Passive Sensing Data Collection with Adolescent Mothers and Their Infants to Improve Mental Health Services in Low-Resource Settings: A Feasibility and Acceptability Study in Rural Nepal
Abstract Background: Passive sensor data from mobile phones can shed light on daily activities, social behavior, and maternal-child interactions to improve maternal and child health services including mental healthcare. Our Sensing Technologies for Maternal Depression Treatment in Low Resource Settings (StandStrong) study assessed feasibility and acceptability of passive data collection with young mothers, including mothers experiencing postpartum depression, in rural Nepal.Methods: Mothers between 15-25 years of age with infants less than 12 months old were recruited from vaccination clinics in rural Nepal. They were provided with a mobile smartphone and passive Bluetooth beacon to collect data in four domains: the mother’s location using the Global Positioning System (GPS), physical activity using the phone’s accelerometer, auditory environment using episodic audio recording on the phone, and mother-infant proximity measured with Bluetooth beacon attached to the infant’s clothing. Feasibility and acceptability were evaluated based on the amount of passive sensing data collected compared to the total amount that could be collected in a 2-week period. End-line qualitative interviews (n=31) were conducted to understand mothers’ experiences and perceptions of passive data collection.Results: 782 women were approached and 320 met eligibility criteria. 38 mothers (11 depressed, 27 non-depressed) were enrolled. Of 9,602 possible readings per sensor, 57.4% of audio (5,579 recordings), 50.6% of activity (5,001 readings), 41.1% of proximity (4,168 readings), and 35.4% of GPS (3,482 readings) were obtained. The percentage of data collection was comparable for depressed and non-depressed mothers. Qualitative interviews revealed mobile charging, excessive data usage, and burden of carrying mobile phones as feasibility challenges. Concerns for privacy and family involvement were acceptability challenges. Overall, study team engagement and education of family members on technology contributed to mothers’ comfort participating in passive data collection. Conclusion: Approximately half of all possible passive data were collected. Feasibility challenges can be addressed by providing alternative phone charging options, setting up reverse billing for the app, and exploring smartwatches as replacement for mobile phones. Enhancing acceptability will require greater family involvement and improved communication regarding benefits of passive sensing data collection for psychological treatments and other health services. Registration: International Registered Report Identifier (IRRID): DERR1-10.2196/14734