scholarly journals Caracterization of Bioethics Committees in Paraguay

2021 ◽  
Vol 11 (2) ◽  
pp. 9-16
Author(s):  
Silvia Ferreira ◽  
Lucila María González-Donna ◽  
Marta Ascurra
Keyword(s):  
PEDIATRICS ◽  
1985 ◽  
Vol 75 (2) ◽  
pp. 368-370
Author(s):  
EDWARD F. DONOVAN

To the Editor.— The American Academy of Pediatrics Guidelines for Infant Bioethics Committees1 appeared in the midst of increasing public attention on patients such as the Indiana and Long Island Baby Does and in the maze of adopted, invalidated, and newly proposed federal regulations regarding the care of handicapped and otherwise compromised infants. That the AAP guidelines, the Baby Does, and the federal regulations are unrelated events seems unlikely. That the latter two are sufficient justification for the imperfect first is problematic.


2019 ◽  
Vol 4 (Suppl 3) ◽  
pp. A12.2-A12
Author(s):  
Maria Rosário Oliveira Martins ◽  
João Schwalbach ◽  
Esperança Sevene ◽  
Antonieta Martins ◽  
Ema Candida Branco Fernandes ◽  
...  

BackgroundIn 2017, a North-South partnership was created, to strengthen Bioethics Committees in African Lusophone African countries (LAC), by joining the forces of National and Institutional Research Ethics Committees (REC) and Universities in Angola, Cape Verde, Mozambique and Portugal. This study is part of an EDCTP2-funded project and aims to describe key RECs operating in LAC, its establishment dates and further characteristics.MethodsDocument analysis and interviews with REC representatives of five LAC were conducted in April 2018. Legal documents were obtained through official national sources.ResultsWe identified four National Ethics Committees, created between 2000 and 2008 by ministerial or governmental decree; only S. Tomé e Principe does not have an established REC. In Angola, the National REC was created in 2000, and since 2007, seven Institutional Committees were implemented at faculty level. National REC in Cape Verde and Guinee-Bissau (CNES) are unique and were founded in 2007 and 2009 respectively. In Mozambique, National REC (CNBS) dates to 2002, and since 2011, 8 Institutional Committees were formed; they functioned as a network under the umbrella of CNBS. Most National REC have representatives from health professional associations, lawyers, civil society and religious communities and have regular meetings (usually monthly). The number of members ranges between 6 (CNES) and 13 (CNBS). In 2007, around 200 protocols were reviewed by CNBS and 29 by CNES. Most of the National REC members attended training activities in bioethics but at different levels.ConclusionFew publications described REC operating in LAC; this study fills this gap by reporting historical and functional characteristics of RECs in five Lusophone African countries. Additional tools based on quantitative and qualitative approaches are being developed to assess more in-depth REC operational characteristics and to identify their needs in order to target training and capacity building initiatives underlying our project.


PEDIATRICS ◽  
1984 ◽  
Vol 74 (2) ◽  
pp. 306-310 ◽  
Author(s):  

BACKGROUND In recent years a widespread public debate has developed on issues surrounding the care and treatment of critically ill infants. One aspect of this debate concerns the procedures that should be available to ensure that difficult treatment decisions regarding such infants are always made in the most effective manner possible. The American Academy of Pediatrics believes that hospital-based "infant bioethics committees," consisting of both physicians and nonphysicians, can provide consultation and review, ensuring sensitive treatment decisions made in a reasoned, informed, and caring manner. Infant bioethics committees can provide education, develop and recommend institutional policies, and offer consultation to providers and families facing a range of ethical problems or questions about medical treatment of infants. The Academy urges all hospitals to establish such committees either on their own or in conjunction with other hospitals. This document is intended to assist those individuals and institutions who elect to engage in this process. The American Academy of Pediatrics has been involved in discussion of ethical issues surrounding the care and treatment of critically ill infants since 1982. In 1983, the US Department of Health and Human Services published regulations on this issue, establishing federal law enforcement activities which were intrusive into patient care. The Academy successfully challenged that rule in court. Subsequently, the Department of Health and Human Services issued regulations in the Federal Register (effective Feb 13, 1984, but currently in litigation) that, among other things, endorse the concept of infant review committees as suggested in comments that had been submitted by the American Academy of Pediatrics.


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