Health-Related Quality of Life in Children with Developmental Coordination Disorder and Their Parents

2012 ◽  
Vol 32 (4) ◽  
pp. 142-150 ◽  
Author(s):  
Yee-Pay Wuang ◽  
Chih-Chung Wang ◽  
Mao-Hsiung Huang

This study measured health-related quality of life (HRQOL) in children with developmental coordination disorder (DCD) and their parents. A convenience sample of 369 children with DCD (144 girls; mean age: 11.2 ± 3.66 years) and 360 children with typical development (146 girls; mean age: 11.4 ± 4.09 years) was enrolled. The Bruininks—Oseretsky Test of Motor Proficiency-Second Edition was used to classify the DCD group into five levels of motor abilities. The HRQOL of the children was assessed with the Child Health Questionnaire-Parent Form 50, and the HRQOL of the parents was assessed with the 12-Item Short Form Health Survey (SF-12), Beck Depression Inventory (BDI), and Beck Anxiety Inventory (BAI). Although the two groups had comparable physical health, the DCD group had significantly lower HRQOL in all psychosocial domains. The degree to which HRQOL is reduced is related to motor proficiency. Compared to parents of typically developing children, parents of children with DCD had significantly lower HRQOL ( p < .05 for both SF-12 and BAI). HRQOL of the parents was unassociated with the motor proficiency of the children. DCD significantly affects multiple HRQOL domains in both the child with DCD and the parents.

Author(s):  
Marina M. Schoemaker ◽  
Suzanne Houwen

Abstract Purpose of Review (1) To give an overview of what is currently known about health-related quality of life (HRQoL) in three common and co-occurring developmental disorders: attention deficit hyperactivity disorder (ADHD), autism spectrum disorders (ASD), and developmental coordination disorder (DCD), and (2) to provide directions for future research. Recent Findings HRQoL is compromised in all three developmental disorders, affecting various domains of HRQoL. However, some domains are more affected than others depending on the nature of the core deficits of the disorder. Overall, parents’ rate HRQoL of their children lower than the children themselves. Children with ASD and ADHD with co-occurring disorders have lower HRQoL compared to those with singular disorders. Future studies in DCD are needed to investigate the effect of co-occurring disorder in this population. Summary Children with developmental disorders have lower HRQoL than typically developing children. Future research should focus on the effects of co-occurring disorders on HRQoL and on protective factors that may increase HRQoL. HRQoL should be a part of clinical assessment, as it reveals the areas in life children are struggling with that could be targeted during intervention.


2021 ◽  
Vol 119 ◽  
pp. 104087
Author(s):  
Andrés Redondo-Tébar ◽  
Abel Ruiz-Hermosa ◽  
Vicente Martínez-Vizcaíno ◽  
Noelia María Martín-Espinosa ◽  
Blanca Notario-Pacheco ◽  
...  

2019 ◽  
Vol 84 ◽  
pp. 85-95 ◽  
Author(s):  
Heather C. Karras ◽  
Danita N. Morin ◽  
Kamaldeep Gill ◽  
Sara Izadi-Najafabadi ◽  
Jill G. Zwicker

2020 ◽  
Vol 11 (4) ◽  
pp. 6363-6367
Author(s):  
Ganapathy Sankar U ◽  
Monisha R

Developmental coordination disorder (DCD),is a vastly reported disorder with a prevalence estimated of 7-8% in children aged 5 to 10 years. There is a false perception of parents of children with DCD that their children will come out of the motor coordination defects as they age (Adults). This false perception affects the child directly, and they will not outgrow of the problem, however, becomes socially isolated. Motor difficulties reported in children with DCD are heterogeneous. When the HRQOL focuses on children's, it is mandatory to include the domains that elaborate the illness, mental health aspects, comfort ability of the child and also the effects on their parents. The study aims to evaluate the health-related quality of life (HRQOL) among parents of children with developmental coordination disorder (DCD). Thirty parents of children with and without DCD were enrolled in the study and HRQOL of the parents was examined using the 12-Item Short-Form Health Survey (SF-12), Beck Depression Inventory (BDI), and Beck Anxiety Inventory (BAI). When considering the HRQOL among parents of children with and without DCD, there occur different results among father and mother. However, parents of children with DCD had significantly lower HRQOL (p < .05). This study provides evidence that DCD significantly affects multiple HRQOL domains among the parents of children with DCD.


2021 ◽  
pp. 1-9
Author(s):  
Daniela A. Rubin ◽  
Kathleen S. Wilson ◽  
Jared M. Tucker ◽  
Diobel M. Castner ◽  
Marilyn C. Dumont-Driscoll ◽  
...  

