User Experience and Acceptance of Patients and Healthy Adults testing a personalized self-management app against depression: A non-randomized Mixed-Methods Feasibility Study (Preprint)

2021 ◽  
Author(s):  
Gwendolyn Mayer ◽  
Svenja Hummel ◽  
Neele Oetjen ◽  
Nadine Gronewold ◽  
Stefan Bubolz ◽  
...  
Keyword(s):  
User Experience ◽  
Specific Treatment ◽  
Feasibility Studies ◽  
Perceived Quality ◽  
Healthy Adults ◽  
Self Management ◽  
Technological Advances ◽  
Positive Treatment ◽  
Total Program

BACKGROUND The development of e-mental health applications for patients with depression has shown technological advances to a certain extent. Many feasibility studies reveal the acceptance of patients and evidence for positive treatment outcomes. However, few studies ask for the user experience regarding the personalized help of specific treatment components in self-management apps. OBJECTIVE The aim of the present study is to ask for the user experience and acceptance of patients with depression and healthy adults, who tested the app SELFPASS. The results serve as a source for evidence-based recommendations for developers and clinicians regarding the graphical and conceptual design of a self-management app for patients with depression with and without anxiety symptoms. METHODS The sample consisted of N=110 participants, of which 41 (37.3%) were adult patients and 69 (62.7%) healthy adults. They tested the app SELFPASS over a period of 5 days and filled out a self-developed evaluation questionnaire. Quantitative measures asked with 5-point Likert scaled items (range: -2 to +2) for the perceived quality of the program and its components, its practicality (both referred to as user experience), and its acceptance. Student t tests and Pearson correlations were calculated for comparisons of groups and associations between the measures. Open text fields were analyzed by applying a qualitative structuring content analysis regarding suggestions for usability, therapeutic content and personalization. RESULTS The perceived quality of the total program (PQTP) was rated with M=0.96 (SD=0.82), the practicality (P) was M=0.84 (SD=0.08), and the acceptance (A) was M=0.25 (SD=1.04). Patients rated PQTP and A higher than healthy adults, while there was no difference in P. Acceptance was associated with increased depression scores (r=.33, P=.01), higher scores of PQTP (r=0.48, P<.001) and of P (r=0.45, P<.001). Feedback of both groups regarding the usability, the therapeutic content and personalization revealed a strong wish for guidance and insights into mood progress, opportunities for choice of interventions and features of customization for an individualized treatment. CONCLUSIONS Patients with depression accepted the app SELFPASS more than healthy adults and gave higher ratings in quality. User experience of all users reveals a strong need for features of guidance, choice and personalization, that clinicians and developers of future apps should pay special attention to. CLINICALTRIAL Trial Registration: DRKS (DRKS00015614).

scholarly journals P120 Developing “My quality of life” programme based on ICHOM Standard Set for IBD: 1-year results

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S211-S213
Author(s):  
I Roa ◽  
O Merino ◽  
L Gómez Irwin ◽  
M Arosa ◽  
J M García González ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
User Experience ◽  
Design Thinking ◽  
Care Delivery ◽  
Perceived Quality ◽  
Unknown Etiology ◽  
Healthy Population ◽  
Perceived Quality Of Life

Abstract Background Inflammatory bowel diseases (IBD) are chronic relapsing diseases of unknown etiology, usually beginning at a young age. Although life expectancy of IBD patients is near to the mean of healthy population, IBD has a significantly negative impact on patients’ quality of life. Recent research has evidenced that a poorer quality of life can contribute to relapse or worsening of IBD symptoms, reduce treatment adherence and lead to poorer outcomes. The Ezkerraldea-Enkarterri-Cruces Healthcare Organization in Spain has made a firm commitment to adopt the Value-Based Health Care (VBHC) model, which advocates for the incorporation of patient-perceived quality of life variables to the items we normally assess. The IBD Unit, in pursuit of adhering to the VBHC corporate programme, has launched on a process to analyze our health care delivery system and improve the effectiveness of our Performance Improvement Plan based on patients’ experience. Objectives: - To identify and systemize the incorporation of perceived quality of life variables - To reorient medical care towards what really matters to patients Methods We have built a multi-disciplinary team comprised of healthcare professionals involved in IBD management (Figure 1). Patients form the core of the team’s meetings, helping in the development of User Experience (Figure 2) and Empathy Maps (Figure 3) by using Design Thinking strategies. After the detection of the obstacles faced by patients, we outlined a Process Map (Figure 4), where we critically analyzed the route followed by patients in our health-care system before reaching the IBD Unit. Subsequently, a specific route was outlined considering the set proposed for the disease by the ICHOM consortium as a reference framework. Questionnaires and surveys were designed using patient information across different areas of care, in order to guarantee the correct functioning of the route. Results We obtained a list of 14 improvement proposals which are currently at different levels of evaluation. In our first year, we have been able to implement important modifications which include: - A specific remote consultation for IBD patients - Fast track pathways - Nutritional guidelines to assure compliance - Shortening waiting lists - Reduction in patient bureaucracy and paperwork - Virtual monitorization of patients with asymptomatic disease Conclusion - VHBC implementation implies a transformation of the organization - User Experience tools add a different perspective to the route design, focusing on what really matters to patients and improving their quality of life - This change of perspective is important, especially in chronic diseases, so that patients feel less lonely with their disease and better outcomes can be obtained

Knowledge, Attitude, and Self-Efficacy in Asthma Self-Management and Quality of Life

2010 ◽  
pp. 1-6
Author(s):  
Carol A. Mancuso ◽  
Wendy Sayles ◽  
John P. Allegrante
Keyword(s):  
Quality Of Life ◽  
Self Efficacy ◽  
Self Management
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