scholarly journals Socio-cultural aspects of type 1 diabetes in Egypt: Where are we and where do we need to be?

2013 ◽  
Vol 01 (02) ◽  
pp. 063-065
Author(s):  
Hanan Aly

AbstractSocio-cultural factors play a pivotal role in the control of type 1 diabetes in children and adolescents, especially in developing countries like Egypt. The financial burden of this chronic illness, together with the modulations needed in lifestyle affect the family and school dynamics, adding further stress on the diabetic individual and his/her family. The key to improved outcome (not only in terms of glycemic control but also quality of life) has two arms. The first one is having a diabetes team with a psychologist skilled in this area for clear and positive communication with both the family and school from the time of diagnosis. The second one is the implementation of government laws to enforce the rights of diabetic children and adolescents.

Author(s):  
E. А. Mуkhailova ◽  
D. A. Mitelov

Currently, there is a global trend towards an increase in the incidence of type 1 diabetes mellitus (DM 1) among children and adolescents. It is characterized by a lifelong progressive course, manifested by endocrine and somatic disorders, as well as neurological and mental complications. The risk of the development of emotional disorders, cognitive dysfunction, adjustment disorder is largely determined by the microsocial environment of a child with DM 1. Objective — to study role of family in the formation of the disorders inmental and psychological health of children and adolescents with severe DM 1. Materials and methods. Examinations involved 285 patients with DM 1(126 children and 159 adolescents). The investigation design included clinical and psychopathological method, pathopsychological method, socio­psychological interviewing of a child and his/her family, test “Family sociogram”, projective picture tests “House­tree­man”, “Me and my disease”, “Kinetic picture of the family”. Results. It has been established that the level of psychological health of family of a child with DM 1 corresponded to the normal indicator in 20 % of cases. The factors have been determined that destabilize psychological health of the family, typology of family relationships with a sick child and their role in the formation of persistent neuropsychiatric complications. The factors of the microsocial environment affecting the formation of socio­psychological maladjustment of a child with DM were determined. The following risk factors of the formation of mental and neurological disorders in DM 1 children have been identified: the age of endocrine disease (DM)onset less than 7 years, the disease duration ≥ 5 years, frequent fluctuations in of glycemialevel, unsatisfactory self-control of the disease, late diagnosis of early and late complications related to the central nervous system, insufficient compliance, pathological types of family sociogram. An alternative method for diagnosing psychological problems in children and adolescents with diabetes ­ the use of projective methods has shown a high information content of target detection for the correction of emotional and behavioral disorders in the conditions of system «Life with diabetes».Conclusions. Socio-psychological patterns of maladaptation of children and adolescents with type 1 diabetes mellitushave been identified, which is important for determining the strategy of therapeutic intervention, socio-psychological support and prevention of social handicap.


Author(s):  
Marisa E Hilliard ◽  
Charles G Minard ◽  
David G Marrero ◽  
Maartje de Wit ◽  
Debbe Thompson ◽  
...  

Abstract Objective To develop and validate new measures of diabetes-specific health-related quality of life (HRQOL) for people with type 1 diabetes (T1D) that are brief, developmentally appropriate, and usable in clinical research and care. Here we report on the phases of developing and validating the self-report Type 1 Diabetes and Life (T1DAL) measures for children (age 8–11) and adolescents (age 12–17). Methods Measure development included qualitative interviews with youth and parents (n = 16 dyads) followed by piloting draft measures and conducting cognitive debriefing with youth (n = 9) to refine the measures. To evaluate the psychometric properties, children (n = 194) and adolescents (n = 257) at three T1D Exchange Clinic Network sites completed the age-appropriate T1DAL measure and previously validated questionnaires measuring related constructs. Using psychometric data, the investigators reduced the length of each T1DAL measure to 21 and 23 items, respectively, and conducted a final round of cognitive debriefing with six children and adolescents. Results The T1DAL measures for children and adolescents demonstrated good internal consistency (α = 0.84 and 0.89, respectively) and test–retest reliability (r = 0.78 and 0.80, respectively). Significant correlations between the T1DAL scores and measures of general quality of life, generic and diabetes-specific HRQOL, diabetes burden, and diabetes strengths demonstrated construct validity. Correlations with measures of self-management (child and adolescent) and glycemic control (adolescent only) demonstrated criterion validity. Factor analyses indicated four developmentally specific subscales per measure. Participants reported satisfaction with the measures. Conclusions The new T1DAL measures for children and adolescents with T1D are reliable, valid, and suitable for use in care settings and clinical research.


2019 ◽  
Vol 49 (1) ◽  
pp. 87-99
Author(s):  
Kübra Pınar Gürkan ◽  
Zuhal Bahar ◽  
Cantürk Çapık ◽  
Nihal Gördes Aydoğdu ◽  
Ayşe Beşer

Author(s):  
Mira Samardzic ◽  
Husref Tahirovic ◽  
Natasa Popovic ◽  
Milena Popovic-Samardzic

AbstractThe aim of this study was to evaluate health-related quality of life (HRQOL) in children and adolescents with type 1 diabetes (TIDM) in Montenegro compared with healthy controls and to estimate the effect of metabolic control on perceptions of HRQOL.This study involved children and adolescents with T1DM, age- and gender-matched healthy children and their parents. Children and adolescents with T1DM and their parents completed Peds QL 4.0 Generic Core Scales (GCS) and PedsQL 3.0 Diabetes Module. Healthy children and their parents completed self- and proxy-report of Peds QL 4.0 GCS.Our study (self- and proxy-report) showed that children and adolescents with T1DM had lower HRQOL on domain “Psychosocial health” and “School functioning” compared with healthy population (p=0.008; p≤0.001). Lower glycosylated hemoglobin (HbACompared with the healthy children, the HRQOL was lower among children and adolescents with T1DM. Lower HbA


2016 ◽  
Vol 18 (5) ◽  
pp. 340-347 ◽  
Author(s):  
Marion Keller ◽  
Radhouène Attia ◽  
Jacques Beltrand ◽  
Juliette Djadi-Prat ◽  
Thao Nguyen-Khoa ◽  
...  

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