scholarly journals Topic Modeling for Analyzing Patients’ Perceptions and Concerns of Hearing Loss on Social Q&A Sites: Incorporating Patients’ Perspective

Author(s):  
Junghwa Bahng ◽  
Chang Heon Lee

Hearing loss is the most common human sensory deficit, affecting normal communication. Recently, patients with hearing loss or at risk of hearing loss are increasingly turning to the online health community for health information and support. Information on health-related topics exchanged on the Internet is a useful resource to examine patients’ informational needs. The ability to understand the patients’ perspectives on hearing loss is critical for health professionals to develop a patient-centered intervention. In this paper, we apply Latent Dirichlet Allocation (LDA) on electronic patient-authored questions on social question-and-answer (Q&A) sites to identify patients’ perceptions, concerns, and needs on hearing loss. Our results reveal 21 topics, which are both representative and meaningful, and mostly correspond to sub-fields established in hearing science research. The latent topics are classified into five themes, which include “sudden hearing loss”, “tinnitus”, “noise-induced hearing loss”, “hearing aids”, “dizziness”, “curiosity about hearing loss”, “otitis media” and “complications of disease”. Our topic analysis of patients’ questions on the topic of hearing loss allows achieving a thorough understanding of patients’ perspectives, thereby leading to better development of the patient-centered intervention.

2020 ◽  
Vol 41 (04) ◽  
pp. 266-276
Author(s):  
Lori Zitelli ◽  
Elaine Mormer

AbstractSmartphone use has become increasingly prevalent and patients are frequently using this technology to engage in health-related activities. There are a variety of smartphone applications that can be used to assist individuals with hearing loss, particularly during extreme situations such as a global pandemic which results in restricted face-to-face interactions. The hearing-related applications can be divided into four categories: (1) screening and assessment, (2) intervention and rehabilitation, (3) education and information, and (4) assistive tools. Several subcategories of applications in the assistive tools category are described that may be of interest to individuals with hearing loss, whether they wear hearing aids or not. Examples of the apps along with links are included for each subcategory.


2012 ◽  
Vol 19 (1) ◽  
pp. 15-24
Author(s):  
Catherine Schroy ◽  
Amanda Ortmann ◽  
Elizabeth Mauzé

This is a case study of a 40-year-old male with a sudden profound sensorineural hearing loss experienced secondary to a skull fracture incurred during a violent assault. Following the acute phase of his medical care, the patient received long-term multidisciplinary rehabilitative care in two states that included audiologic, psychologic, and vocational services. This case highlights the need to make resources available to the patient, but stresses the importance of a patient-centered approach. Service providers often think they know what is best for their patients and are frustrated, if not disappointed, when patients do not follow advice. In this case, it became apparent that the patient needed to decide when he was ready to address all of the issues related to his hearing loss and subsequent communication, psychosocial, and vocational difficulties.


2017 ◽  
Vol 3 ◽  
pp. 233372141770494 ◽  
Author(s):  
Lingsheng Li ◽  
Caitlin Blake ◽  
Yoon Sung ◽  
Barnett Shpritz ◽  
David Chen ◽  
...  

Hearing loss may affect critical domains of health and functioning in older adults. This article describes the rationale and design of the Studying Multiple Outcomes After Aural Rehabilitative Treatment (SMART) study, which was developed to determine to what extent current hearing rehabilitative therapies could mitigate the effects of hearing loss on health outcomes. One hundred and forty-five patients ≥50 years receiving hearing aids (HA) or cochlear implants (CI) were recruited from the Johns Hopkins Department of Otolaryngology-HNS. A standardized outcome battery was administered to assess cognitive, social, mental, and physical functioning. Of the 145 participants aged 50 to 94.9 years who completed baseline evaluations, CI participants had significantly greater loneliness, social isolation, and poorer hearing and communicative function compared with HA participants. This study showed that standardized measures of health-related outcomes commonly used in gerontology appear sensitive to hearing impairment and are feasible to implement in clinical studies of hearing loss.


Cancers ◽  
2021 ◽  
Vol 14 (1) ◽  
pp. 50
Author(s):  
Jennifer Cohen ◽  
Pandora Patterson ◽  
Melissa Noke ◽  
Kristina Clarke ◽  
Olga Husson

Adolescent and young adults (AYAs) impacted by their own or familial cancer require information and peer support throughout the cancer journey to ameliorate feelings of isolation. Online Health Communities (OHC) provide social networks, support, and health-related content to people united by a shared health experience. Using a participatory design (PD) process, Canteen developed Canteen Connect (CC), an OHC for AYAs impacted by cancer. This manuscript outlines the process used to develop CC: (1) A mixed-methods implementation evaluation of Version I of CC (CCv.1); (2) Qualitative workshops utilizing strengths-based approaches of PD and appreciative inquiry to inform the development of CC Version 2 (CCv.2); quantitative implementation evaluation to assess the appropriateness, acceptability, and effectiveness of CCv.2. Through several iterations designed and tested in collaboration with AYAs, CCv.2 had improvements in the user experience, such as the ability to send a private message to other users and the site becoming mobile responsive. Results from the evaluation showed CCv.2 was appropriate for connecting with other AYAs. Most AYAs reported satisfaction with CCv.2 and a positive impact on their feelings of sadness, worry, and/or anxiety. CCv.2 fills an important service provision gap in providing an appropriate and acceptable OHC for AYAs impacted by cancer, with initial promising psychological outcomes.


