The Effects of Religious and Cultural Beliefs on Muslim Transplant Candidates During the Pretransplant Waiting Period

Background:Awaiting organ transplantation can be stressful, and pretransplant candidates’ religious and cultural beliefs can influence how they adapt to the stress. While little is known about the effect religious and cultural beliefs have on the pretransplant waiting period, virtually nothing is known regarding whether and how Shia Muslim patients’ religious and cultural beliefs facilitate more positive patient outcomes while they await transplantation. Therefore, it is important for nurses and other health care providers to understand transplant candidates’ experiences dealing with the stressors that present themselves during the pretransplant waiting period, especially how their religious and cultural beliefs affect their adaptation to the stressors.Aim:The purpose of this study was to explore the lived experience of Shia Muslim organ transplant candidates regarding how their religious and cultural beliefs affect their adaptation to the pretransplant waiting period.Sample:A purposeful sample of 11 Shia Muslim organ transplant candidates who were on an organ transplant waiting list in Iran (kidney,n= 4; heart,n= 4; liver,n= 3) was recruited.Method:A qualitative research design using the hermeneutical phenomenological approach was utilized in this study. In-depth unstructured interviews were conducted by one of the authors (ZS) in different locations across Iran.Results:Data analysis led to the development of six themes: “the misty road of organ transplantation,” “to accede to organ transplantation despite religious conflict,” “one step away from death,” “the master key of liberation,” “fear of the unknown,” and “reliance on God.”Nursing Implications:The findings of this study will help nurses understand the religious and cultural meaning associated with stressors experienced by Shia Muslim patients awaiting organ transplant. This information can assist nurses to develop plans of care that include patient-specific interventions that take into consideration the patients’ religious and cultural beliefs.Conclusion:Shia Muslim patients awaiting organ transplantation experience feelings that are often in conflict with their religious and cultural beliefs. However, the patients’ reliance on God during the pretransplant waiting period facilitated healthier attitudes regarding transplantation.

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Dancing With Death in the Dust of Coronavirus: The Lived Experience of Iranian Nurses

Creative Nursing ◽

10.1891/crnr-d-20-00046 ◽

2020 ◽

Vol 26 (4) ◽

pp. e82-e89

Author(s):

Fatemeh Bahramnezhad ◽

Parvaneh Asgari

Keyword(s):

Health Care ◽

Lived Experience ◽

Health Care Providers ◽

Health Care Systems ◽

Phenomenological Approach ◽

Care Providers ◽

Care Systems ◽

Interpretative Phenomenological Approach ◽

Communication Challenges ◽

Novel Coronavirus

The novel coronavirus disease (COVID-19) pandemic as a public health emergency poses dramatic challenges for health-care systems. The experiences of health-care workers are important in planning for future outbreaks of infectious diseases. This study explored the lived experiences of 14 nurses in Tehran, Iran caring for coronavirus patients using an interpretative phenomenological approach as described by Van Manen. In-depth interviews were audio-recorded between March 10 and May 5, 2020. The essence of the nurses' experiences caring for patients with COVID-19 was categorized as three themes and eight subthemes: (a) Strong pressure because of coronavirus: initial fear, loneliness, communication challenges, exhaustion. (b) Turn threats into opportunities: improvement of nursing image, professional development. (c) Nurses' expectations: expectations of people, expectations of government. The findings of this study showed that identifying the challenges and needs of health-care providers is necessary to create a safe health-care system and to prepare nurses and expand their knowledge and attitudes to care for patients in new crises in the future.

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The Adolescent Female's Lived-Experience of Obesity

The Qualitative Report ◽

10.46743/2160-3715/2014.1219 ◽

2014 ◽

Author(s):

Jamie Randall-Arell ◽

Rose Utley

Keyword(s):

