A global measure of child health-related quality of life: reliability and validity of the Child Health and Illness Profile - Child Edition (CHIP-CE) global score

2007 ◽  
Vol 10 (2) ◽  
pp. 91-106 ◽  
Author(s):  
Anne W Riley ◽  
Kitty S Chan ◽  
Suyash Prasad ◽  
Lynne Poole
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Reliability And Validity ◽  
Global Score ◽  
Health Related Quality ◽  
Global Measure ◽  
Health And Illness ◽  
Related Quality ◽  
Health Related

Health Related Quality of Life in Adolescents With Abnormal Bladder Function: An Assessment Using the Child Health and Illness Profile-Adolescent Edition

2008 ◽  
Vol 180 (4S) ◽  
pp. 1846-1851 ◽  
Author(s):  
Jennifer L. Dodson ◽  
Susan L. Furth ◽  
Chun-Ju Hsiao ◽  
Marie Diener-West ◽  
Eric B. Levey ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Bladder Function ◽  
Health Related Quality ◽  
Health And Illness ◽  
Related Quality ◽  
Health Related

scholarly journals P139 What impact does JIA have on health-related quality of life over time and by gender?

Rheumatology ◽  
2020 ◽  
Vol 59 (Supplement_2) ◽  
Author(s):  
Andrew Smith ◽  
Bishma Saqib ◽  
Rebecca Lee ◽  
Wendy Thomson ◽  
Lis Cordingley
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Child Health ◽  
Reference Population ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Over Time ◽  
Domain Scores

Abstract Background Juvenile idiopathic arthritis (JIA) is a heterogeneous group of arthritic conditions presenting in children and young people, in which physical limitations and associated complications can have detrimental effects on physical and psychosocial wellbeing. This study aims to investigate the impact of living with JIA on different aspects of health-related quality of life (HRQoL) and to explore how this changes over time, using data from the Childhood Arthritis Prospective Study (CAPS). Methods Longitudinal data collected as part of CAPS were analysed. HRQoL was assessed at baseline, 1 year and 3 years’ post-diagnosis using the Child Health Questionnaire (CHQ), a parent-completed form for children from 5 years of age. The CHQ measures physical, emotional and social components of child health status. Raw domain scores were transformed via algorithm into values ranging from 0-100, with higher scores indicating better health status. Mean (standard deviation) and median (interquartile range) for each domain were determined, both for the full cohort and by gender. Differences between median scores at baseline and 3 years were assessed using the Wilcoxon signed-rank test. Mean scores of each domain were visually compared with a reference population sample of healthy children from the United States. Results 184 participants completed the questionnaire at all 3 time points. At baseline, compared to the reference population, children with JIA scored lower in every domain although scores were closer between the 2 groups at 3 years. Median scores improved over time, the exception being the general health perceptions domain which decreased after baseline. Domains with the greatest improvement were physical functioning,“bodily pain and social-physical. The largest changes occurred from baseline to 1 year. Statistically significant differences between baseline and 3-year scores were found for all domains. Domain scores for male and female participants were very similar at baseline, though scores for male participants indicated slightly better health at 1 and 3 years for both physical and psychosocial domains. Conclusion JIA has significant impact on HRQoL, which improves within 3 years of diagnosis with the greatest improvement occurring within the first year. Physical health domains show greater improvement over time than psychosocial domains, although psychosocial scores were generally higher throughout the study. Male participants tend to score slightly higher than female participants in both physical and psychosocial domains after baseline. Further research should explore measurable patient, age or disease-related drivers of HRQoL. Disclosures A. Smith None. B. Saqib None. R. Lee None. W. Thomson None. L. Cordingley None.

scholarly journals Assessing the Health-Related Quality of Life of Australian Adolescents: An Empirical Comparison of the Child Health Utility 9D and EQ-5D-Y Instruments

2015 ◽  
Vol 18 (4) ◽  
pp. 432-438 ◽  
Author(s):  
Gang Chen ◽  
Terry Flynn ◽  
Katherine Stevens ◽  
John Brazier ◽  
Elisabeth Huynh ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Health Utility ◽  
Health Related Quality ◽  
Empirical Comparison ◽  
Related Quality ◽  
Health Related
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