Family organization for the care of children with chronic conditions, discharged from the neonatal intensive care unit

A qualitative study that aimed to examine family organization for the care of children with chronic conditions, discharged from the Neonatal Intensive Care Unit (NICU). The subjects were 12 relatives of children with chronic health conditions. Data were collected through genograms, ecomaps and semi-structured interviews, developed based on the Family Management Style Framework theoretical model and analyzed using thematic content analysis. The organization of families is related to the ongoing care requirements of the children, considering the routines of care established in the period immediately after discharge from the hospital and continuing up to the present. It was established that families access their social networks to handle the required care.

Download Full-text

THE MEANINGS OF CARING FOR PRE-TERM CHILDREN IN THE VISION OF MALE PARENTS

Texto & Contexto - Enfermagem ◽

10.1590/0104-07072016001680015 ◽

2016 ◽

Vol 25 (4) ◽

Cited By ~ 1

Author(s):

Rachel Leite de Souza Ferreira Soares ◽

Marialda Moreira Christoffel ◽

Elisa da Conceição Rodrigues ◽

Maria Estela Diniz Machado ◽

Adriana Loureiro da Cunha

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Neonatal Intensive Care Unit ◽

Gender Equity ◽

Thematic Analysis ◽

Neonatal Intensive Care ◽

Paternal Care ◽

Structured Interviews ◽

Term Infants ◽

Ethnographic Approach

ABSTRACT The purposes of the study was to analyze the meanings assigned by the father to the assistance of pre-term infants in a Neonatal Intensive Care Unit and to discuss how these meanings influence paternal care. It is a qualitative study with an ethnographic approach, carried out in a neonatal unit in Rio de Janeiro. Twenty-two fathers whose pre-term infants were hospitalized have been interviewed. Data were collected by means of a field logbook, participative observation and semi-structured interviews. Through thematic analysis, the inferred categories were a) father-child proximity and the permanence at the Neonatal Intensive Care Unit: overcoming obstacles and revealing motivations, b) the inclusion of fathers in caring for pre-term children: limits and possibilities. Nurses should favor the proximity of fathers and newborns to strengthen their relationship. The intensivist care neonatal practice should include strategies to support male parenting in pre-term birth considering the perspective of gender equity.

Download Full-text

Fortalecimento do vínculo entre a família e o neonato prematuro

Revista de Enfermagem UFPE on line ◽

10.5205/1981-8963-v13i2a236820p298-306-2019 ◽

2019 ◽

Vol 13 (2) ◽

pp. 298

Author(s):

Silvelene Carneiro de Sousa ◽

Yvana Marília Sales Medino ◽

Kaio Giordan Castelo Branco Benevides ◽

Alinne De Sousa Ibiapina ◽

Karine De Magalhães Nogueira Ataíde

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Neonatal Intensive Care Unit ◽

