scholarly journals Needs, Experiences, and Views of People With Rheumatic and Musculoskeletal Diseases on Self-Management Mobile Health Apps: Mixed Methods Study

10.2196/14351 ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. e14351
Author(s):  
Aurelie Najm ◽  
Heidi Lempp ◽  
Laure Gossec ◽  
Francis Berenbaum ◽  
Elena Nikiphorou
Keyword(s):  
United States ◽  
Mixed Methods ◽  
Focus Group ◽  
Mobile Health ◽  
Musculoskeletal Diseases ◽  
The United States ◽  
European Countries ◽  
Self Management ◽  
Long Term Conditions ◽  
Mhealth Apps

Background Despite the growing interest and exponential popularity of mobile health (mHealth) apps for long-term conditions such as rheumatic and musculoskeletal diseases (RMDs) and their self-management, patients are rarely directly consulted and involved in the app development process. Objective This study aims to explore the needs, experiences, and views of people diagnosed with RMDs on mHealth apps. Methods The study used a mixed methods approach: (1) an initial qualitative phase via a patient focus group in the UK and (2) a survey disseminated through national organizations for patients with RMDs across European countries, the United States, Canada, and Australia. Results The focus group included six patients with life-long musculoskeletal conditions. Half had used a self-management app at least once. The use of existing apps was reported as time-consuming due to a lack of functionality. The need for bespoke apps was voiced by all participants. Among 424 patients across European countries, the United States, Canada, and Australia, the main age group was 45 to 54 years (122/424, 28.7%), and 86.8% (368/424) were women. Half of the respondents were aware of the existence of apps to support self-management of their RMDs (188/355, 53%), with 42% (79/188) of them currently using such devices. Patients were mostly interested in an app to self-monitor their health parameters (259/346, 74.9%) and disease activity (221/346, 63.9%) or communicate directly with their health care provider (200/346, 57.8%). Conclusions Patients considered that using an app could help them to self-manage their RMD condition if it was tailored to their needs and co-developed with health professionals. The development of such apps will require standardization and regular quality control.

scholarly journals Needs, Experiences, and Views of People With Rheumatic and Musculoskeletal Diseases on Self-Management Mobile Health Apps: Mixed Methods Study (Preprint)

2019 ◽  
Author(s):  
Aurelie Najm ◽  
Heidi Lempp ◽  
Laure Gossec ◽  
Francis Berenbaum ◽  
Elena Nikiphorou
Keyword(s):  
United States ◽  
Mixed Methods ◽  
Focus Group ◽  
Mobile Health ◽  
Musculoskeletal Diseases ◽  
The United States ◽  
European Countries ◽  
Self Management ◽  
Long Term Conditions ◽  
Mhealth Apps

BACKGROUND Despite the growing interest and exponential popularity of mobile health (mHealth) apps for long-term conditions such as rheumatic and musculoskeletal diseases (RMDs) and their self-management, patients are rarely directly consulted and involved in the app development process. OBJECTIVE This study aims to explore the needs, experiences, and views of people diagnosed with RMDs on mHealth apps. METHODS The study used a mixed methods approach: (1) an initial qualitative phase via a patient focus group in the UK and (2) a survey disseminated through national organizations for patients with RMDs across European countries, the United States, Canada, and Australia. RESULTS The focus group included six patients with life-long musculoskeletal conditions. Half had used a self-management app at least once. The use of existing apps was reported as time-consuming due to a lack of functionality. The need for bespoke apps was voiced by all participants. Among 424 patients across European countries, the United States, Canada, and Australia, the main age group was 45 to 54 years (122/424, 28.7%), and 86.8% (368/424) were women. Half of the respondents were aware of the existence of apps to support self-management of their RMDs (188/355, 53%), with 42% (79/188) of them currently using such devices. Patients were mostly interested in an app to self-monitor their health parameters (259/346, 74.9%) and disease activity (221/346, 63.9%) or communicate directly with their health care provider (200/346, 57.8%). CONCLUSIONS Patients considered that using an app could help them to self-manage their RMD condition if it was tailored to their needs and co-developed with health professionals. The development of such apps will require standardization and regular quality control.

scholarly journals The Association of Mobile Health Applications with Self-Management Behaviors among Adults with Chronic Conditions in the United States

2021 ◽  
Vol 18 (19) ◽  
pp. 10351
Author(s):  
Hao Wang ◽  
Amy F. Ho ◽  
R. Constance Wiener ◽  
Usha Sambamoorthi
Keyword(s):  
United States ◽  
Chronic Conditions ◽  
Healthcare Providers ◽  
The United States ◽  
Personal Health Records ◽  
Self Management ◽  
Personal Health ◽  
Health Records ◽  
Mhealth Apps ◽  
Management Behaviors