JAMA ◽  
2018 ◽  
Vol 319 (21) ◽  
pp. 2225 ◽  
Author(s):  
Pádraig T. Kitterick ◽  
Melanie A. Ferguson

2019 ◽  
Vol 30 (05) ◽  
pp. 406-416
Author(s):  
Gabrielle H. Saunders ◽  
Lauren K. Dillard ◽  
Melissa T. Frederick ◽  
ShienPei C. Silverman

AbstractPhotovoice is a participatory action research method in which people take photographs to represent real-world experiences, so that issues of interest/concern can be documented. There are no published studies in which photovoice has been used in audiological rehabilitation (AR). The purpose of this feasibility study was to examine whether photovoice could have application in audiology.A feasibility study was designed to determine whether photovoice could be adapted for use as a clinical auditory rehabilitation tool (1) to facilitate provision of tailored communication strategy counseling, (2) as a post–hearing aid fitting counseling tool, (3) to enhance communication between partners regarding hearing loss, and (4) to provide an understanding of the emotional impacts of hearing loss.In this combined qualitative and quantitative feasibility study, a photovoice intervention was given to four groups of participants.Twenty-four individuals were recruited from a research subject data repository at the National Center for Rehabilitative Auditory Research.The study involved two visits to the laboratory during which participants received instruction in photovoice methodology (visit 1) and then, one to two weeks later, discussed their photographs during a debriefing session (visit 2).The mean number of photographs taken by participants was 12.6 (range: 4–29); the mean duration of the debriefing sessions was 40:39 min:sec (range: 14:30–66:22 min:sec). Participants reported that participating had made them think more about their hearing problems, appreciate their hearing aids more, and be more aware of the situations in which their hearing aids did and did not help. The taking and discussion of the photographs was also described as a learning tool, and it had facilitated conversations with others about hearing problems. Participants who completed the study with their communication partner (use case 3) said it had assisted with problem-solving and gave insight into the perspective of their partner. The research team noted that photovoice facilitated highly tailored counseling and provision of evidence-based recommendations for hearing assistive technology, enhanced interaction between communication partners, provided insight into participants’ lifestyle and communication needs, and seemed to generate rapport and trust.This feasibility study indicated that participants were willing to engage in photovoice and that it could be used to guide selection of rehabilitation recommendations and for postfitting counseling. Its application in audiological practice would seem timely and valuable for improving patient-centered and family-centered AR.


2017 ◽  
Vol 5 ◽  
pp. 2050313X1771186
Author(s):  
Ya-Ching Chang ◽  
Kwok-Ying Chan

Objectives: Sudden neurosensory deafness is the second debilitating disease in China. In fact, the current treatment is limited to hearing aids, assistive devices and cochlear implants. However, some patients might not be suitable for surgery or even hearing aids. Methods: Hereby, we report a pediatric case of sudden sensorineural hearing loss accompanied by otalgia and blocked ear sensation. Results: He firstly failed with conventional treatment but later his hearing symptoms were improved with our electro-acupuncture therapy according to pure tone audiometry findings and clinical responses. Conclusions: It may be worth trying in patients with sudden neurosensory deafness, who do not respond to routine medical treatment. In line with previous studies, the current report indicates that future observational studies or even clinical trials are needed to prove the efficacy of acupuncture on hearing loss and the accompanying symptoms.


2020 ◽  
Vol 13 (2) ◽  
pp. 33
Author(s):  
Olga María Alegre de la Rosa ◽  
Luis Miguel Villar Angulo

This study aimed to evaluate two objectives: first, the health-related quality of life (HRQoL) and socio-demographic characteristics of children with cochlear implants (CIs) or hearing aids (HAs) on the Kid-KINDLR_children_7-13 questionnaire, and second to analyze parental background factors and the perceptions of their children with CIs or HAs on the Kid_Kiddo-KINDLR_Parents_ 7-17 questionnaire. The data consisted of 89 children with CIs and 63 children with HAs and their 89 parents, respectively. The characteristics of children and the parental factors included demographic and audiological variables. Student’s t-test and one-way ANOVA were used to analyze the two objectives. Children with CIs exhibited a perception of better HRQoL in comparison with children with HAs. Among other differences, children with CIs or HAs and their parents were significantly distinct in the variable Setting (t = 2.921, p < 0.010). Moreover, parents of children with CIs or HAs were significantly different among them in some background factors (i.e., age, socioeconomic status, and learning). Children with CIs and their parents demonstrated a perception of better HRQoL than children with HAs and their parents. These findings added to the existing knowledge about the benefits of CIs for children with hearing loss. Parents of children with CIs noted the significance of social and emotional development as a marker of well-being in their children’s lives.


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