scholarly journals Children with complex chronic conditions: an evaluation from the standpoint of academic publications

2021 ◽  
Vol 8 (3) ◽  
pp. 594
Author(s):  
Karinne M. Carvalho ◽  
Mariana S. N. De Carvalho ◽  
Rafaela L. Grando ◽  
Livia A. De Menezes

Children with complex chronic conditions (CCC) belong to a distinct pediatric group, characterized by the (potential) manifestation of a wide range of pathologies requires long-term multidisciplinary health care, alongside recurrent hospitalizations and, in many cases, dependent on the use of technology for life maintenance. The need to seek, organize and disseminate bibliographic information on CCC led us to chart the scientific production on this theme, and a complete search of the academic publications was conducted in two scientific databases, the Web of Science and Scopus. The results indicate a significant growth in CCC research over the years, matching both, the increased number of cases and the consequent rise in life expectancy of these children. The scientific production on CCC is concentrated in the United States of America, reflecting and discussing the access to the health system of that country. We observed that the main thematic areas of the publications were related to hospitalization, health needs, coordination of care and oral health. Children have inequitable levels of access to treatment for CCC, according to family income, place of residence, educational level, race/ethnicity, evidencing the urgent need for formulation and implementation of public policies that address this portion of the population. Thus, it is expected that the present study will serve as a bridge guide for the development of potential new research projects, actions to promote and stimulate studies on this relevant theme and so far, neglected.

PEDIATRICS ◽  
2010 ◽  
Vol 126 (4) ◽  
pp. 647-655 ◽  
Author(s):  
T. D. Simon ◽  
J. Berry ◽  
C. Feudtner ◽  
B. L. Stone ◽  
X. Sheng ◽  
...  

JAMA ◽  
2007 ◽  
Vol 297 (24) ◽  
pp. 2725 ◽  
Author(s):  
Chris Feudtner ◽  
James A. Feinstein ◽  
Marlon Satchell ◽  
Huaqing Zhao ◽  
Tammy I. Kang

Author(s):  
William T. Vocke ◽  
Eric J. Miller ◽  
Candi Hudson ◽  
Scott Lundgren ◽  
Robyn N. Conmy ◽  
...  

ABSTRACT This paper describes the evolution of the Interagency Coordinating Committee on Oil Pollution Research (ICCOPR) Oil Pollution Research and Technology Plan (R&T Plan) to address changing oil pollution risks associated with advancements in the energy industry practices. The Oil Pollution Act of 1990 (OPA 90) Title VII required development of an R&T Plan to identify the resources needed for the government research programs. The 1992 R&T Plan and its 1997 revision marked a major advancement in how the United States (U.S.) planned its oil pollution research. The first two plans met the needs of their time but were outdated when the Deepwater Horizon oil spill in 2010 revealed a wide range of new research needed to address the risks associated with advancements in industry practices. ICCOPR responded to the new challenges by revising the Charter and establishing a six-year R&T Plan revision cycle. In September 2015, ICCOPR released the FY 2015–2021 R&T Plan, which established a new baseline plan for current and future planning. This paper describes the structured review process used to analyze more than 900 research needs identified since OPA 90 was enacted. The paper explains the new research classification process that established four Classes, 25 Standing Research Areas (SRAs), and 150 priority research needs in the R&T Plan. ICCOPR is working on the first revision in the new six-year planning cycle to cover the FY2022–2027 timeframe. The paper describes the factors being evaluated to update the list of priority needs. These factors include how well current priorities have been addressed and new or emerging oil pollution risks. An update on the status of addressing the priorities will be presented, including the number of SRAs addressed by ICCOPR agencies and others.