Purpose: To determine changes and potential differences in physical activity (PA), gross motor proficiency (MP), and health parameters after a 6-month follow-up (FU) period following participation in a parent-led PA intervention in youth with or without Prader–Willi syndrome (PWS). Methods: About 42 youth with PWS and 65 youth without PWS but with obesity (body fat percentage >95th percentile for age and sex), aged 8–16 years, participated. The intervention included preplanned PA sessions containing playground and console-based video games scheduled 4 days per week for 24 weeks. Families received training and curriculum materials. PA (accelerometry), MP (Bruininks–Oseretsky Test of MP), and health-related quality of life were obtained before (PRE), after completing the intervention (POST), and at FU. Results: There were no significant changes in PA at any time point. At FU and POST, participants showed higher bilateral coordination (PRE = 9.3 [0.4], POST = 11.7 [0.5], and FU = 11.1 [0.6]); speed and agility (PRE = 9.2 [0.4], POST = 10.8 [0.4], and FU = 11.5 [0.5]); and strength (PRE = 8.0 [0.3], POST = 9.2 [0.3], and FU = 9.2 [0.3]) than at PRE. At FU (80.3 [2.1]) and POST (79.8 [1.7]), youth without PWS showed higher health-related quality of life than PRE (75.0 [1.8]). Conclusion: The improvements in MP and health-related quality of life at FU suggest long-term durability of intervention outcomes.


2019 ◽  
pp. 35-42
Author(s):  
Tri Vo Duc ◽  
Ngoc Nguyen Phuoc Bich

Background: The prevalence of diabetes mellitus (DM) has been increasing significantly in the world as well as in Viet Nam. DM is a serious and complex chronic disease that affects the physical health of the patients and lower health-related quality of life (HRQoL). Objectives: (1) To analyze the HRQoL in DM outpatients at Hue University of Medicine and Pharmacy Hospital. (2) To evaluate the associated factorsin outpatients with DM. Materials and method: A cross-sectional descriptive study was conducted on 253 outpatients at Hue University of Medicine and Pharmacy Hospital. EuroQoL-5 dimension-5 level (EQ-5D-5L) scale was used for the assessment of HRQoL. Results: The median of the EQ-5D index was 0.85(interquartile range (IQR) = 0.28). The mean of EQ-VAS score was 64.07 (SD=16.99). Aging was associated with lower HRQoL. Unemployed participants had the lowest HRQoL index compared to workers. Higher educational levels led to higher HRQoL. Patients withDM duration of over 10 years had lower HRQoL index than the other groups. Conclusion: The median of the EQ-5D index was 0.85 (IQR = 0.28). The mean of EQ-VAS score was 64.07 (SD=16.99). The HRQoL in diabetic patients was associated with age, occupation, level of education and DM duration. Key words: EQ-5D-5L, quality of life, diabetes mellitus.


2020 ◽  
Vol 4 (Supplement_2) ◽  
pp. 1341-1341
Author(s):  
Kayla Parsons ◽  
Leigh Neptune ◽  
Onycha Carlson ◽  
Elizabeth Matthews ◽  
Jade McNamara

Abstract Objectives The objective of this research was to compare health behavior differences between young adults who perceive their health as excellent or good and those who perceive their health as fair or poor. Methods A cross-sectional, convenience sample of college students was used for the study. Students were recruited via campus email and were asked to complete an online survey consisting of the Center for Disease Control's Health Related Quality of Life (HRQOL) modules, self-reported height and weight which was used to calculate body mass index (BMI), and a food frequency questionnaire to assess fruit and vegetable intake. Independent t-tests were used to assess differences between groups. Results Participants (N = 797) were 20 ± 1.4 years old, the majority were female (65.5%), and white (92.3%). The results showed that students who reported their health as “excellent, very good, or good” (n = 616) versus those that reported their health as “fair or poor” (n = 181) consumed more servings of fruit per day (0.84 ± 0.7 vs. 0.56 ± 0.5, P &lt; 0.001), more servings of vegetables per day (1.6 ± 1.2 vs. 1.3 ± 1.2, P &lt; 0.001) and had a lower BMI (24.2 ± 4.1 vs. 26.1 ± 5.3, P &lt; 0.001). They also had significantly better HRQOL, with reporting more days/month when they were in good physical health (3.9 ± 5.1 vs. 8.2 ± 8.4, P &lt; 0.001), less days/month feeling depressed (6.7 ± 7.7 vs. 15.1 ± 10.4, P &lt; 0.001), more days/month when they were happy/full of energy (12.7 ± 8.3 vs. 6.4 ± 6.1, P &lt; 0.001), and less days/month when they did not get enough sleep (13.0 ± 9.0 vs. 17.8 ± 9.6, P &lt; 0.001), respectively. Conclusions This data shows that students who perceived their general health to be excellent, very good, or good, reported healthier behaviors compared to students who perceived their health to be fair or poor. This research provides justification that college aimed health and wellness initiatives should focus on both mental and physical health of college students in order to shape positive behaviors that impact overall health-related quality of life. Funding Sources Bushway Research Fund, University of Maine.


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