencar ◽

Inga Saboia

Keyword(s):

Social Media ◽

Health Information ◽

User Experience ◽

Bowel Disease ◽

User Interaction ◽

Structured Interviews ◽

Daily Lives ◽

The Status ◽

P375 Patient perspectives on the use of social media in the management of inflammatory bowel disease

10.1136/gutjnl-2020-bsgcampus.449 ◽

2021 ◽

Author(s):

Parker O’Neill ◽

Benjamin Shandro ◽

Andrew Poullis

Keyword(s):

Social Media ◽

Bowel Disease ◽

Patient Perspectives ◽

Inflammatory Bowel ◽

Use Of Social Media

The Status of Diagnostic Markers for Inflammatory Bowel Disease

Current Gastroenterology Reports ◽

10.1007/s11894-010-0145-9 ◽

2010 ◽

Vol 12 (6) ◽

pp. 479-484 ◽

Cited By ~ 10

Author(s):

Poonam Beniwal ◽

Laura Harrell

Keyword(s):

Bowel Disease ◽

Diagnostic Markers ◽

The Status ◽

Reproductive Health and Medication Concerns for Patients With Inflammatory Bowel Disease: Thematic and Quantitative Analysis Using Social Listening (Preprint)

10.2196/preprints.9870 ◽

2018 ◽

Author(s):

Michelle Sophie Keller ◽

Sasan Mosadeghi ◽

Erica R Cohen ◽

James Kwan ◽

Brennan Mason Ross Spiegel

Keyword(s):

Social Media ◽

Reproductive Health ◽

Bowel Disease ◽

Medication Use ◽

Reproductive Age ◽

Office Visits ◽

Voluntary Childlessness ◽

Qualitative Descriptive ◽

BACKGROUND Inflammatory bowel disease (IBD) affects many individuals of reproductive age. Most IBD medications are safe to use during pregnancy and breastfeeding; however, observational studies find that women with IBD have higher rates of voluntary childlessness due to fears about medication use during pregnancy. Understanding why and how individuals with IBD make decisions about medication adherence during important reproductive periods can help clinicians address patient fears about medication use. OBJECTIVE The objective of this study was to gain a more thorough understanding of how individuals taking IBD medications during key reproductive periods make decisions about their medication use. METHODS We collected posts from 3000 social media sites posted over a 3-year period and analyzed the posts using qualitative descriptive content analysis. The first level of analysis, open coding, identified individual concepts present in the social media posts. We subsequently created a codebook from significant or frequently occurring codes in the data. After creating the codebook, we reviewed the data and coded using our focused codes. We organized the focused codes into larger thematic categories. RESULTS We identified 7 main themes in 1818 social media posts. Individuals used social media to (1) seek advice about medication use related to reproductive health (13.92%, 252/1818); (2) express beliefs about the safety of IBD therapies (7.43%, 135/1818); (3) discuss personal experiences with medication use (16.72%, 304/1818); (4) articulate fears and anxieties about the safety of IBD therapies (11.55%, 210/1818); (5) discuss physician-patient relationships (3.14%, 57/1818); (6) address concerns around conception, infertility, and IBD medications (17.38%, 316/1818); and (7) talk about IBD symptoms during and after pregnancy and breastfeeding periods (11.33%, 206/1818). CONCLUSIONS Beliefs around medication safety play an important role in whether individuals with IBD decide to take medications during pregnancy and breastfeeding. Having a better understanding about why patients stop or refuse to take certain medications during key reproductive periods may allow clinicians to address specific beliefs and attitudes during office visits.