Lived Experience ◽

Adolescent Girls ◽

Health Care Providers ◽

Phenomenological Approach ◽

Psychosocial Health ◽

Adolescent Female ◽

Care Providers ◽

Obese Adolescent ◽

Negative Messages ◽

The Impact

For adolescent girls, negative messages about obesity and body image from society, media, school, family, and peers are plentiful. Yet the lived-experience of obese adolescent girls has rarely been reported in scientific literature. The purpose of this study was to explore the lived-experience of the obese adolescent female and understand the impact of the messages received. A descriptive phenomenological approach was used to conduct face-to-face interviews with eight adolescent girls, age 11-18. Participants were recruited through network sampling and had a body mass index of 30 or more. Merleau-Ponty’s philosophy of embodied perception guided interpretation and data analysis. Seven themes describe their lived experience and reflect the internal and external messages perceived including, false assumptions, myth of perfection, nonculpable diversity, nobody’s perfect, beauty is not skin deep, disengagement, and society’s misplaced focus. Awareness of the livedexperience described in these themes, may guide health care providers to formulate a holistic plan of care that will positively impact both the physical and psychosocial health of the adolescent female who is obese.

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The lived experience of people with obesity: study protocol for a systematic review and synthesis of qualitative studies

Systematic Reviews ◽

10.1186/s13643-021-01706-5 ◽

2021 ◽

Vol 10 (1) ◽

Author(s):

Emma Farrell ◽

Marta Bustillo ◽

Carel W. le Roux ◽

Joe Nadglowski ◽

Eva Hollmann ◽

...

Keyword(s):

Systematic Review ◽

Lived Experience ◽

Health Care Providers ◽

Evidence Synthesis ◽

Qualitative Studies ◽

Qualitative Evidence Synthesis ◽

Care Providers ◽

Critical Appraisal Skills ◽

Health Complications

Abstract Background Obesity is a prevalent, complex, progressive and relapsing chronic disease characterised by abnormal or excessive body fat that impairs health and quality of life. It affects more than 650 million adults worldwide and is associated with a range of health complications. Qualitative research plays a key role in understanding patient experiences and the factors that facilitate or hinder the effectiveness of health interventions. This review aims to systematically locate, assess and synthesise qualitative studies in order to develop a more comprehensive understanding of the lived experience of people with obesity. Methods This is a protocol for a qualitative evidence synthesis of the lived experience of people with obesity. A defined search strategy will be employed in conducting a comprehensive literature search of the following databases: PubMed, Embase, PsycInfo, PsycArticles and Dimensions (from 2011 onwards). Qualitative studies focusing on the lived experience of adults with obesity (BMI >30) will be included. Two reviewers will independently screen all citations, abstracts and full-text articles and abstract data. The quality of included studies will be appraised using the critical appraisal skills programme (CASP) criteria. Thematic synthesis will be conducted on all of the included studies. Confidence in the review findings will be assessed using GRADE CERQual. Discussion The findings from this synthesis will be used to inform the EU Innovative Medicines Initiative (IMI)-funded SOPHIA (Stratification of Obesity Phenotypes to Optimize Future Obesity Therapy) study. The objective of SOPHIA is to optimise future obesity treatment and stimulate a new narrative, understanding and vocabulary around obesity as a set of complex and chronic diseases. The findings will also be useful to health care providers and policy makers who seek to understand the experience of those with obesity. Systematic review registration PROSPERO CRD42020214560.

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Cultural Considerations in the Management of Chronic Pain

CAND Journal ◽

10.54434/candj.93 ◽

2021 ◽

Vol 28 (4) ◽

pp. 11-13

Author(s):

Shakila Mohmand ◽

Sumar Chams

Keyword(s):

Health Care ◽

Chronic Pain ◽

Cultural Competency ◽

Patient Outcomes ◽

Health Care Providers ◽

Cultural Beliefs ◽

Coping Mechanisms ◽

Care Providers ◽

Pain Experience ◽

Cultural Considerations

Cultural competency within health care helps eliminate racial and ethnic health disparities. When assessing and treating patients with chronic pain, practitioners should feel confident in using information regarding a patient’s individual cultural beliefs due to their significant impact on the pain experience. Culture impacts perception, outlook, and communication of pain, as well as coping mechanisms. These are aspects of subjective history that influence important decisions regarding the management of chronic pain. Becoming more aware of what to look for and which questions to ask can allow naturopathic doctors and other health-care providers to continue improving therapeutic relationships and patient outcomes.

