scholarly journals Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses

2021 ◽  
Vol 11 (7) ◽  
pp. 623
Author(s):  
Marlena van Munster ◽  
Johanne Stümpel ◽  
Franziska Thieken ◽  
David Pedrosa ◽  
Angelo Antonini ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Management Support ◽  
Care Needs ◽  
Conceptual Approach ◽  
Theoretical Concepts ◽  
Personalized Care ◽  
Care Models ◽  
Training Opportunities ◽  
Differentiated Care

Delivering healthcare to people living with Parkinson’s disease (PD) may be challenging in face of differentiated care needs during a PD journey and a growing complexity. In this regard, integrative care models may foster flexible solutions on patients’ care needs whereas Parkinson Nurses (PN) may be pivotal facilitators. However, at present hardly any training opportunities tailored to the care priorities of PD-patients are to be found for nurses. Following a conceptual approach, this article aims at setting a framework for training PN by reviewing existing literature on care priorities for PD. As a result, six prerequisites were formulated concerning a framework for training PN. The proposed training framework consist of three modules covering topics of PD: (i) comprehensive care, (ii) self-management support and (iii) health coaching. A fourth module on telemedicine may be added if applicable. The framework streamlines important theoretical concepts of professional PD management and may enable the development of novel, personalized care approaches.

scholarly journals An Innovative Personalised Management Program for Older Adults with Parkinson’s Disease: New Concepts and Future Directions

2021 ◽  
Vol 11 (1) ◽  
pp. 43
Author(s):  
Piyush Varma ◽  
Lakshanaa Narayan ◽  
Jane Alty ◽  
Virginia Painter ◽  
Chandrasekhara Padmakumar
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Older Persons ◽  
Clinical Manifestations ◽  
Clinical Syndrome ◽  
Management Program ◽  
Older Person ◽  
Care Needs ◽  
Future Directions ◽  
New Concepts

Introduction: Parkinson’s disease is a heterogeneous clinical syndrome. Parkinson’s disease in older persons presents with a diverse array of clinical manifestations leading to unique care needs. This raises the need for the healthcare community to proactively address the care needs of older persons with Parkinson’s disease. Though it is tempting to categorise different phenotypes of Parkinson’s disease, a strong evidence based for the same is lacking. There is considerable literature describing the varying clinical manifestations in old age. This article aims to review the literature looking for strategies in personalising the management of an older person with Parkinson’s disease.

scholarly journals P.015 Long-term progression and prognosis in different subtypes of Parkinson’s disease: validation of a new multi-domain subtyping method

2019 ◽  
Vol 46 (s1) ◽  
pp. S17
Author(s):  
S Fereshtehnejad ◽  
Y Zeighami ◽  
A Dagher ◽  
RB Postuma
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
De Novo ◽  
Early Stage ◽  
Real Life ◽  
Clinical Manifestations ◽  
Personalized Care ◽  
Autonomic Disturbance ◽  
Progression Markers

Background: Parkinson’s disease (PD) varies in clinical manifestations and course of progression from person to person. Identification of distinct PD subtypes is of great priority to develop personalized care approaches. We aimed to compare long-term progression and prognosis between different PD subtypes. Methods: Data on 421 individuals with de novo early-onset PD was retrieved from Parkinson’s Progression Markers Initiative (PPMI). Using a newly developed multi-domain subtyping method (based on motor phenotype, RBD, autonomic disturbance, early cognitive deficit), we divided PD population into three subtypes at baseline: “mild motor-predominant”, “Diffuse malignant” and “Intermediate”. Rate of global progression (mixed motor and non-motor features) and developing dementia were compared between the subtypes. Results: Patients with “diffuse malignant” PD experienced 0.5 z-score further worsening of global composite outcome (p=0.017) and 2.2 further decline in MOCA score (p=0.001) after 6-years of follow-up. Hazard for MCI/dementia was significantly higher in “diffuse malignant” (HR=3.2, p<0.001) and “intermediate” (HR=1.8, p<0.001) subtypes. Individuals with “diffuse malignant” PD had the lowest level of CSF amyloid-beta (p=0.006) and SPECT striatal binding ratio (p=0.001). Conclusions: This multi-domain subtyping is a valid method to predict subgroups of PD with distinct patterns of long-term progression at drug-naïve early-stage with potential application in real-life clinical practice.

