scholarly journals Global Perspective on Telemedicine for Parkinson’s Disease

2021 ◽  
pp. 1-8
Author(s):  
Ali Shalash ◽  
Meredith Spindler ◽  
Esther Cubo

Telemedicine programs are particularly suited to evaluating patients with Parkinson’s disease (PD) and other movement disorders, primarily because much of the physical exam findings are visual. Telemedicine uses information and communication technologist to overcome geographical barriers and increase access to healthcare services, and it is particularly beneficial for rural and underserved communities, groups that traditionally suffer from lack of access to healthcare. There is a growing evidence of the feasibility of telemedicine, cost and time savings, patients’ and physicians’ satisfaction, and its outcome and impact on patients’ morbidity and quality of life. In addition, given the unusual current situation with the COVID-19 pandemic, telemedicine has offered the opportunity to address the ongoing healthcare needs of patients with PD, to reduce in-person clinic visits, and human exposures (among healthcare workers and patients) to a range of infectious diseases including COVID-19. However, there are still several challenges to widespread implementation of telemedicine including the limited performance of parts of the neurological exam, limited technological savvy, fear of loss of a personal connection, or uneasiness about communicating sensitive information. On the other hand, while we are facing the new wave of COVID-19 pandemic, patients and clinicians are gaining increasing experience with telemedicine, facilitating equity of access to specialized multidisciplinary care for PD. This article summarizes and reviews the current state and future directions of telemedicine from a global perspective.

2021 ◽  
pp. 1-17
Author(s):  
Muhammed Shahriar Zaman ◽  
Setareh Ghahari ◽  
Mary Ann McColl

Parkinson’s disease is a complex condition that affects many different aspects of a person’s health. Because of its complexity, people with Parkinson’s disease require access to a variety of healthcare services. The aim of the present study was to identify the barriers to access healthcare services for people with Parkinson’s disease. We conducted a scoping review according to guidelines posed by Arksey & O’Malley (2005). A search of MEDLINE, Embase, EINHAL, and PsycINFO databases was conducted, and 38 articles were selected based on the inclusion criteria. The review findings identified person-level and system-level barriers. The person-level barriers included skills required to seek healthcare services, ability to engage in healthcare and cost for services. The system-level barriers included the availability of appropriate healthcare resources. Based on the existing barriers elucidated in the scope review, we have discussed potential areas in healthcare that require improvement for people with Parkinson’s disease to manage their healthcare needs more equitably.


2011 ◽  
Vol 87 (1031) ◽  
pp. 575-578 ◽  
Author(s):  
B. Post ◽  
M. van der Eijk ◽  
M. Munneke ◽  
B. R. Bloem

2013 ◽  
Vol 12 (10) ◽  
pp. 947-956 ◽  
Author(s):  
Marjolein A van der Marck ◽  
Marten Munneke ◽  
Wim Mulleners ◽  
Edo M Hoogerwaard ◽  
George F Borm ◽  
...  

2020 ◽  
Author(s):  
Hui Zhang ◽  
Fanwen Meng ◽  
Xingyu Li ◽  
Yali Ning ◽  
Meng Cai

Abstract Background: Nocturnal symptoms in Parkinson’s disease and their related burdens on patients are often treated after management of daytime manifestations. In order to better understand the unmet needs of nocturnal symptoms management, we sought to analyze the characteristics of nocturnal symptoms and their associated burden from patients’ perspectives in 2016 to 2018 and explore whether there were any changes in participants' needs over time across 3 years. Overall symptoms (occurring at day or night) were collected to contrast and compare whether the unmet healthcare needs related to nocturnal symptoms and to overall symptoms are different.Methods: We used a contemporary Social Listening big-data technique to analyze large amounts of Parkinson’s disease symptoms in patient-doctor and patient-patient dialogues available from social media platforms in 2016 to 2018 in China. These symptoms were classified as either overall symptoms or nocturnal symptoms. We used share of voice (SOV) of symptoms as a proportion of total dialogues per year to reflect the characteristics of symptoms from patients’ perspectives. Negative sentiment score of symptoms was analyzed to find out their related burden on patients. Results: We found that SOV for overall motor symptoms was 79% and had not increased between 2016 and 2018 (79%, p = 0.5), but SOV for non-motor symptoms (69% in 2018) had grown by 7% in 2018 (p < 0.01). SOV for motor complications was 9%, and had increased by 6% (p < 0.01) by 2018. The SOV of motor symptoms was significantly larger than non-motor symptoms and motor complications (p < 0.01) in each year. The SOV of non-motor symptoms was larger than that of motor complication (p < 0.01). For nocturnal symptoms, 45% of the analyzed PD population reported nocturnal symptoms in 2018, growing by 6% from 2016 (p < 0.01). SOV for nocturnal-occurring motor symptoms was higher than most non-motor symptoms (except insomnia). However, non-motor symptoms had the higher increases in SOV. Non-motor symptoms evoked higher negative sentiment regardless of whether they occurred during the day or night. For symptoms that can occur at either day or night, each nocturnal symptom was rated with a higher negative sentiment score than the same symptom during the day, regardless of the type of symptom.Conclusions: The growing share of voice and the greater negative sentiment of nocturnal symptoms from patients’ perspectives suggest that management of nocturnal symptoms is an unmet need of patients with Parkinson’s disease. A greater emphasis on detecting nocturnal symptoms and treating them with 24-hour care is encouraged.


2020 ◽  
Vol 20 (6) ◽  
pp. 539-549 ◽  
Author(s):  
Sarah C. Lidstone ◽  
Mark Bayley ◽  
Anthony E. Lang

2020 ◽  
Vol 5 (5) ◽  
pp. 1290-1296
Author(s):  
Gemma Moya-Galé ◽  
Amerigo Rossi ◽  
Rebecca A. States

Purpose Parkinson's disease (PD) is a multifaceted condition characterized by motor and nonmotor symptoms that greatly reduce individuals' quality of life. Although treatment models in speech therapy have traditionally focused on a monodisciplinary approach, benefits from allied health care have been reported for over a decade. The purpose of this clinical focus article is to describe the multidisciplinary program developed at Long Island University Brooklyn to address the needs of individuals with PD in an inclusive and diverse setting. Conclusions This clinical focus article reviews the importance of multidisciplinary care models in the management of PD and highlights the efforts of our program in building a community-wide range of services to enhance exercise, social participation, and, above all, quality of life in our patients. Future directions of the program are also discussed.


2009 ◽  
Vol 15 ◽  
pp. S219-S223 ◽  
Author(s):  
M.A. van der Marck ◽  
J.G. Kalf ◽  
I.H.W.M. Sturkenboom ◽  
M.J. Nijkrake ◽  
M. Munneke ◽  
...  

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