scholarly journals Awareness of Parents about the Disease of Children with Autism Spectrum Disorders

2019 ◽  
Vol 17 (4) ◽  
pp. 3-11
Author(s):  
O. Bogacheva ◽  
M.V. Ivanov ◽  
N.V. Simashkova

This article is concerned with the issue of parental awareness of the illness of children with autism spectrum disorders. Lack of awareness of treatment options and its limitations, rehabilitation issues can cause psychological problems in the child’s parents, such as anxiety and stress from the diagnosis. The aim of the pilot study is to determine the parents' awareness of the disease of children with autism spectrum disorders in the early stages of consulting a doctor. To achieve this goal, a specially designed questionnaire was used to determine the level of awareness of the disease, treatment methods, parents` own role, etc. The study showed that most parents of children with autism spectrum disorders evaluate their knowledge as not satisfactory enough. A quarter of parents reported a lack of objective knowledge about the problem of autism in children, the second quarter of parents noted that they have sufficient knowledge about the illness of children and do not need additional information. At the same time, regardless of the level of awareness of the child’s illness, 80% of parents say that they need additional information about the child’s illness, ways and forms of helping him, as well as attending specially organized psycho-educational meetings. The results of this study allow develop effective individualized psycho-educational programs for parents (raising awareness of the problem) aimed at reducing anxiety and stabilizing the emotional background in a family raising a child with autism spectrum disorders.

2020 ◽  
Vol 34 (2) ◽  
Author(s):  
Lei Xu ◽  
Jo Anne Balanay

Environmental factors have been increasingly identi ed as the cause of the current high prevalence of autism spectrum disorders (ASD). Objective: The purpose of this study is to understand parents’ perceptions regarding environmental in uence and autism. Methods: We conducted individual, face-to-face interviews with parents of children with ASD in Eastern North Carolina. Results: Our sample is comprised of 25 parents of children with autism with an average age of 39.08 and 68% were mothers. Our data indicated that 19 (76%) parents believed that environmental factors impacted the development of their children’s autism, half of whom indicated >50% of influence. Among these environmental triggers, food and water (52%), air pollution (40%), pesticides and cleaning products (20%) were the most identied contributing factors associated with the onset of autism. Conclusions: Our findings reflected some unmet needs to improve parental awareness of environmental triggers of ASD.


Author(s):  
Lurike Fourie ◽  
Carla Kotzé ◽  
Deborah Van der Westhuizen

Introduction: The sexual behaviour and development of children with autism spectrum disorders (ASDs) have been mostly overlooked in research and practice. This study aimed to determine the association between certain clinical and demographic factors found in a sample of children with ASDs, and their reported sexual behaviour (RSB).Methods: The study was conducted at a school in Gauteng, South Africa, for learners with ASDs. Two questionnaires completed by caregivers/parents enquired about family stability, clinical profile and RSB (if any) in their child. RSB was analysed via three domains: self-care, socio-sexual skills and actual RSB, with additional information from school records.Results: Of the 107 questionnaires distributed, only 31 parents responded and 24 agreed to participate. The 24 (100%) children included 10 pubertal and 14 pre-pubertal children, of which 18 (n = 18) had more stable primary caregiver statuses as well as more stable socioeconomic and family environments. Two of the 14 pre-pubertal children had abnormal self-care, whereas none of the 10 pubertal children had any abnormal self-care. Eight of the 18 children from more stable environments displayed abnormal sexual behaviours. Of the 6 children from less stable environments, two displayed more abnormal socio-sexual skills, whereas 9 of the 18 children from more stable environments displayed more abnormal sexual behaviour. In contrast with the postulated hypothesis that children from less stable socioeconomic and family environments would exhibit more abnormal sexual behaviours, this study did not find any evidence of such a relationship or association.Conclusion: ASDs are characterised by deficits in communication and social skills. These may lead to an affected individual struggling to develop appropriate sexual behaviour. If specific risk factors that contribute to the development of abnormal sexual behaviour can be identified, one can try to modify/prevent these where some degree of prevention or alleviation may be possible.


2017 ◽  
Vol 23 (1) ◽  
pp. 7
Author(s):  
Lurike Fourie ◽  
Carla Kotzé ◽  
Deborah Van der Westhuizen

<p><strong>Introduction:</strong> The sexual behaviour and development of children with autism spectrum disorders (ASDs) have been mostly overlooked in research and practice. This study aimed to determine the association between certain clinical and demographic factors found in a sample of children with ASDs, and their reported sexual behaviour (RSB).</p><p><strong>Methods:</strong> The study was conducted at a school in Gauteng, South Africa, for learners with ASDs. Two questionnaires completed by caregivers/parents enquired about family stability, clinical profile and RSB (if any) in their child. RSB was analysed via three domains: self-care, socio-sexual skills and actual RSB, with additional information from school records.</p><p><strong>Results:</strong> Of the 107 questionnaires distributed, only 31 parents responded and 24 agreed to participate. The 24 (100%) children included 10 pubertal and 14 pre-pubertal children, of which 18 (<em>n</em> = 18) had more stable primary caregiver statuses as well as more stable socioeconomic and family environments. Two of the 14 pre-pubertal children had abnormal self-care, whereas none of the 10 pubertal children had any abnormal self-care. Eight of the 18 children from more stable environments displayed abnormal sexual behaviours. Of the 6 children from less stable environments, two displayed more abnormal socio-sexual skills, whereas 9 of the 18 children from more stable environments displayed more abnormal sexual behaviour. In contrast with the postulated hypothesis that children from less stable socioeconomic and family environments would exhibit more abnormal sexual behaviours, this study did not find any evidence of such a relationship or association.</p><p><strong>Conclusion:</strong> ASDs are characterised by deficits in communication and social skills. These may lead to an affected individual struggling to develop appropriate sexual behaviour. If specific risk factors that contribute to the development of abnormal sexual behaviour can be identified, one can try to modify/prevent these where some degree of prevention or alleviation may be possible.</p>


2010 ◽  
Vol 20 (2) ◽  
pp. 42-50 ◽  
Author(s):  
Laura W. Plexico ◽  
Julie E. Cleary ◽  
Ashlynn McAlpine ◽  
Allison M. Plumb

This descriptive study evaluates the speech disfluencies of 8 verbal children between 3 and 5 years of age with autism spectrum disorders (ASD). Speech samples were collected for each child during standardized interactions. Percentage and types of disfluencies observed during speech samples are discussed. Although they did not have a clinical diagnosis of stuttering, all of the young children with ASD in this study produced disfluencies. In addition to stuttering-like disfluencies and other typical disfluencies, the children with ASD also produced atypical disfluencies, which usually are not observed in children with typically developing speech or developmental stuttering. (Yairi & Ambrose, 2005).


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