Neonatal Intensive Care ◽

Maternity Hospital ◽

Nursing Interventions ◽

Structured Interviews ◽

Analysis Technique ◽

Qualitative Descriptive ◽

Terapia Intensiva

RESUMO Objetivo: identificar quais são as intervenções de Enfermagem realizadas em uma Unidade de Terapia Intensiva Neonatal que promovem o fortalecimento do vínculo entre a família e o recém-nascido prematuro. Método: trata-se de estudo qualitativo, descritivo, realizado em uma maternidade pública, com a participação de nove enfermeiros. Obtiveram-se os dados por meio de entrevista´s semiestruturadas, a análise foi pela transcrição na íntegra e organizando em categorias empregando-se a técnica de Análise de Conteúdo na modalidade Análise Temática. Resultados: observou-se que as intervenções mais utilizadas para o fortalecimento do vínculo dos recém-nascidos prematuros e a família são: a entrada livre dos pais na Unidade de Terapia Intensiva Neonatal; trocas de fraldas; administração de dieta; uso de músicas e livros para acalmar os bebês; além do método canguru. Conclusão: conclui-se que a equipe de Enfermagem que assiste o neonato de alto risco procura estar atenta para a dimensão desse fenômeno, procurando desenvolver as intervenções de fortalecimento de vínculo, da melhor forma possível, tendo em vista que os benefícios são mútuos para todos os envolvidos. Descritores: Enfermagem; Unidades de Terapia Intensiva Neonatal; Recém-Nascido Prematuro; Família; Humanização da Assistência; Método Canguru.ABSTRACT Objective: to identify the Nursing interventions performed in a Neonatal Intensive Care Unit, which promote the strengthening of the bond between the family and the premature newborn. Method: this is a qualitative, descriptive study carried out in a maternity hospital, with the participation of nine nurses. The data was obtained through semi-structured interviews; the analysis was by transcription in full and organized into categories using the Content Analysis technique in the Thematic Analysis modality. Results: it was observed that the interventions that were most used to strengthen the bond between premature newborns and the families are: free entry of the parents in the Neonatal Intensive Care Unit; diaper changes; diet management; use of music and books to calm babies; and also the kangaroo method. Conclusion: it is concluded that the Nursing team that assists the high risk newborn tries to be attentive to the dimension of this phenomenon, seeking to develop the interventions of bond strengthening, in the best possible way, considering that the benefits are mutual for all those involved. Descriptors: Enfermagem; Unidades de Terapia Intensiva Neonatal; Recém-nascido Prematuro; Família; Humanização da Assistência; Método Canguru.RESUMENObjetivo: identificar cuáles son las intervenciones de Enfermería realizadas en una Unidad de Terapia Intensiva Neonatal que promueven el fortalecimiento del vínculo entre la familia y el recién nacido prematuro. Método: se trata de un estudio cualitativo, descriptivo, realizado en una maternidad pública, con la participación de nueve enfermeros. Se obtuvieron los datos por medio de entrevistas semiestructuradas, el análisis fue por la transcripción en su totalidad y organizando en categorías empleando la técnica de Análisis de Contenido en la modalidad Análisis Temático. Resultados: se observó que las intervenciones más utilizadas para el fortalecimiento del vínculo de los recién nacidos prematuros y la familia son: la entrada libre de los padres en la Unidad de Terapia Intensiva Neonatal; cambio de pañales; administración de la dieta; el uso de canciones y libros para calmar a los bebés; además del método canguro. Conclusión: se concluye que el equipo de Enfermería que asiste al neonato de alto riesgo busca estar atenta para la dimensión de ese fenómeno, buscando desarrollar las intervenciones de fortalecimiento del vínculo, de la mejor forma posible, teniendo en cuenta que los beneficios son mutuos para todos los involucrados. Descriptores: Enfermagem; Unidades de Terapia Intensiva Neonatal; Recém-nascido Prematuro; Família; Humanização da Assistência; Método Canguru.

Download Full-text

The Psychosocial Aspects of Feeding in the Neonatal Intensive Care Unit and Beyond

Perspectives of the ASHA Special Interest Groups ◽

10.1044/2019_persp-19-00097 ◽

2019 ◽

Vol 4 (6) ◽

pp. 1507-1515

Author(s):

Lauren L. Madhoun ◽

Robert Dempster

Keyword(s):

Intensive Care Unit ◽

Intensive Care ◽

Neonatal Intensive Care Unit ◽

Hospital Discharge ◽

Neonatal Intensive Care ◽

Oral Feeding ◽

Medical Attention ◽

Primary Role ◽

Speech Language Pathologists ◽

The Family

Purpose Feeding challenges are common for infants in the neonatal intensive care unit (NICU). While sufficient oral feeding is typically a goal during NICU admission, this can be a long and complicated process for both the infant and the family. Many of the stressors related to feeding persist long after hospital discharge, which results in the parents taking the primary role of navigating the infant's course to ensure continued feeding success. This is in addition to dealing with the psychological impact of having a child requiring increased medical attention and the need to continue to fulfill the demands at home. In this clinical focus article, we examine 3 main areas that impact psychosocial stress among parents with infants in the NICU and following discharge: parenting, feeding, and supports. Implications for speech-language pathologists working with these infants and their families are discussed. A case example is also included to describe the treatment course of an infant and her parents in the NICU and after graduation to demonstrate these points further. Conclusion Speech-language pathologists working with infants in the NICU and following hospital discharge must realize the family context and psychosocial considerations that impact feeding progression. Understanding these factors may improve parental engagement to more effectively tailor treatment approaches to meet the needs of the child and family.

Download Full-text