scholarly journals Experience of temporary discharge from the inpatient palliative care unit: A nationwide post-bereavement survey for end-of-life cancer patients

2021 ◽  
Author(s):  
Go Sekimoto ◽  
Sakiko Aso ◽  
Naoko Hayashi ◽  
Keiko Tamura ◽  
Chieko Yamamoto ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Discharge Planning ◽  
Palliative Care Unit ◽  
The Family ◽  
Positive Experiences ◽  
Bereaved Family ◽  
Hospice And Palliative Care ◽  
Care Evaluation

Abstract Background: Some patients admitted to an inpatient palliative care unit (PCU), and who were discharged temporarily to home, later died at the PCU. The experiences of these patients and their families during temporary discharge are unclear.Methods: This study was part of a nationwide post-bereavement survey, the Japan Hospice and Palliative Care Evaluation 3 study. We sent questionnaires to the bereaved relatives of cancer patients who died in a PCU in 2018.Results: Of the 968 questionnaires sent, 571 (59%) were analyzed. Sixteen percent of the patients experienced temporary discharge from the PCU. Seventy-two percent of the bereaved family reported that the patients said, “I am happy to be discharged to home.” Between 22% and 37% of the patients reported an improvement in their condition after discharge. Family caregivers’ recognition of the better quality of the patient’s life at home and hospital doctors’ assurances of re-hospitalization whenever necessary, were significantly associated with positive experiences of temporary discharge.Conclusion: Bereaved family members recognized temporary discharge as a positive experience for both the patient and the family. Appropriate home palliative care and discharge planning contribute to positive experiences after discharge.

Quality of death, rumination, and posttraumatic growth among bereaved family members of cancer patients in home palliative care

2017 ◽  
Vol 26 (12) ◽  
pp. 2168-2174 ◽  
Author(s):  
Kayo Hirooka ◽  
Hiroki Fukahori ◽  
Kanako Taku ◽  
Taisuke Togari ◽  
Asao Ogawa
Keyword(s):  
Palliative Care ◽  
Posttraumatic Growth ◽  
Cancer Patients ◽  
Family Members ◽  
Quality Of Death ◽  
Bereaved Family

Quality of Life and Symptom Burden in Cancer Patients Admitted to An Acute Palliative Care Unit

2010 ◽  
Vol 26 (2) ◽  
pp. 94-102 ◽  
Author(s):  
Jennifer M. Jones ◽  
S. Robin Cohen ◽  
Camilla Zimmermann ◽  
Gary Rodin
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
Symptom Burden ◽  
Palliative Care Unit

J-HOPE study: Evaluation of end-of-life cancer care in Japan from the perspective of bereaved family members

2009 ◽  
Vol 27 (15_suppl) ◽  
pp. 9577-9577
Author(s):  
M. Miyashita ◽  
T. Morita ◽  
K. Sato ◽  
S. Tsuneto ◽  
Y. Shima
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Institutional Review Boards ◽  
Life Care ◽  
Knowledge And Skills ◽  
Bereaved Family ◽  
Care Evaluation

9577 Background: The Japan Hospice and Palliative Care Evaluation (J-HOPE) study was conducted in 2007 and 2008. The aim of the study was to evaluate the quality of end-of-life care at regional cancer centers (CCs), inpatient palliative care units (PCUs), and home hospices (HHs) in Japan from the perspective of bereaved family members. Methods: A nationwide cross-sectional mail survey was conducted in 2007 and 2008. The survey was sent to bereaved families 6–18 months after the death of a patient at 56 CCs, 100 PCUs, or 14 HHs. Outcome measures were the good death inventory, the care evaluation scale, and overall satisfaction with care. The protocol of this study was approved by the institutional review boards of each participating institution. Results: Of the 13,181 bereaved family members that received the survey, 8,163 (62%) participants returned their responses. Among bereaved family members, significantly fewer responded that patients were free from physical distress at CCs (50%) than PCUs (80%) and HHs (73%) (P<0.0001). Significantly fewer patients trusted the physicians at CCs (79%) when compared with PCUs (83%) and HHs (88%) (P<0.0001). Significantly fewer patients were valued as people at CCs (83%) than PCUs (93%) and HHs (95%) (P<0.0001). In addition, significantly fewer participants felt physicians should have worked to improve the patients' symptoms more quickly at CCs (55%) when compared with PCUs (78%) and HHs (77%) (P<0.0001). Significantly fewer participants felt nurse should improve their knowledge and skills regarding end-of-life care at CCs (51%) when compared with PCUs (76%) and HHs (78%) (P<0.0001). A total of 51% of participants reported that nurses should improve their knowledge and skills regarding end-of-life care. Finally, significantly fewer participants were satisfied with the end-of-life care provided by CCs (80%) when compared with PCUs (93%) and HHs (94%) (P<0.0001). Conclusions: Overall, the bereaved family members appreciated the end-of-life care provided by CCs, PCUs, and HHs in Japan. However, in some situations, the quality of end-of-life care provided by CCs was lower than that provided by PCUs and HHs. No significant financial relationships to disclose.