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Urological Disorders in Men

Journal of Pharmacy Practice ◽

10.1177/0897190010397717 ◽

2011 ◽

Vol 24 (4) ◽

pp. 374-385 ◽

Cited By ~ 7

Author(s):

Susan W. Miller ◽

Mindi S. Miller

Keyword(s):

Minimally Invasive ◽

Health Care Providers ◽

Patient Specific ◽

Treatment Preferences ◽

Measurement Tool ◽

Anticholinergic Drugs ◽

Minimally Invasive Procedures ◽

Care Providers ◽

Invasive Procedures ◽

Symptom Index

Urinary incontinence (UI) and benign prostatic hyperplasia (BPH) are 2 common urogenital problems in men. UI is associated with involuntary leakage of urine and lower urinary tract symptoms (LUTS) of urgency, frequency, and nocturia. Types of UI include functional, urge, stress, and overflow. Treatment for UI is based on the type of incontinence, patient-specific factors, and treatment preferences of both patients and health care providers. Options for the management of UI include environmental modifications, disposable incontinence products, pelvic floor exercises, pharmacotherapy, surgically implanted devices, and intermittent catheterization. BPH may be also associated with LUTS. Patient symptoms, assessed with a measurement tool such as the American Urological Association Symptom Index (AUASI), serve as the basis for determining treatment. Management approaches for BPH include pharmacotherapy, surgery, and minimally invasive procedures. Anticholinergic drugs as well as α-receptor antagonists and 5-α reductase inhibitors, either alone or in combination, are effective and useful for LUTS unresponsive to traditional pharmacotherapy. Transurethral resection of the prostate (TURP) can eliminate symptoms of BPH but is associated with relatively more complications than other available surgical and minimally invasive procedures.

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Managing Sexual Dysfunction For Women With Breast Cancer: The Perspective Of Health Care Providers In North East Malaysia.

10.21203/rs.3.rs-161097/v1 ◽

2021 ◽

Author(s):

Siti Balqis Chanmekun ◽

Maryam Mohd Zulkifli ◽

Rosediani Muhamad ◽

Norhasmah Mohd Zain ◽

Wah Yun Low ◽

...

Keyword(s):

Breast Cancer ◽

Sexual Dysfunction ◽

Sexual Health ◽

Health Care Providers ◽

Thematic Analysis ◽

Healthcare Providers ◽

Phenomenological Approach ◽

Care Providers ◽

North East ◽

East Malaysia

Abstract Purpose: Management of female sexual dysfunction (FSD) is vital for women with breast cancer due to the devastating consequences, which include marital disharmony and reduced quality of life. We explore healthcare providers’ (HCPs) perceptions and experiences in managing FSD for women living with breast cancer using phenomenological approach. Methods: This qualitative study was conducted using a face-to-face interview method to HCPs from two tertiary hospitals in North East Malaysia. The interviews were recorded, transcribed verbatim, and transferred to NVivo ® for data management. The transcriptions were analyzed using thematic analysis. Results: Three key barriers were identified through the thematic analysis: a scarcity of related knowledge; the influence of socio-cultural ideas about sex; and the speciality-centric nature of the healthcare system. Most HCPs interviewed had a very narrow understanding of sexuality, were unfamiliar with the meaning of FSD, and felt their training on sexual health issues to be very limited. They viewed talking about sex to be embarrassing to both parties that is, both to HCPs and patients and was therefore not a priority. They focused more on their specialty hence limited the time to discuss sexual health and FSD with their patients. Conclusion: Therefore, interventions to empower the knowledge, break the sociocultural barriers and improve the clinic settings are crucial for HCPs in managing FSD confidently.

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Muslim transplant recipients’ family experiences following organ transplantation

Journal of Research in Nursing ◽

10.1177/1744987118813671 ◽

2019 ◽

Vol 24 (5) ◽

pp. 291-302

Author(s):

Zahra Sheikhalipour ◽

Vahid Zamanzadeh ◽

Leili Borimnejad ◽

Sarah E Newton ◽

Leila Valizadeh

Keyword(s):

