Pediatric Cancer Care Network

PURPOSE: Although the hospital remains the dominant site for delivering most pediatric cancer care, home-based care is increasingly provided. To effectively deliver comprehensive, relevant, and acceptable care in children's homes, the voices of these key informants must be considered. We examined the views of children with cancer, their family caregivers, and clinicians on home-based cancer care to identify necessary strategies to improve the delivery of care. METHODS: Children with cancer, their family caregivers, and multiprofessional clinicians who provide care at a tertiary pediatric care center or in the community participated in audio-recorded, semistructured interviews in French and English. Interviews were conducted until data saturation in each participant group was achieved. Interviews were transcribed, coded, and analyzed using thematic analysis. RESULTS: Thirteen children, 20 family caregivers, and 22 clinicians participated. Home-based care was endorsed as a means to improve child health-, family social- and financial-, and system-level outcomes. The success of a home-based model is built on care that addresses child and family informational, treatment and care, material, and psychosocial needs. Mechanisms to improve care include enhanced homecare agency-hospital-family communication, training for homecare nurses in pediatric cancer care, virtual solutions, and an expanded breadth of services provided in-home. Child-, family-, and system-related factors affect the delivery of optimal home-based care. CONCLUSION: Children, families, and clinicians value a model of pediatric cancer care that incorporates home-based services. The insights of these key informants should be reflected in the principles that become the basis of home-based cancer care best practices.

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The Comprehensive Cancer Care Network of Romagna: The Opportunities Generated by the OECI Accreditation Program

Tumori Journal ◽

10.5301/tj.5000462 ◽

2015 ◽

Vol 101 (1_suppl) ◽

pp. S55-S59

Author(s):

Valentina Ancarani ◽

Marna Bernabini ◽

Chiara Zani ◽

Mattia Altini ◽

Dino Amadori

Keyword(s):

Cancer Care ◽

Care Network ◽

Accreditation Program

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Lessons learned in the implementation of a cancer care network in Catalonia

Journal of Management & Marketing in Healthcare ◽

10.1179/175330309791011127 ◽

2009 ◽

Vol 2 (2) ◽

pp. 174-183 ◽

Cited By ~ 3

Author(s):

Josep M. Borras ◽

Alan Boyd ◽

Mercedes Martinez-Villacampa ◽

Joan Brunet ◽

Ramon Colomer ◽

...

Keyword(s):

Cancer Care ◽

Lessons Learned ◽

Care Network

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Areas for quality improvement in pediatric supportive oncology services.

Journal of Clinical Oncology ◽

10.1200/jco.2017.35.15_suppl.e22022 ◽

2017 ◽

Vol 35 (15_suppl) ◽

pp. e22022-e22022

Author(s):

Jennifer Reichek ◽

Christine B. Weldon ◽

Rani Ganesan ◽

Eugene Suh ◽

Dipti Dighe ◽

...

Keyword(s):

Quality Improvement ◽

Pediatric Cancer ◽

Cancer Care ◽

Care Delivery ◽

Institute Of Medicine ◽

Supportive Services ◽

Care Community ◽

Pediatric Cancer Patients ◽

Survey Results ◽

Supportive Oncology

e22022 Background: In 2013, the Institute of Medicine report recommended that supportive oncology services be initiated at time of diagnosis. Providers of pediatric cancer care in the Chicagoland community, supported by The Coleman Foundation, sought to define areas for quality improvement of supportive oncology delivery to children. Methods: Focus groups and surveys with clinicians providing pediatric cancer care and supportive services at 14 sites were used to prioritize areas needing improvement. Results: 100% (14/14) of sites participated. Of the eligible sites, 6 were pediatric cancer treatment sites and 8 cancer care community organizations. Sites demonstrated consistent agreement for 8 of the 12 areas of focus for improvement. Over 50% of sites reported areas of focus (table) as important or very important. Conclusions: Sites identified the need for quality improvement in delivery of psychosocial, survivorship and palliative care for pediatric cancer patients. Survey results demonstrate a need for collaboration and efforts to guide care delivery improvement across sites. [Table: see text]

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Creation of a virtual cancer care network for remote oncology treatment.

Journal of Clinical Oncology ◽

10.1200/jco.2019.37.15_suppl.6546 ◽

2019 ◽

Vol 37 (15_suppl) ◽

pp. 6546-6546 ◽

Cited By ~ 1

Author(s):

Vida Almario Passero ◽

Andrew Dede Liman ◽

Kaneen Allen ◽

Lucy Speerhas ◽

Jocelyn Lai Tan ◽

...

Keyword(s):

Adverse Events ◽

Cancer Care ◽

Anticancer Therapy ◽

Care Network ◽

Commute Time ◽

Central Pennsylvania ◽

Primary Relationships ◽

Oncology Treatment ◽

Supportive Oncology ◽

Grade 3

6546 Background: The VA Pittsburgh Healthcare System (VAPHS) Virtual Cancer Care Network was launched in January 2018 after we had established an electronic consult service where 555 hematology electronic consults were completed at VAPHS in FY17. The clinical video telehealth (CVT) clinic allows veterans from central Pennsylvania to receive their anticancer therapy at the VA in Altoona, Pennsylvania where the oncology pharmacy, nursing, telehealth, and supportive oncology staff are on site. Patients follow regularly and remotely during treatment via CVT visits with their oncologist located 93 miles away at the VA in Pittsburgh. Methods: A chemotherapy pharmacy and nursing infusion clinic were created at the VA in Altoona. CVT visits started in January 2018. Data including treatment, adverse events defined through CTCAE v5.0, gender, age, zip code, and other details were examined retrospectively. Results: 279 CVT visits for 89 patients were completed January 2018 through Sept 2018. 87 were male, 2 were female. Average age was 70 (range 45-90). Most common primary disease sites were prostate (19.1%), colorectal (13.4%), and lung (9%). 61.8% of patients were on treatment. Non-treatment visits were for surveillance and survivorship. Treatment administered included platinum doublets, fluorouracil doublets, immunotherapy, and oral anticancer therapy. 5.4% of patients had Grade 3-4 events due to febrile neutropenia, increased liver enzymes, and hemolytic anemia. 41.7% had grade 1-2 events due to peripheral neuropathy, neutropenia, anemia, thrombocytopenia, and infusion-related reactions. Using an average commuting speed of 60 mph and a travel cost of $ 0.56 per mile, the total commute distance averted was 49,579 miles. Mean distance averted per patient was 557 miles. Total commute time saved for veterans was 826 hours. Total mileage costs saved for veterans was $27,764. Conclusions: The Virtual Cancer Care Network reduced the travel time and costs for veterans who previously would have travelled from central Pennsylvania to VAPHS for their oncology treatment. Adverse events were tolerable and managed by the VA in Altoona. Integration of CVT secures safe access to cancer care and maintains patients’ primary relationships with their oncologists.

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