What Do Social Workers Think about the Palliative Care Needs of People with Parkinson's Disease?

2011 ◽  
Vol 43 (1) ◽  
pp. 81-98 ◽  
Author(s):  
M. Waldron ◽  
W. G. Kernohan ◽  
F. Hasson ◽  
S. Foster ◽  
B. Cochrane
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Social Workers ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Personalized Care Management for Persons with Parkinson’s Disease

2020 ◽  
Vol 10 (s1) ◽  
pp. S11-S20
Author(s):  
Angelika D. van Halteren ◽  
Marten Munneke ◽  
Eva Smit ◽  
Sue Thomas ◽  
Bastiaan R. Bloem ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Care Management ◽  
Information Provision ◽  
Care Utilization ◽  
Core Element ◽  
Personalized Care ◽  
Positive Effects ◽  
Management Models ◽  
Core Elements

There is a growing awareness that delivery of integrated and personalized care is necessary to meet the needs of persons living with Parkinson’s disease. In other chronic diseases than Parkinson’s disease, care management models have been deployed to deliver integrated and personalized care, yielding positive effects on patients’ health outcomes, quality of life and health care utilization. However, care management models have been highly heterogeneous, as there is currently no clear operationalization of its core elements. In addition, most care management models are disease-specific and not tailored to the individual needs and preferences of a patient. In this viewpoint we present an integrated and personalized care management model for persons with Parkinson’s disease costing of five core elements: (1) care coordination, (2) patient navigation, (3) information provision, (4) early detection of signs and symptoms through proactive monitoring and (5) process monitoring. Following the description of each core element, implications for implementing the model into practice are discussed. Finally, we provide clinical and methodological considerations on the evaluation of care management models.

scholarly journals Personalized care management for persons with Parkinson's disease: A telenursing solution

2020 ◽  
Vol 3 ◽  
pp. 100070
Author(s):  
Francesca Mancini ◽  
Angelika D. van Halteren ◽  
Tania Carta ◽  
Sue Thomas ◽  
Bastiaan R. Bloem ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Care Management ◽  
Personalized Care

scholarly journals Being caregiver of people with Parkinson's Disease: experienced situations

2018 ◽  
Vol 71 (suppl 6) ◽  
pp. 2628-2634 ◽  
Author(s):  
Camila Padovani ◽  
Mislaine Casagrande de Lima Lopes ◽  
Ieda Harumi Higahashi ◽  
Sandra Marisa Pelloso ◽  
Marcelle Paiano ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Family Caregivers ◽  
Thematic Analysis ◽  
Family Care ◽  
Daily Routines ◽  
Efficient Care ◽  
Differentiated Care

ABSTRACT Objective: To understand the experience of caring for a person with Parkinson's Disease. Method: We used the qualitative study and thematic analysis with family caregivers of people with Parkinson's Disease. Results: Three thematic categories were identified, being: Feelings related to Parkinson's Disease; Changes in family daily routines; Caregiver strategies for self-care. Final considerations: Family care has shown the need for health services to provide caregivers support, as they experience situations of overload in care that can contribute to their illness. The findings also allow nurses to see the need for differentiated care for caregivers that, by assisting them with their needs, favor the quality of life of the caregiver, reduce the possibility of illness, allowing a more efficient care to the entity with chronic illness.

scholarly journals Survey of Health Care Workers Suggests Unmet Palliative Care Needs in Parkinson's Disease

2015 ◽  
Vol 2 (2) ◽  
pp. 142-148 ◽  
Author(s):  
Siobhan Fox ◽  
Elizabeth Gannon ◽  
Alison Cashell ◽  
W. George Kernohan ◽  
Marie Lynch ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Health Care ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Health Care Workers ◽  
Care Needs ◽  
Care Workers ◽  
Palliative Care Needs
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