Quality of death, rumination, and posttraumatic growth among bereaved family members of cancer patients in home palliative care

2017 ◽  
Vol 26 (12) ◽  
pp. 2168-2174 ◽  
Author(s):  
Kayo Hirooka ◽  
Hiroki Fukahori ◽  
Kanako Taku ◽  
Taisuke Togari ◽  
Asao Ogawa
Keyword(s):  
Palliative Care ◽  
Posttraumatic Growth ◽  
Cancer Patients ◽  
Family Members ◽  
Quality Of Death ◽  
Bereaved Family

scholarly journals Palliative care for cancer patients who experience self-perceived burden: suggestions from an qualitative study for bereaved family members

2012 ◽  
Vol 7 (1) ◽  
pp. 142-148
Author(s):  
Kazue Komura ◽  
Tatsuya Morita ◽  
Terukazu Akazawa ◽  
Makiko Sanjo ◽  
Satoru Tsuneto ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Members ◽  
Perceived Burden ◽  
Bereaved Family

Examining Posttraumatic Growth Among Bereaved Family Members of Patients With Cancer Who Received Palliative Care at Home

2017 ◽  
Vol 35 (2) ◽  
pp. 211-217 ◽  
Author(s):  
Kayo Hirooka ◽  
Hiroki Fukahori ◽  
Kanako Taku ◽  
Taisuke Togari ◽  
Asao Ogawa
Keyword(s):  
Palliative Care ◽  
Factor Analysis ◽  
Confirmatory Factor Analysis ◽  
Posttraumatic Growth ◽  
Univariate Analysis ◽  
Family Members ◽  
Patient Death ◽  
Patients With Cancer ◽  
Confirmatory Factor ◽  
Bereaved Family

Objective: The present study examines the factor structure of the Japanese version of the Posttraumatic Growth Inventory (PTGI-J) among bereaved family members who lost loved ones to cancer after home-based palliative care in Japan. It evaluates the relationships between total score, each PTGI-J domain, and participants’ having a religious belief, gender, age, relationship to the patient, and time since patient death. Procedure: Bereaved family members (n = 849) completed the PTGI-J and a demographic questionnaire. The factor structure was tested using confirmatory factor analysis (CFA), and univariate analysis was used to test hypotheses. Results: Confirmatory factor analysis showed that the current sample moderately fitted to both 4-factor and 5-factor models. Univariate analysis revealed that having a religious belief and gender were associated with all domains and total PTGI-J score. Age, time since patient death, and relationship to the patient showed significant differences with the domains of PTGI-J. Conclusion: Clinicians may be able to adjust the support they provide based on patients’ personal characteristics. Future research should look at the mechanisms of PTG by examining the role of rumination, social support, and emotional distress among bereaved family members of patients with cancer.

scholarly journals Experience of temporary discharge from the inpatient palliative care unit: A nationwide post-bereavement survey for end-of-life cancer patients

2021 ◽  
Author(s):  
Go Sekimoto ◽  
Sakiko Aso ◽  
Naoko Hayashi ◽  
Keiko Tamura ◽  
Chieko Yamamoto ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Discharge Planning ◽  
Palliative Care Unit ◽  
The Family ◽  
Positive Experiences ◽  
Bereaved Family ◽  
Hospice And Palliative Care ◽  
Care Evaluation

Abstract Background: Some patients admitted to an inpatient palliative care unit (PCU), and who were discharged temporarily to home, later died at the PCU. The experiences of these patients and their families during temporary discharge are unclear.Methods: This study was part of a nationwide post-bereavement survey, the Japan Hospice and Palliative Care Evaluation 3 study. We sent questionnaires to the bereaved relatives of cancer patients who died in a PCU in 2018.Results: Of the 968 questionnaires sent, 571 (59%) were analyzed. Sixteen percent of the patients experienced temporary discharge from the PCU. Seventy-two percent of the bereaved family reported that the patients said, “I am happy to be discharged to home.” Between 22% and 37% of the patients reported an improvement in their condition after discharge. Family caregivers’ recognition of the better quality of the patient’s life at home and hospital doctors’ assurances of re-hospitalization whenever necessary, were significantly associated with positive experiences of temporary discharge.Conclusion: Bereaved family members recognized temporary discharge as a positive experience for both the patient and the family. Appropriate home palliative care and discharge planning contribute to positive experiences after discharge.

