Community-Based Participatory Research: Ethical Considerations

2019 ◽  
pp. 341-353
Author(s):  
David R. Buchanan
Keyword(s):  
Participatory Research ◽  
Social Groups ◽  
Community Based Participatory Research ◽  
Health Interventions ◽  
Ethical Considerations ◽  
Community Based ◽  
Recent Innovation ◽  
Research Designs ◽  
Effective Public Health ◽  
Lost Opportunity

The conduct of community-based participatory research (CBPR) is a recent innovation in research designs aimed at identifying effective public health interventions. CBPR aims to maximize participation of affected populations in all phases of the research to fulfill three purposes: it is (1) a method for developing innovative interventions, (2) an intervention itself intended to change the respective partners positively as a result of their participation, and (3) a means to fulfill an ethical obligation. CBPR is most ethically significant for respecting community autonomy and providing protections from community-level harms, such as stigmatization of identifiable social groups, lost opportunity costs, and overcoming mistrust, which may lead to reluctance to participate in research and, hence, a lack of empirical data on potential adverse effects or benefits for certain social groups. Key unresolved issues include procedures for enlisting legitimate community representatives and the scope of their authority over the conduct of the research.

From Field School to Fieldwork: Incorporating Community-based Participatory Research Principles into Dissertation Research

2015 ◽  
Vol 37 (4) ◽  
pp. 23-27
Author(s):  
Jessica-Jean Casler
Keyword(s):  
Participatory Research ◽  
Collaborative Research ◽  
Community Based Participatory Research ◽  
Learning Spaces ◽  
Community Based ◽  
Ethical Research ◽  
Research Outcomes ◽  
Field School ◽  
Research Designs ◽  
Dissertation Research

This article speaks to the challenges faced conducting an individual, applied dissertation project just months after participating in team-oriented, community-based participatory research (CBPR). As a researcher, I was deeply affected by CBPR's prioritizations of collaborative research designs, reciprocal learning spaces, and more immediately useful research outcomes for the community. After participating in CBPR, I struggled with returning to a project that was far less community-centered. As a result, I integrated CBPR practices into my dissertation research creating a complicated, but worthwhile, CBPR-like approach to a more traditional applied project. Here I share the successes and failures of this process, as well as recommendations that might continue to move us as anthropologists, departments, and a discipline, closer to research that purposefully prioritizes the knowledges, experiences, and desires of communities. In sharing this experience I hope to offer insights to others working toward more equitable and ethical research.

Sexual Health Interventions for Racial/Ethnic Minorities Using Community-Based Participatory Research: A Systematic Review

2021 ◽  
pp. 109019812110083
Author(s):  
Caravella McCuistian ◽  
Bridgette Peteet ◽  
Kathy Burlew ◽  
Farrah Jacquez
Keyword(s):  
Systematic Review ◽  
Health Disparities ◽  
Sexual Health ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Target Group ◽  
Health Interventions ◽  
Community Based ◽  
Group Members ◽  
Racial Ethnic

Background Racial/ethnic minorities (REMs) continue to carry the burden of sexual health disparities in the United States, including increased health risks and lower proportions of preventative care. Community-based participatory research (CBPR) has been useful in developing interventions aimed at reducing these disparities. Specifically, partnership with the target group members has resulted in more culturally relevant intervention strategies. Aim The purpose of this systematic review was to analyze the existing research on sexual health interventions targeting U.S. REMs that were developed using CBPR, to highlight the role target group members played in the development of these interventions, and to explore the benefits and outcomes of these partnerships. Method Preferred Reporting Items for Systematic Review and Meta-Analyses (PRISMA) guided the search of 46 thesauri terms for CBPR, sexual health, and REMs across six databases. Results The initial search yielded 805 identified studies. After applying limiters, reviewing abstracts, and doing a full-text review, 24 appropriate studies were retained. The key findings indicated significant intervention outcomes such as increased health knowledge, attitude change, and behavioral intention that could reduce sexual risk-taking behaviors. Twelve studies detailed the methods for partnering with target group members to formulate interventions, highlighting the benefits related to recruitment, retention, and cultural relevance. Discussion CBPR is well-positioned to address sexual health disparities among REMs. While community partnership strategies vary, the findings yield evidence that CBPR addressing sexual health disparities is achievable, can influence the effectiveness of interventions, and should be considered as an orientation in future sexual health research.

