Appendix F. General Informed Consent for Traditional Placements in the Florida Faith and Community-Based Delinquency Treatment Initiative (FCBDTI)

2019 ◽  
pp. 166-168
Keyword(s):  
Informed Consent ◽  
Community Based ◽  
Delinquency Treatment

Facilitators, barriers, and recommendations related to the informed consent of Marshallese in a randomized control trial

2020 ◽  
Vol 15 (2) ◽  
pp. 75-83
Author(s):  
Rachel S Purvis ◽  
Leah R Eisenberg ◽  
Christopher R Trudeau ◽  
Christopher R Long ◽  
Pearl A McElfish
Keyword(s):  
Informed Consent ◽  
Randomized Control Trial ◽  
Diabetes Management ◽  
Community Based Participatory Research ◽  
Informed Consent Process ◽  
Consent Process ◽  
Research Approach ◽  
Community Based ◽  
Randomized Control ◽  
Participatory Research Approach

Background The Pacific Islander population is the second fasting growing population in the United States and Arkansas is home to the largest Marshallese population in the continental US. The Marshallese community have significant health disparities with high prevalence of diabetes, heart disease, and obesity compared to the general US population. Using a community-based participatory research approach, researchers and Marshallese community stakeholders identified diabetes as the top health issue for research. Methods From 2014 to 2018, a randomized control trial was conducted comparing standard diabetes management education with a culturally adapted family model of standard diabetes management education delivered in participants’ homes by Marshallese community health workers and certified diabetes educators. Interviews were held with Marshallese participants to document their experiences with and perceptions of the informed consent process for this randomized control trial. Results Participants provided feedback on the process of enrolling in the study, describing barriers and facilitators to giving informed consent from their perspective, and offering recommendations for improving the informed consent process. Conclusion Findings suggest that informed consent with underserved communities, including immigrant and migrant populations who do not speak English or have limited English proficiency, is possible, and that using a community-based participatory research approach can help facilitate the informed consent process.

scholarly journals Identifying Psychosocial Variables of the Interactive Mobile Interface for Geriatric Persons

2021 ◽  
Author(s):  
Njeri Ngaruiya ◽  
Daniel Orwa ◽  
Peter Wagacha
Keyword(s):  
Informed Consent ◽  
Older People ◽  
Sense Of Belonging ◽  
Older Persons ◽  
Exploratory Research ◽  
Research Protocol ◽  
Psychosocial Variables ◽  
Community Based ◽  
Psychological Wellness ◽  
Mobile Interface

<p>This is qualitative exploratory research that looked into the gap between gerontechnology and psychosocial wellness. The physical and psychological wellness of geriatric persons has been developed over the few decades. This has made older people consumers of the different technologies. This, though, is not satisfactory enough as the older generation yearns for the worth and sense of belonging that existed in the traditional world, with the different roles that they played. With the modernization and the recent pandemic, it distances the older persons from their loved ones and society, therefore, disengaging from activities. </p> <p> </p> <p>This research identified this gap, and under a research protocol from a legally authorized organization in Kenya, we approached a philanthropic social home and a community-based daycare where eight participants gave verbal informed consent to take part in the 10-week study</p> <p> </p><br>

The effect of consent guidelines on a multiple sclerosis register

2006 ◽  
Vol 12 (1) ◽  
pp. 104-107 ◽  
Author(s):  
Helen L Ford
Keyword(s):  
Multiple Sclerosis ◽  
Informed Consent ◽  
General Medical Council ◽  
Advisory Group ◽  
Medical Council ◽  
Community Based ◽  
Disease Characteristics ◽  
Significant Difference ◽  
Relapsing Remitting ◽  
Stroke Register

Background The 1998 Data Protection Act and guidelines from the General Medical Council on informed consent have caused concern for medical researchers and particularly those involved in the management of disease registers. Objective The aim of this study was to determine rates of consent for a multiple sclerosis (MS) community-based register and to investigate authorization bias by examining the characteristics of those refusing consent. Methods A consent letter was developed with the advice and support of an advisory group which included people with MS. All people with MS on the prevalent register (n=820) were informed about the register and its purposes and asked to indicate whether they would like their details to be removed from the register. Results Thirty-four (4.1%) people with MS asked for their details to be removed from the register. There was a significant difference in disease course in this group with more patients with benign relapsing-remitting disease compared to the prevalent population. There was no significant difference in age or sex distribution. The proportion of people not giving consent was similar to a local stroke register. Prospectively all new patients have given written informed consent. Conclusion Patients refusing consent may have different disease characteristics than those who consent. The potential for response bias needs to be considered in the development of a UK MS register.

scholarly journals Using Community-Based Participatory Research Principles to Develop More Understandable Recruitment and Informed Consent Documents in Genomic Research

PLoS ONE ◽  
2015 ◽  
Vol 10 (5) ◽  
pp. e0125466 ◽  
Author(s):  
Harlyn G. Skinner ◽  
Larissa Calancie ◽  
Maihan B. Vu ◽  
Beverly Garcia ◽  
Molly DeMarco ◽  
...  
Keyword(s):  
Informed Consent ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Genomic Research ◽  
Community Based

scholarly journals Impact of informed consent content and length on recruitment of older adults into a community based primary prevention trial

2018 ◽  
Vol 11 ◽  
pp. 89-94 ◽  
Author(s):  
Fleur O'Hare ◽  
Simone Spark ◽  
Zachary Flanagan ◽  
Stephane Heritier ◽  
Andrea Curtis ◽  
...  
Keyword(s):  
Older Adults ◽  
Informed Consent ◽  
Primary Prevention ◽  
Prevention Trial ◽  
Primary Prevention Trial ◽  
Community Based

scholarly journals Attitude towards informed consent practice in a developing country: a community-based assessment of the role of educational status

2014 ◽  
Vol 15 (1) ◽  
Author(s):  
Kenneth Amaechi Agu ◽  
Emmanuel Ikechukwu Obi ◽  
Boniface Ikenna Eze ◽  
Wilfred Okwudili Okenwa
Keyword(s):  
Informed Consent ◽  
Developing Country ◽  
Educational Status ◽  
Community Based

scholarly journals Identifying Psychosocial Variables of the Interactive Mobile Interface for Geriatric Persons

2021 ◽  
Author(s):  
Njeri Ngaruiya ◽  
Daniel Orwa ◽  
Peter Wagacha
Keyword(s):  
Informed Consent ◽  
Older People ◽  
Sense Of Belonging ◽  
Older Persons ◽  
Exploratory Research ◽  
Research Protocol ◽  
Psychosocial Variables ◽  
Community Based ◽  
Psychological Wellness ◽  
Mobile Interface

<p>This is qualitative exploratory research that looked into the gap between gerontechnology and psychosocial wellness. The physical and psychological wellness of geriatric persons has been developed over the few decades. This has made older people consumers of the different technologies. This, though, is not satisfactory enough as the older generation yearns for the worth and sense of belonging that existed in the traditional world, with the different roles that they played. With the modernization and the recent pandemic, it distances the older persons from their loved ones and society, therefore, disengaging from activities. </p> <p> </p> <p>This research identified this gap, and under a research protocol from a legally authorized organization in Kenya, we approached a philanthropic social home and a community-based daycare where eight participants gave verbal informed consent to take part in the 10-week study</p> <p> </p><br>

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