scholarly journals Spanish Validation of the Care Evaluation Scale for Measuring the Quality of Structure and Process of Palliative Care From the Family Perspective

2016 ◽  
Vol 51 (3) ◽  
pp. 609-614.e1 ◽  
Author(s):  
Miguel Angel Benitez-Rosario ◽  
Raquel Caceres-Miranda ◽  
Armando Aguirre-Jaime ◽  
César Labrador ◽  
Lydia Beltrá-Espulgas ◽  
...  
Keyword(s):  
Palliative Care ◽  
Family Perspective ◽  
Spanish Validation ◽  
The Family ◽  
Quality Of Structure ◽  
Care Evaluation

Trends in specialized palliative care for non-cancer patients in Germany —Data from the National Hospice and Palliative Care Evaluation (HOPE)

2014 ◽  
Vol 25 (2) ◽  
pp. 187-192 ◽  
Author(s):  
Stephanie Hess ◽  
Stephanie Stiel ◽  
Sonja Hofmann ◽  
Carsten Klein ◽  
Gabriele Lindena ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Specialized Palliative Care ◽  
Hospice And Palliative Care ◽  
Care Evaluation

A Survey of Bereaved Family Members To Assess Quality of Care on a Palliative Care Unit

2015 ◽  
Vol 18 (4) ◽  
pp. 358-365 ◽  
Author(s):  
Katherine A. Roza ◽  
Eric J. Lee ◽  
Diane E. Meier ◽  
Nathan E. Goldstein
Keyword(s):  
Palliative Care ◽  
Quality Of Care ◽  
Family Members ◽  
Palliative Care Unit ◽  
Assess Quality ◽  
Bereaved Family

scholarly journals Quantification of quality of life improvement after appropriate symptoms control in cancer patients with breakthrough pain: A four-week follow-up study in a palliative care unit

2019 ◽  
Vol 19 (4) ◽  
Author(s):  
Miguel Ángel Núñez Viejo ◽  
Carmen Areses Manrique ◽  
Leticia Iglesias Rey ◽  
Antonio Iglesias Rey ◽  
Antonio Javier Jiménez López ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Cancer Patients ◽  
Breakthrough Pain ◽  
Palliative Care Unit ◽  
Follow Up Study ◽  
Life Improvement

Access to Pediatric Hospice and Palliative Care

2019 ◽  
pp. 800-806
Author(s):  
Lisa C. Lindley ◽  
Jessica Keim-Malpass
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Healthcare Delivery ◽  
Healthcare Services ◽  
Healthcare Delivery System ◽  
The Family ◽  
Utilization Of Healthcare ◽  
Hospice And Palliative Care ◽  
Multidimensional Process

Access to high-quality pediatric hospice and palliative care is becoming increasingly important as the prevalence of children with serious illness grows and the complexity of their health at end of life rises. Pediatric hospice and palliative care is end-of-life care focused on enhancing the quality of end of life for the child and the family, preventing and/or minimizing suffering, optimizing function, and offering opportunities for personal and spiritual growth. Access to care is a multidimensional process proceeding from health policy through the characteristics of the healthcare delivery system to the utilization of healthcare services and quality of care accessed.

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