The Sense of Self in Alzheimer’s Disease: The Person’s Perspective 1

2018 ◽  
pp. 115-132
Author(s):  
Phyllis Braudy Harris
2017 ◽  
Vol 13 (7S_Part_29) ◽  
pp. P1392-P1392
Author(s):  
Nathalie Philippi ◽  
Vincent Noblet ◽  
Anne Botzung ◽  
Hedi Ben Malek ◽  
Benjamin Cretin ◽  
...  

2016 ◽  
Vol 30 (2) ◽  
pp. 161-175 ◽  
Author(s):  
Mari Wolff Skaalvik ◽  
Aud-Mari Sohini Fjelltun ◽  
Hans Ketil Normann ◽  
Astrid Norberg

Recent research has challenged the previously held view that people with Alzheimer’s disease (AD) lack a sense of self, with several studies demonstrating that the sense of self is partially preserved, even in late stages of AD. The aim of this study was to examine how people with AD express their sense of self (Self 1–3) using the social constructionist theory of selfhood described by Harré (1998). Personal interviews were analyzed deductively. The participants narrated fragments of their life stories and expressed the fear of becoming a burden to family members and of nursing home placement. They expressed Self 1 (personal singularity or personal identity) without any problems, whereas their Self 2 (self-concept) attributes had undergone changes that they had learned to live with. The participants expressed surprisingly few problems with their narratives of Self 3 (social personae), that is, their accounts of interactions with other people. They reported being received positively when they were open about their diagnosis. These results provide further nuances that broaden our understanding of the process of preserving the sense of self, that is, simultaneously being the same and a different person.


2014 ◽  
Vol 35 (4) ◽  
pp. 421-443 ◽  
Author(s):  
Ragnhild Hedman ◽  
Görel Hansebo ◽  
Britt-Marie Ternestedt ◽  
Ingrid Hellström ◽  
Astrid Norberg

Dementia ◽  
2014 ◽  
Vol 15 (4) ◽  
pp. 467-480 ◽  
Author(s):  
Mari Wolff Skaalvik ◽  
Astrid Norberg ◽  
Ketil Normann ◽  
Aud-Mari Fjelltun ◽  
Kenneth Asplund

Author(s):  
Steven R. Sabat

Alzheimer’s is swiftly on the rise: it is estimated that every 67 seconds, someone develops the disease. For many, the words ‘Alzheimer’s disease’ or ‘dementia’ immediately denote severe mental loss and, perhaps, madness. Indeed, the vast majority of media coverage of Alzheimer’s disease (AD) and other types of dementia focuses primarily on the losses experienced by people diagnosed and the terrible burden felt by care partners yearning for a "magic bullet" drug cure. Providing an accessible, question-and-answer-format primer on what touches so many lives, and yet so few of us understand, Alzheimer’s Disease and Dementia: What Everyone Needs to Know® contributes what is urgently missing from public knowledge: unsparing investigation of their causes and manifestations, and focus on the strengths possessed by people diagnosed. Steven R. Sabat mines a large body of research to convey the genetic and biological aspects of Alzheimer’s disease, its clinical history, and, most significantly, to reveal the subjective experience of those with Alzheimer’s or dementia. By clarifying the terms surrounding dementia and Alzheimer’s, which are two distinct conditions, Sabat corrects dangerous misconceptions that plague our understanding of memory dysfunction. People diagnosed with AD retain awareness, thinking ability, and sense of self; crucially, Sabat demonstrates that there are ways to facilitate communication even when the person with AD has great difficulty finding the words he or she wants to use. From years spent exploring and observing the points of view and experiences of people diagnosed, Sabat strives to inform as well as to remind readers of the respect and empathy owed to those diagnosed and living with dementia. Alzheimer’s Disease and Dementia conveys this type of information and more, which, when applied by family and professional caregivers, will help improve the quality of life of those diagnosed as well as of those who provide support and care.


Dementia ◽  
2021 ◽  
pp. 147130122110217
Author(s):  
Maral R Torossian

Background Supporting human dignity is the essence of delivery of care. Dignity is one’s sense of self-value that is influenced by the perceived value attributed to the individual from others. Individuals with Alzheimer’s disease and related dementias (ADRD) are at risk of violations of their dignity, due to their diminished autonomy, the alteration in their sense of self, the loss of meaningful social roles, and their limited interactions with peers and confirmation of identity. Objectives A scoping review was conducted to explore the state of art regarding the dignity of individuals with ADRD. Methods: A search was conducted using CINAHL, PubMed, Web of Science, and PsycINFO. Relevant articles were analyzed and organized based on the themes they addressed, and a narrative description of findings was presented. Results Twenty-six articles were included in the review. Findings highlighted characteristics of care that affected the dignity of these individuals. Researchers found that care was task-centered, depersonalized, and lacked a genuine connection. Individuals with ADRD experienced embarrassment, lack of freedom, and powerlessness, which contributed to feelings of being devalued, and threatened their dignity. Studies testing interventions to enhance dignity were either inconclusive, lacked rigor, or had no lasting effect. Conclusion: The dignity of individuals with ADRD may be violated during healthcare interactions. More research is needed to objectively measure the dignity of these individuals and examine the effectiveness of interventions aimed at promoting dignity.


2015 ◽  
Vol 21 (5) ◽  
pp. 501-508 ◽  
Author(s):  
Louise A. Simm ◽  
Robert D. Jamieson ◽  
Ben Ong ◽  
Mark W. J. Garner ◽  
Glynda J. Kinsella

Dementia ◽  
2012 ◽  
Vol 12 (6) ◽  
pp. 713-733 ◽  
Author(s):  
Ragnhild Hedman ◽  
Görel Hansebo ◽  
Britt-Marie Ternestedt ◽  
Ingrid Hellström ◽  
Astrid Norberg

2020 ◽  
Vol 17 (6) ◽  
pp. 508-516
Author(s):  
Mohamad EL Haj ◽  
Philippe Allain

Aims: Unlike autobiographical memory (i.e., memory for personal information) in Alzheimer’s Disease (AD), little is known about Self-Defining Memories (SDM) (i.e., memories of highly significant personal events) in AD. Methods: The characteristics of self-defining memories in AD were evaluated by analyzing their specificity, emotional valence, and integration, as well as their centrality and contribution to self-continuity. Results demonstrated fewer specific SDM in AD participants than in controls. Results: No significant differences were observed between AD participants and controls regarding the production of positive or integrated SDM. Furthermore, no significant differences were observed between AD participants and controls regarding the rating of the centrality of SDM and their contribution to self-continuity. These results demonstrate that, although AD participants produce fewer specific SDM than controls, both populations have similar levels of emotional valence, integration, centrality, and selfcontinuity of these memories. Conclusion: It is concluded that patients with AD, at least those in the mild stages of the disease, can build on significant personal events and experiences (i.e., SDM) to reflect on how these events have changed the way they see themselves.


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