Background: Mobile applications related to health and wellness (mHealth apps) are widely used to self-manage chronic conditions. However, research on whether mHealth apps facilitate self-management behaviors of individuals with chronic conditions is sparse. We aimed to evaluate the association of mHealth apps with different types of self-management behaviors among patients with chronic diseases in the United States. Methods: This is a cross-sectional observational study. We used data from adult participants (unweighted n = 2340) of the Health Information National Trends Survey in 2018 and 2019. We identified three self-management behaviors: (1) resource utilization using electronic personal health records; (2) treatment discussions with healthcare providers; and (3) making healthcare decisions. We analyzed the association of mHealth apps to self-management behaviors with multivariable logistic and ordinal regressions. Results: Overall, 59.8% of adults (unweighted number = 1327) used mHealth apps. Adults using mHealth apps were more likely to use personal health records (AOR = 3.11, 95% CI 2.26–4.28), contact healthcare providers using technology (AOR = 2.70, 95% CI 1.93–3.78), and make decisions on chronic disease management (AOR = 2.59, 95% CI 1.93–3.49). The mHealth apps were associated with higher levels of self-management involvement (AOR = 3.53, 95% CI 2.63–4.72). Conclusion: Among individuals with chronic conditions, having mHealth apps was associated with positive self-management behaviors.

scholarly journals Perspectives on Heavy Metal Soil Testing Among Community Gardeners in the United States: A Mixed Methods Approach

2019 ◽  
Vol 16 (13) ◽  
pp. 2350 ◽  
Author(s):  
Candis M. Hunter ◽  
Dana H. Z. Williamson ◽  
Matthew O. Gribble ◽  
Halle Bradshaw ◽  
Melanie Pearson ◽  
...  
Keyword(s):  
United States ◽  
Heavy Metal ◽  
Mixed Methods ◽  
Focus Group ◽  
Risk Mitigation ◽  
Community Gardens ◽  
The United States ◽  
Soil Testing ◽  
Community Garden ◽  
Perceived Behavioral Control

Community gardens offer numerous benefits, but there are also potential risks from exposure to chemical contaminants in the soil. Through the lens of the Theory of Planned Behavior, this mixed methods study examined community gardeners’ beliefs and intentions to conduct heavy metal soil testing. The qualitative component involved five focus groups of community garden leaders in Atlanta, Georgia. Qualitative analysis of the focus group data revealed that heavy metal soil contamination was not frequently identified as a common gardening hazard and several barriers limited soil testing in community gardens. The focus group results informed the development of a questionnaire that was administered to 500 community gardeners across the United States. Logistic regression analysis revealed that the soil testing intention was associated with attitude (aOR = 2.46, 95% CI: 1.34, 4.53), subjective norms (aOR = 3.39 95% CI: 2.07, 5.57), and perceived behavioral control (aOR = 1.81, 95% CI: 1.10, 2.99). Study findings have implications for interventions involving community garden risk mitigation, particularly gardens that engage children and vulnerable populations.

scholarly journals Mobile Health Apps for Self-Management of Rheumatic and Musculoskeletal Diseases: Systematic Literature Review (Preprint)

2019 ◽  
Author(s):  
Aurélie Najm ◽  
Laure Gossec ◽  
Catherine Weill ◽  
David Benoist ◽  
Francis Berenbaum ◽  
...  
Keyword(s):  
Mobile Health ◽  
Development Process ◽  
Musculoskeletal Diseases ◽  
Self Management ◽  
Health Apps ◽  
Moderate Quality ◽  
Mobile Health Apps ◽  
Willingness To Use ◽  
Development Methods ◽  
Mhealth Apps

BACKGROUND Although the increasing availability of mobile health (mHealth) apps may enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health, there is a general lack of evidence on ways to ensure appropriate development and evaluation of apps. OBJECTIVE This study aimed to obtain an overview on existing mHealth apps for self-management in patients with RMDs, focusing on content and development methods. METHODS A search was performed up to December 2017 across 5 databases. For each publication relevant to an app for RMDs, information on the disease, purpose, content, and development strategies was extracted and qualitatively assessed. RESULTS Of 562 abstracts, 32 were included in the analysis. Of these 32 abstracts, 11 (34%) referred to an app linked to a connected device. Most of the apps targeted rheumatoid arthritis (11/32, 34%). The top three aspects addressed by the apps were pain (23/32, 71%), fatigue (15/32, 47%), and physical activity (15/32, 47%). The development process of the apps was described in 84% (27/32) of the articles and was of low to moderate quality in most of the cases. Despite most of the articles having been published within the past two years, only 5 apps were still commercially available at the time of our search. Moreover, only very few studies showed improvement of RMD outcome measures. CONCLUSIONS The development process of most apps was of low or moderate quality in many studies. Owing to the increasing RMD patients’ willingness to use mHealth apps for self-management, optimal standards and quality assurance of new apps are mandatory.

