Ethical Considerations in Community-Based Participatory Research SPECIAL ISSUE of the Journal of Empirical Research on Human Research Ethics

The conduct of community-based participatory research (CBPR) is a recent innovation in research designs aimed at identifying effective public health interventions. CBPR aims to maximize participation of affected populations in all phases of the research to fulfill three purposes: it is (1) a method for developing innovative interventions, (2) an intervention itself intended to change the respective partners positively as a result of their participation, and (3) a means to fulfill an ethical obligation. CBPR is most ethically significant for respecting community autonomy and providing protections from community-level harms, such as stigmatization of identifiable social groups, lost opportunity costs, and overcoming mistrust, which may lead to reluctance to participate in research and, hence, a lack of empirical data on potential adverse effects or benefits for certain social groups. Key unresolved issues include procedures for enlisting legitimate community representatives and the scope of their authority over the conduct of the research.

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Are Research Ethics Committees Prepared for Community-Based Participatory Research?

Journal of Empirical Research on Human Research Ethics ◽

10.1177/1556264615615008 ◽

2015 ◽

Vol 10 (5) ◽

pp. 488-495 ◽

Cited By ~ 14

Author(s):

Leonardo Tamariz ◽

Heidy Medina ◽

Janielle Taylor ◽

Olveen Carrasquillo ◽

Erin Kobetz ◽

...

Keyword(s):

Research Ethics ◽

Participatory Research ◽

Community Based Participatory Research ◽

Ethics Committees ◽

Research Ethics Committees ◽

Community Based

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Ethics of Biological Sampling Research with Aboriginal Communities in Canada

Global Journal of Health Science ◽

10.5539/gjhs.v9n4p20 ◽

2016 ◽

Vol 9 (4) ◽

pp. 20 ◽

Cited By ~ 1

Author(s):

Behdin Nowrouzi ◽

Lorrilee McGregor ◽

Alicia McDougall ◽

Donna Debassige ◽

Jennifer Casole ◽

...

Keyword(s):

Participatory Research ◽

Ethical Issues ◽

Community Based Participatory Research ◽

Ethical Considerations ◽

Community Based ◽

Aboriginal Communities ◽

Inappropriate Use ◽

Sampling Protocols ◽

Aboriginal Populations ◽

Biological Sampling

BACKGROUND: The objective of this paper is to identify key ethical issues associated with biological sampling in Aboriginal populations in Canada and to recommend approaches that can be taken to address these issues.METHODS: Our work included the review of notable biological sampling cases and issues. We examined several significant cases (Nuu-chah-nult people of British Columbia, Hagahai peoples of Papua New Guinea and the Havasupai tribe of Arizona) on the inappropriate use of biological samples and secondary research in Aboriginal populations by researchers.RESULTS: Considerations for biological sampling in Aboriginal communities with a focus on community-based participatory research involving Aboriginal communities and partners are discussed. Recommendations are provided on issues of researcher reflexivity, ethical considerations, establishing authentic research relationships, ownership of biological material and the use of community-based participatory research involving Aboriginal communities.CONCLUSIONS: Despite specific guidelines for Aboriginal research, there remains a need for biological sampling protocols in Aboriginal communities. This will help protect Aboriginal communities from unethical use of their biological materials while advancing biomedical research that could improve health outcomes.

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