J-HOPE study: Evaluation of end-of-life cancer care in Japan from the perspective of bereaved family members

2009 ◽  
Vol 27 (15_suppl) ◽  
pp. 9577-9577
Author(s):  
M. Miyashita ◽  
T. Morita ◽  
K. Sato ◽  
S. Tsuneto ◽  
Y. Shima
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Family Members ◽  
Institutional Review Boards ◽  
Life Care ◽  
Knowledge And Skills ◽  
Bereaved Family ◽  
Care Evaluation

9577 Background: The Japan Hospice and Palliative Care Evaluation (J-HOPE) study was conducted in 2007 and 2008. The aim of the study was to evaluate the quality of end-of-life care at regional cancer centers (CCs), inpatient palliative care units (PCUs), and home hospices (HHs) in Japan from the perspective of bereaved family members. Methods: A nationwide cross-sectional mail survey was conducted in 2007 and 2008. The survey was sent to bereaved families 6–18 months after the death of a patient at 56 CCs, 100 PCUs, or 14 HHs. Outcome measures were the good death inventory, the care evaluation scale, and overall satisfaction with care. The protocol of this study was approved by the institutional review boards of each participating institution. Results: Of the 13,181 bereaved family members that received the survey, 8,163 (62%) participants returned their responses. Among bereaved family members, significantly fewer responded that patients were free from physical distress at CCs (50%) than PCUs (80%) and HHs (73%) (P<0.0001). Significantly fewer patients trusted the physicians at CCs (79%) when compared with PCUs (83%) and HHs (88%) (P<0.0001). Significantly fewer patients were valued as people at CCs (83%) than PCUs (93%) and HHs (95%) (P<0.0001). In addition, significantly fewer participants felt physicians should have worked to improve the patients' symptoms more quickly at CCs (55%) when compared with PCUs (78%) and HHs (77%) (P<0.0001). Significantly fewer participants felt nurse should improve their knowledge and skills regarding end-of-life care at CCs (51%) when compared with PCUs (76%) and HHs (78%) (P<0.0001). A total of 51% of participants reported that nurses should improve their knowledge and skills regarding end-of-life care. Finally, significantly fewer participants were satisfied with the end-of-life care provided by CCs (80%) when compared with PCUs (93%) and HHs (94%) (P<0.0001). Conclusions: Overall, the bereaved family members appreciated the end-of-life care provided by CCs, PCUs, and HHs in Japan. However, in some situations, the quality of end-of-life care provided by CCs was lower than that provided by PCUs and HHs. No significant financial relationships to disclose.

A Survey of Bereaved Family Members To Assess Quality of Care on a Palliative Care Unit

2015 ◽  
Vol 18 (4) ◽  
pp. 358-365 ◽  
Author(s):  
Katherine A. Roza ◽  
Eric J. Lee ◽  
Diane E. Meier ◽  
Nathan E. Goldstein
Keyword(s):  
Palliative Care ◽  
Quality Of Care ◽  
Family Members ◽  
Palliative Care Unit ◽  
Assess Quality ◽  
Bereaved Family

Measuring the regret of bereaved family members regarding the decision to admit cancer patients to palliative care units

2008 ◽  
Vol 17 (9) ◽  
pp. 926-931 ◽  
Author(s):  
M. Shiozaki ◽  
K. Hirai ◽  
R. Dohke ◽  
T. Morita ◽  
M. Miyashita ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Family Members ◽  
Palliative Care Units ◽  
Bereaved Family

Impact of dementia on quality of death among cancer patients: An observational study of home palliative care users

2020 ◽  
Vol 20 (4) ◽  
pp. 354-359
Author(s):  
Kayo Hirooka ◽  
Miharu Nakanishi ◽  
Hiroki Fukahori ◽  
Atsushi Nishida
Keyword(s):  
Palliative Care ◽  
Observational Study ◽  
Cancer Patients ◽  
Quality Of Death
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