scholarly journals PSYCHOSOCIAL SUPPORT SERVICES FOR PATIENTS WITH CANCER AND THEIR FAMILIES: PROBLEMS, CHALLENGES AND OPPORTUNITIES

2020 ◽  
Vol 8 (3 (30)) ◽  
pp. 283-290
Author(s):  
L.G. Walker ◽  
2006 ◽  
Vol 29 (4) ◽  
pp. 309-316 ◽  
Author(s):  
Mari Botti ◽  
Ruth Endacott ◽  
Rosemary Watts ◽  
Julie Cairns ◽  
Katrina Lewis ◽  
...  

2018 ◽  
Vol 26 (2) ◽  
pp. 235-241 ◽  
Author(s):  
Robin S. Everhart ◽  
Stephen J. Molitor ◽  
Dena Wentz ◽  
H. Joel Schmidt ◽  
Michael S. Schechter

2020 ◽  
Vol 18 (4) ◽  
pp. 400-404
Author(s):  
Terrell Johnson ◽  
Lindsey A.M. Bandini ◽  
Kara Martin ◽  
Lee Jones ◽  
Jennifer Carlson ◽  
...  

Health policy in America has shifted rapidly over the last decade, and states are increasingly exercising greater authority over health policy decision-making. This localization and regionalization of healthcare policy poses significant challenges for patients with cancer, providers, advocates, and policymakers. To identify the challenges and opportunities that lay ahead of stakeholders, NCCN hosted the 2019 Policy Summit: The State of Cancer Care in America on June 27, 2019, in Washington, DC. The summit featured multidisciplinary panel discussions to explore the implications for access to quality cancer care within a shifting health policy landscape from a patient, provider, and lawmaker perspective. This article encapsulates the discussion from this NCCN Policy Summit.


Author(s):  
Henna Haravuori ◽  
Kristiina Junttila ◽  
Toni Haapa ◽  
Katinka Tuisku ◽  
Anne Kujala ◽  
...  

In March 2020, strict measures took place in Finland to limit the COVID-19 pandemic. Majority of Finnish COVID-19 patients have been located in southern Finland and consequently cared for at the Hospital District of Helsinki and Uusimaa (HUS) Helsinki University Hospital. During the pandemic, HUS personnel’s psychological symptoms are followed via an electronic survey, which also delivers information on psychosocial support services. In June 2020, the baseline survey was sent to 25,494 HUS employees, 4804 (19%) of whom answered; altogether, 62.4% of the respondents were nursing staff and 8.9% were medical doctors. While the follow-up continues for a year and a half, this report shares the sociodemographic characteristics of the respondents and the first results of psychological symptoms from our baseline survey. Out of those who were directly involved in the pandemic patient care, 43.4% reported potentially traumatic COVID-19 pandemic-related events (PTEs) vs. 21.8% among the others (p < 0.001). While over a half of the personnel were asymptomatic, a group of respondents reported PTEs and concurrent depression, insomnia, and anxiety symptoms. This highlights the need to ensure appropriate psychosocial support services to all traumatized personnel; especially, nursing staff may require attention.


2000 ◽  
Vol 18 (15) ◽  
pp. 2902-2907 ◽  
Author(s):  
Elizabeth A. Barnes ◽  
John Hanson ◽  
Catherine M. Neumann ◽  
Cheryl L. Nekolaichuk ◽  
Eduardo Bruera

PURPOSE: The purpose of this study was to assess the satisfaction and information needs of primary care physicians (PCPs) regarding communication with radiation oncologists (ROs), with respect to patients who receive palliative radiotherapy (RT). A selected objective was to evaluate the agreement between PCPs’ expectations and the content of the RO letter sent after completion of RT. PCPs’ knowledge of the role of palliative RT and their awareness of available patient support services were also determined. METHODS: The PCPs of patients discharged from the Cross Cancer Institute after receiving palliative RT were surveyed using a mail-out questionnaire. Questions regarding communication, RT knowledge, and awareness of support services were asked. The corresponding RO letter was reviewed. RESULTS: A total of 148 PCPs were identified and were mailed questionnaires, with 114 (77%) responding. Overall, 80% (87 of 109) of PCPs found the RO letter to be useful in patient management. However, there was poor (< 53%) agreement between PCPs’ expectations and the actual content of the RO letter. Knowledge of the indications and effectiveness of palliative RT was limited, with PCPs obtaining a median score of 4 of a possible 8. Only 27% (31 of 114) of PCPs were aware of all five of the patient support services listed. CONCLUSION: Results show that although the majority of PCPs found the RO letter useful, they believed that the letter lacked important information while containing unnecessary details. Communication between PCPs and ROs needs improvement, especially considering that PCPs seem to have limited knowledge of palliative RT.


PLoS ONE ◽  
2021 ◽  
Vol 16 (9) ◽  
pp. e0256454
Author(s):  
Jo Billings ◽  
Nada Abou Seif ◽  
Siobhan Hegarty ◽  
Tamara Ondruskova ◽  
Emilia Soulios ◽  
...  

Background The COVID-19 pandemic has placed a significant burden on the mental health and wellbeing of frontline health and social care workers. The need to support frontline staff has been recognised. However, there is to date little research specifically on how best to support the mental health needs of frontline workers, and none on their own experiences and views about what might be most helpful. Aims We set out to redress this research gap by qualitatively exploring UK frontline health and social care workers’ own experiences and views of psychosocial support during the pandemic. Method Frontline health and social care workers were recruited purposively through social media and by snowball sampling via healthcare colleagues. Workers who volunteered to take part in the study were interviewed remotely following a semi-structured interview guide. Transcripts of the interviews were analysed by the research team following the principles of Reflexive Thematic Analysis. Results We conducted 25 interviews with frontline workers from a variety of professional groups working in health and social care settings across the UK. Themes derived from our analysis showed that workers’ experiences and views about psychosocial support were complex. Peer support was many workers’ first line of support but could also be experienced as a burden. Workers were ambivalent about support shown by organisations, media and the public. Whilst workers valued psychological support services, there were many disparities in provision and barriers to access. Conclusions The results of this study show that frontline health and social care workers are likely to need a flexible system of support including peer, organisational and professional support. More research is needed to fully unpack the structural, systemic and individual barriers to accessing psychosocial support. Greater collaboration, consultation and co-production of support services and their evaluation is warranted.


2000 ◽  
Vol 23 (4) ◽  
pp. 310-313 ◽  
Author(s):  
Judith Johnson

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