2020 ◽  
Vol 117 (32) ◽  
pp. 19108-19115
Author(s):  
Michelle Jackson ◽  
Brian Holzman

The “income inequality hypothesis” holds that rising income inequality affects the distribution of a wide range of social and economic outcomes. Although it is often alleged that rising income inequality will increase the advantages of the well-off in the competition for college, some researchers have provided descriptive evidence at odds with the income inequality hypothesis. In this paper, we track long-term trends in family income inequalities in college enrollment and completion (“collegiate inequalities”) using all available nationally representative datasets for cohorts born between 1908 and 1995. We show that the trends in collegiate inequalities moved in lockstep with the trend in income inequality over the past century. There is one exception to this general finding: For cohorts at risk for serving in the Vietnam War, collegiate inequalities were high, while income inequality was low. During this period, inequality in college enrollment and completion was significantly higher for men than for women, suggesting a bona fide “Vietnam War” effect. Aside from this singular confounding event, a century of evidence establishes a strong association between income and collegiate inequality, providing support for the view that rising income inequality is fundamentally changing the distribution of life chances.


Author(s):  
Tim Rutherford-Johnson

By the start of the 21st century many of the foundations of postwar culture had disappeared: Europe had been rebuilt and, as the EU, had become one of the world’s largest economies; the United States’ claim to global dominance was threatened; and the postwar social democratic consensus was being replaced by market-led neoliberalism. Most importantly of all, the Cold War was over, and the World Wide Web had been born. Music After The Fall considers contemporary musical composition against this changed backdrop, placing it in the context of globalization, digitization, and new media. Drawing on theories from the other arts, in particular art and architecture, it expands the definition of Western art music to include forms of composition, experimental music, sound art, and crossover work from across the spectrum, inside and beyond the concert hall. Each chapter considers a wide range of composers, performers, works, and institutions are considered critically to build up a broad and rich picture of the new music ecosystem, from North American string quartets to Lebanese improvisers, from South American electroacoustic studios to pianos in the Australian outback. A new approach to the study of contemporary music is developed that relies less on taxonomies of style and technique, and more on the comparison of different responses to common themes, among them permission, fluidity, excess, and loss.


Author(s):  
Kathryn A. Sloan

Popular culture has long conflated Mexico with the macabre. Some persuasive intellectuals argue that Mexicans have a special relationship with death, formed in the crucible of their hybrid Aztec-European heritage. Death is their intimate friend; death is mocked and accepted with irony and fatalistic abandon. The commonplace nature of death desensitizes Mexicans to suffering. Death, simply put, defines Mexico. There must have been historical actors who looked away from human misery, but to essentialize a diverse group of people as possessing a unique death cult delights those who want to see the exotic in Mexico or distinguish that society from its peers. Examining tragic and untimely death—namely self-annihilation—reveals a counter narrative. What could be more chilling than suicide, especially the violent death of the young? What desperation or madness pushed the victim to raise the gun to the temple or slip the noose around the neck? A close examination of a wide range of twentieth-century historical documents proves that Mexicans did not accept death with a cavalier chuckle nor develop a unique death cult, for that matter. Quite the reverse, Mexicans behaved just as their contemporaries did in Austria, France, England, and the United States. They devoted scientific inquiry to the malady and mourned the loss of each life to suicide.


Author(s):  
David Vogel

This book examines the politics of consumer and environmental risk regulation in the United States and Europe over the last five decades, explaining why America and Europe have often regulated a wide range of similar risks differently. It finds that between 1960 and 1990, American health, safety, and environmental regulations were more stringent, risk averse, comprehensive, and innovative than those adopted in Europe. But since around 1990 global regulatory leadership has shifted to Europe. What explains this striking reversal? This book takes an in-depth, comparative look at European and American policies toward a range of consumer and environmental risks, including vehicle air pollution, ozone depletion, climate change, beef and milk hormones, genetically modified agriculture, antibiotics in animal feed, pesticides, cosmetic safety, and hazardous substances in electronic products. The book traces how concerns over such risks—and pressure on political leaders to do something about them—have risen among the European public but declined among Americans. The book explores how policymakers in Europe have grown supportive of more stringent regulations while those in the United States have become sharply polarized along partisan lines. And as European policymakers have grown more willing to regulate risks on precautionary grounds, increasingly skeptical American policymakers have called for higher levels of scientific certainty before imposing additional regulatory controls on business.


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