scholarly journals Mobile Health Apps for Self-Management of Rheumatic and Musculoskeletal Diseases: Systematic Literature Review

10.2196/14730 ◽  
2019 ◽  
Vol 7 (11) ◽  
pp. e14730 ◽  
Author(s):  
Aurélie Najm ◽  
Laure Gossec ◽  
Catherine Weill ◽  
David Benoist ◽  
Francis Berenbaum ◽  
...  
Keyword(s):  
Mobile Health ◽  
Development Process ◽  
Musculoskeletal Diseases ◽  
Self Management ◽  
Health Apps ◽  
Moderate Quality ◽  
Mobile Health Apps ◽  
Willingness To Use ◽  
Development Methods ◽  
Mhealth Apps

Background Although the increasing availability of mobile health (mHealth) apps may enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health, there is a general lack of evidence on ways to ensure appropriate development and evaluation of apps. Objective This study aimed to obtain an overview on existing mHealth apps for self-management in patients with RMDs, focusing on content and development methods. Methods A search was performed up to December 2017 across 5 databases. For each publication relevant to an app for RMDs, information on the disease, purpose, content, and development strategies was extracted and qualitatively assessed. Results Of 562 abstracts, 32 were included in the analysis. Of these 32 abstracts, 11 (34%) referred to an app linked to a connected device. Most of the apps targeted rheumatoid arthritis (11/32, 34%). The top three aspects addressed by the apps were pain (23/32, 71%), fatigue (15/32, 47%), and physical activity (15/32, 47%). The development process of the apps was described in 84% (27/32) of the articles and was of low to moderate quality in most of the cases. Despite most of the articles having been published within the past two years, only 5 apps were still commercially available at the time of our search. Moreover, only very few studies showed improvement of RMD outcome measures. Conclusions The development process of most apps was of low or moderate quality in many studies. Owing to the increasing RMD patients’ willingness to use mHealth apps for self-management, optimal standards and quality assurance of new apps are mandatory.

scholarly journals The ‘Psychic Space’ of Queensland in the Work of Janette Turner Hospital

2004 ◽  
Vol 11 (2) ◽  
pp. 11-23 ◽  
Author(s):  
Sue Lovell
Keyword(s):  
United States ◽  
Adult Children ◽  
The United States ◽  
European Countries ◽  
Family Ties

In January 1967 Janette Turner Hospital left Queensland for Boston. She was unpublished. 25 years of age, and very much the product of a loving but fundamentalist childhood that she understood as the ‘source of all comfort and security, but also the source of all harm’. She has called America. India. Canada and France ‘home’ and has also frequently taught in other European countries. Although she has two adult children who have made their lives in the United States and Canada, her parents and three younger brothers remain in Brisbane, so she returns regularly to sustain family ties.

Evaluation of Health Care Technologies in the United States Compared to Canada and European Countries

1999 ◽  
Vol 20 (2) ◽  
pp. 168 ◽  
Author(s):  
Seymour Perry ◽  
Mae Thamer
Keyword(s):  
United States ◽  
Health Care ◽  
The United States ◽  
European Countries ◽  
Health Care Technologies

scholarly journals Women's considerations and experiences for breast cancer screening and surveillance during the COVID-19 pandemic in the United States: A focus group study

2021 ◽  
Vol 151 ◽  
pp. 106542
Author(s):  
Karen E. Schifferdecker ◽  
Danielle Vaclavik ◽  
Karen J. Wernli ◽  
Diana S.M. Buist ◽  
Karla Kerlikowske ◽  
...  
Keyword(s):  
Breast Cancer ◽  
United States ◽  
Cancer Screening ◽  
Focus Group ◽  
Breast Cancer Screening ◽  
The United States ◽  
Focus Group Study ◽  
Screening And Surveillance

scholarly journals Dissemination of Chronic Disease Self-Management Education (CDSME) Programs in the United States: Intervention Delivery by Rurality

2017 ◽  
Vol 14 (6) ◽  
pp. 638 ◽  
Author(s):  
Matthew Smith ◽  
Samuel Towne ◽  
Angelica Herrera-Venson ◽  
Kathleen Cameron ◽  
Kristie Kulinski ◽  
...  
Keyword(s):  
United States ◽  
Chronic Disease ◽  
Management Education ◽  
The United States ◽  
Self Management ◽  
Intervention Delivery ◽  
United States Intervention
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