Genderdysforie en ASS

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Tatiana Brandsma ◽  
Kirsten Visser
Keyword(s):  
Peer Support ◽  
Support Group ◽  
Autism Spectrum ◽  
Gender Variance ◽  
Medical Interventions ◽  
Peer Support Group ◽  
And Gender ◽  
Gender Presentation ◽  
Adolescents With Asd

There is a growing interest in the co-occurrence of autism spectrum disorder (ASD) and gender dysphoria (GD). Research has shown that people with ASD show more gender variance than people without ASD. Due to the difficulties associated with ASD (limited social skills, problems in information processing and difficulty with change), regular GD treatment does not seem to be adequately equipped for this specific group. In this study we want to gain insight into the clinical needs of adolescents with ASD and GD and their parents. We are conducting a pilot study to the effects of a specific peer support group for adolescents with ASD and GD on quality of life. A pre-posttest design is used. Prior to the start of the support group, during each meeting and at the end of the support group, the adolescents fill out several short questionnaires. The ASD and Gender support group consists of nine monthly meetings for the adolescents, covering topics such as autism and gender-related needs, psychoeducation on medical interventions, environmental factors, gender expression and practicing gender presentation skills. Simultaneously, parents can follow the parent meetings. Currently, three rounds of the peer support group have started (each round with about 10-12 adolescents).

scholarly journals Hubungan Dukungan Keluarga dan Depresi Dengan Kualitas Hidup pada Pasien dengan HIV/AIDS di Wonogiri, Jawa Tengah

2020 ◽  
Vol 11 (3) ◽  
pp. 307
Author(s):  
Marni Marni ◽  
Nita Yunianti Ratnasari ◽  
Putri Halimu Husna ◽  
Domingos Soares
Keyword(s):  
Quality Of Life ◽  
Family Support ◽  
Peer Support ◽  
Support Group ◽  
P Value ◽  
Aids Patients ◽  
Cross Sectional ◽  
Peer Support Group ◽  
Hiv Aids

The number of people with HIV / AIDS in Indonesia is increasing from year to year, various problems that occur in patients with HIV / AIDS, namely physical, social and psychological problems. To overcome problems related to opportunistic infections, support antiretroviral therapy, prevent transmission of HIV / AIDS to others, motivate families to provide support and care for patients to be physically fit and not reportedly restore the patient's good quality of life. The purpose of this study was to analyze the relationship between family support and recovery with the quality of life of HIV / AIDS patients in the Gajah Mungkur Peer Support Group in Wonogiri, Central Java, Indonesia. The design of this research is quantitative research with cross sectional study. The population is HIV / AIDS patients who are members of the Gajah Mungkur Wonogiri Peer Support Group which is supported by around 130 people. The sampling technique with total sampling technique. Data collection tools are using a questionnaire, family support, Beck Depression Inventory (BDI), and WHOQOLHIV-BREF. Data were analyzed univariately, bivariate using the chi-square test, and multivariate analysis using multiple logistic regression tests. The p-value of the significance of the depression variable is 0.010 '<0.05, which means the significance of a significant relationship between the level of depression to quality of life. There is a significant relationship between family support and recovery rates on the quality of life of HIV / AIDS patients in the Gajah Mungkur Wonogiri Peer Support Group. Keywords: depression; family support; HIV / AIDS; quality of life ABSTRAK Jumlah penderita HIV/AIDS di Indonesia semakin meningkat dari tahun ke tahun, Berbagai masalah terjadi pada pasien HIV/AIDS, yaitu masalah fisik, sosial dan psikis. Untuk mengatasi masalah tersebut pengendalian infeksi oportunistik, pemberian terapi ARV, pencegahan penularan HIV/AIDS kepada orang lain, memberi motivasi kepada keluarga untuk memberi dukungan dan merawat pasien agarfisik sehat dan tidak terjadi depresi sehingga kualitas hidup pasien baik. Tujuan penelitian ini adalah menganalisis hubungan antara dukungan keluarga dan depresi dengan kualitas hidup pasien HIV/AIDS di Kelompok Dukungan Sebaya Gajah Mungkur Wonogiri, Jawa Tengah, Indonesia. Design Penelitian ini adalah penelitian kuantitatif dengan studi pendekatan cross sectional. Populasi adalah Pasien HIV/AIDS yang tergabung dalam Kelompok Dukungan Sebaya Gajah Mungkur Wonogiri yang berjumlah sekitar 130 orang. Teknik pengambilan sampel dengan teknik total sampling. Alat untuk mengumpulkan data yaitu dengan menggunakan kuesioner, dukungan keluarga, Beck Depression Inventory (BDI), dan WHOQOLHIV-BREF.Data dianalisis secara univariat, bivariat menggunakan uji chi-square, dan analisis multivariat menggunakan uji regresi logistic berganda. Nilai p-value signifikansi variabel depresi sebesar 0.010 '< 0.05 yang berarti bahwa terdapat hubunganyang signifikan antara tingkat depresi terhadap kualitas hidup Nilai p-value signifikansi variabel dukungan keluarga sebesar 0.003 '< 0.05 berarti terdapat hubungan yang signifikan antara dukungan keluarga terhadap kualitas hidup. Terdapat hubungan yang signifikan antara dukungan keluarga dan tingkat depresi terhadap kualitas hidup pasien HIV/AIDS di Kelompok Dukungan Sebaya Gajah Mungkur Wonogiri. Kata kunci: depresi; dukungan keluarga; HIV/AIDS; kualitas hidup