Transplant Recipient ◽

Organ Transplantation ◽

Family Relationships ◽

Organ Transplant ◽

Phenomenological Approach ◽

Transplant Recipients ◽

Structured Interviews ◽

Family Experience ◽

Family Experiences ◽

The Family

Background Despite the importance of family and its relationship to positive transplant outcomes, little is known about family experiences following organ transplantation from the perspective of the transplant recipients. The literature is also devoid of information that describes the family experiences of Muslim transplant recipients. Aims The purpose of this study was to describe Muslim transplant recipients’ family experiences following organ transplantation. Methods A hermeneutical phenomenological approach was employed to determine the emergent themes present in the data. The sample was composed of 12 Muslim organ transplant recipients (heart, kidney and liver) living in Iran. Semi-structured interviews were conducted with each participant. Results The primary constitutive pattern that emerged from the interview data was ‘Altered Family Relationships’ and three themes: fear in relationships, abnormal relationships, and the family at the centre of organ transplant issues. Conclusions There are several important findings in this study, notably that Muslim transplant recipients describe their family experiences following organ transplantation as ‘altered’ and not as they were pre-transplant. More research is needed that focuses on the family experience post-transplant, and how Muslim transplant recipient families are impacted by the transplant experience.

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Sociocultural Influences on African Americans’ Representations of Type 2 Diabetes: A Qualitative Study

Ethnicity & Disease ◽

10.18865/ed.28.1.25 ◽

2018 ◽

Vol 28 (1) ◽

pp. 25 ◽

Cited By ~ 6

Author(s):

Olayinka O. Shiyanbola ◽

Earlise Ward ◽

Carolyn Brown

Keyword(s):

Type 2 Diabetes ◽

African Americans ◽

Racial Discrimination ◽

Health Care Providers ◽

Eating Habits ◽

Cultural Beliefs ◽

Sociocultural Factors ◽

Diabetes Diagnosis ◽

Care Providers

Objective: Illness representations, known as patients’ beliefs and expectations about an illness, may be influenced by cultural beliefs and personal experiences. This study explored African Americans’ perceptions of the sociocultural factors that influence their representations of diabetes.Design: Six semi-structured focus groups.Setting: Private space at a convenient site.Participants: Forty African Americans, aged 45-60 years with type 2 diabetes for at least one year prior.Results: Participants perceived that there was a race-mediated effect of how they developed diabetes because of poverty due to past slavery, racial discrimination by health care providers, and the stigma associated with diabetes within the African American community. Participants perceived that poverty influenced African Americans’ unhealthy eating habits, which led to diabetes diagnosis among their ancestors and their development of the disease since it was hereditary. Participants also perceived that there was provider ill intention, ie, providers were purposefully making people sick, and their lack of education on diabetes from providers was done on purpose, as information on diabetes was withheld and not shared due to racial discrimination. Perceived stigma by the community led to African Americans’ avoidance and denial of the disease, and subsequently the development of diabetes.Conclusions: To enhance disease management for African Americans with diabetes, it is important to focus on the sociocultural context of how African Americans view their world that may be influenced by their knowledge of negative historical circumstances and their current provider relationship, which, in turn, may be reflected in their perceptions of diabetes.Ethn Dis. 2018;28(1):25-32; doi:10.18865/ed.28.1.25.

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Having a Sibling With Schizophrenia: A Phenomenological Study

Research and Theory for Nursing Practice ◽

10.1891/rtnp.20.3.247 ◽

2006 ◽

Vol 20 (3) ◽

pp. 247-264 ◽

Cited By ~ 25

Author(s):

Alexia Barnable ◽

Alice Gaudine ◽

Lorna Bennett ◽

Robert Meadus

Keyword(s):

Health Care ◽

Lived Experience ◽

Health Care Providers ◽

Phenomenological Study ◽

Hermeneutic Phenomenology ◽

Limited Attention ◽

Care Providers ◽

The Impact

Limited attention has been paid to experiences of individuals with siblings diagnosed with schizophrenia. The purpose of this article is to address this gap by exploring the impact of having a brother or sister with schizophrenia. The lived experience of 6 individuals with a sibling with schizophrenia was explored using van Manen’s (1997) Hermeneutic Phenomenology. Four themes were identified: struggling to understand, struggling with the system, caring for the sibling, and seeing beyond the illness. Health care providers need to re-evaluate current approaches for assisting individuals to cope with having a sibling with schizophrenia. Inclusion in the plan of care and recognition of their struggle is essential for individuals having a sibling with schizophrenia.

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