scholarly journals Ethics of Biological Sampling Research with Aboriginal Communities in Canada

2016 ◽  
Vol 9 (4) ◽  
pp. 20 ◽  
Author(s):  
Behdin Nowrouzi ◽  
Lorrilee McGregor ◽  
Alicia McDougall ◽  
Donna Debassige ◽  
Jennifer Casole ◽  
...  
Keyword(s):  
Participatory Research ◽  
Ethical Issues ◽  
Community Based Participatory Research ◽  
Ethical Considerations ◽  
Community Based ◽  
Aboriginal Communities ◽  
Inappropriate Use ◽  
Sampling Protocols ◽  
Aboriginal Populations ◽  
Biological Sampling

<p><strong>BACKGROUND:</strong> The objective of this paper is to identify key ethical issues associated with biological sampling in Aboriginal populations in Canada and to recommend approaches that can be taken to address these issues.</p><p><strong>METHODS:</strong> Our work included the review of notable biological sampling cases and issues. We examined several significant cases (Nuu-chah-nult people of British Columbia, Hagahai peoples of Papua New Guinea and the Havasupai tribe of Arizona) on the inappropriate use of biological samples and secondary research in Aboriginal populations by researchers.</p><p><strong>RESULTS:</strong> Considerations for biological sampling in Aboriginal communities with a focus on community-based participatory research involving Aboriginal communities and partners are discussed. Recommendations are provided on issues of researcher reflexivity, ethical considerations, establishing authentic research relationships, ownership of biological material and the use of community-based participatory research involving Aboriginal communities.</p><p><strong>CONCLUSIONS:</strong> Despite specific guidelines for Aboriginal research, there remains a need for biological sampling protocols in Aboriginal communities. This will help protect Aboriginal communities from unethical use of their biological materials while advancing biomedical research that could improve health outcomes.</p>

scholarly journals Cultural Health Assets of Somali and Oromo Refugees and Immigrants in Minnesota: Findings from a Community-Based Participatory Research Project

2021 ◽  
Author(s):  
Elizabeth Lightfoot ◽  
Jennifer Blevins ◽  
Terry Lum ◽  
Amano Dube
Keyword(s):  
Participatory Research ◽  
Cultural Practices ◽  
Community Based Participatory Research ◽  
Building Blocks ◽  
Health Interventions ◽  
Oral Traditions ◽  
Cultural Value ◽  
Community Based ◽  
Health Assets ◽  
Strong Culture

This community-based participatory research study sought to identify the cultural health assets of the Somali and Oromo communities in one Minnesota neighborhood that could be mobilized to develop culturally appropriate health interventions. Community asset mappers conducted 76 interviews with Somali and Oromo refugees in in Minnesota regarding the cultural assets of their community. A community-university data analysis team coded data for major themes. Key cultural health assets of the Somali and Oromo refugee communities revealed in this study include religion and religious beliefs, religious and cultural practices, a strong culture of sharing, interconnectedness, the prominence of oral traditions, traditional healthy eating and healthy lifestyles, traditional foods and medicine, and a strong cultural value placed on health. These cultural health assets can be used as building blocks for culturally relevant health interventions.

scholarly journals The Basics and Ethics of Social and Behavioral Sciences Research Design: A Book Review

2018 ◽  
Author(s):  
Isibel Moreno
Keyword(s):  
Mixed Methods ◽  
Participatory Research ◽  
Research Design ◽  
Community Based Participatory Research ◽  
Social And Behavioral Sciences ◽  
Behavioral Sciences ◽  
Ethical Considerations ◽  
Community Based ◽  
The Social

The following is a succinct review of the book: Research Design: Quantitative, Qualitative, Mixed Methods, Arts-Based, and Community-Based Participatory Research Approaches, written by Patricia Leavy and published in 2017. This review covers topics such as the book’s successful depiction of the basic concepts encompassed in research design for the social and behavioral sciences, the setup of the chapters, discussions about the author’s inclusion of Review Stops interweaved in each chapter, as well as the author’s discussions of social justice and ethical considerations for each topic explained in the book. In addition, there are brief notes on the author’s expertise in the field of research and a list of her other published works. Lastly, this review offers a recommendation to readers, students and professors alike, to consider this title in their journey towards understanding and/or explaining the basics of quantitative, qualitative, mixed methods, arts-based and community-based participatory research design methods.

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