Stroke maintenance exercise group: pilot study on daily functioning in long-term stroke survivors

2010 ◽  
Vol 16 (1) ◽  
pp. 93 ◽  
Author(s):  
Sarah A. Patterson ◽  
Benjamin M. Ross-Edwards ◽  
Hannah L. Gill
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Peer Support ◽  
Support Group ◽  
Exercise Group ◽  
Stroke Survivors ◽  
Peer Support Group ◽  
Daily Task

Typical models of stroke rehabilitation usually direct minimal resources for ongoing maintenance beyond discharge. However, there is increasing recognition of the benefits of community-based rehabilitation to maintain physical function and health in frail and disabled clients. A stroke maintenance exercise group was established to provide long-term care for stroke survivors. A pilot study was conducted to explore its effects compared with a traditional peer support group. Self-reported questionnaires, measuring daily task participation with the Home Functioning Questionnaire and quality of life with the EQ-5D, were utilised to compare twenty-two clients in the stroke maintenance exercise group and twenty-one in the peer support group. The results indicated that both these groups showed a significant increase with daily task participation over a 3-month period. However, no improvement was evident in either group on self-rated quality of life or health status, as measured by the EQ-5D. This pilot study suggests that both stroke maintenance exercise groups and peer support groups are effective with assisting long-term stroke survivors to improve participation in everyday activities. More research is recommended to further explore the long-term needs of this clinical group.

scholarly journals Peer support for adolescent girls living with scoliosis: finding a digital community

2022 ◽  
Vol 9 (1) ◽  
pp. 10-11
Author(s):  
Marie Vigouroux ◽  
Kristina Amja ◽  
Richard B. Hovey
Keyword(s):  
Peer Support ◽  
Support Group ◽  
Adolescent Girls ◽  
Structured Interviews ◽  
Future Directions ◽  
Level Of Involvement ◽  
Philosophical Hermeneutic ◽  
Peer Support Group ◽  
Digital Community ◽  
The Individual

Introduction : Scoliosis in a condition where a curve develops in the spine. Adolescent girls affected by scoliosis are significantly more likely to require treatment such as bracing or surgery than their male counterparts. Curvy Girls is a peer support group for adolescent girls with scoliosis that allows them to engage with each other in a safe environment. Objectives : This study endeavours to explore the experiences of adolescent girls living with scoliosis who are Curvy Girls members and understand how this peer support group has affected their experience. Approach : Sixteen participants were recruited through a senior board member of Curvy Girls. Data was gathered through semi-structured interviews with open-ended questions, transcribed verbatim, and analyzed using an applied philosophical hermeneutic approach, a practice of uncovering insights from transformational conversation. Findings : We found that the participants’ sense of belonging to Curvy Girls did not depend on their level of involvement with the group. Whether they were leaders in their in-person local group, or simply following the organization on social media, seeing themselves represented allowed the participants to feel like they belonged to the group. Future Directions : These findings may help clinicians, healthcare professionals, and peer support organisations deepen their understanding of the perspectives of this specific population. This transformed understanding could lead to the instauration of care and services that are better adapted to this population’s needs, resulting in lessening the burden of the condition on the individual and their support system.  

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