scholarly journals A Person-Centered, Asset-Based Community Development Framework for Youth with Special Health Care Needs/Disabilities in Transition to Adulthood

2007 ◽  
Vol 2 (1) ◽  
pp. 93-110
Author(s):  
Heather H. Boyd ◽  
Beth Swedeen
Keyword(s):  
Health Care ◽  
Community Development ◽  
Transition To Adulthood ◽  
The United States ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Asset Based Community Development ◽  
Special Health

In the United States, 12.8 percent of children under 18 have special health care needs. Ninety percent of youth in America with special health care needs and/or disabilities can now be expected to reach adulthood. Youth with special health care needs and/or disabilities are less likely to experience successful transition to adulthood in comparison to youth without special health care needs. This article presents a person-centered, asset-based community development approach that assisted youth in achieving transition and inclusion-oriented outcomes. Examples are drawn from a Healthy & Ready to Work demonstration project in Wisconsin. At the center of our approach to transition were community connectors -- adults who knew the personal interests and assets of youth and who found opportunities in the community that matched individual youth interests. Implications for youth development professionals as successful community connectors are described.

Implementing Community-Based Systems of Services for Children and Youths With Special Health Care Needs: How Well Are We Doing?

PEDIATRICS ◽  
2004 ◽  
Vol 113 (Supplement_4) ◽  
pp. 1538-1544 ◽  
Author(s):  
Merle McPherson ◽  
Gloria Weissman ◽  
Bonnie B. Strickland ◽  
Peter C. van Dyck ◽  
Stephen J. Blumberg ◽  
...  
Keyword(s):  
Health Care ◽  
Transition To Adulthood ◽  
Special Health Care Needs ◽  
Core Outcome ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
The Core ◽  
Core Outcomes ◽  
Special Health

Objective. To provide a baseline measure of the proportion of US children who meet the Maternal and Child Health Bureau's core outcomes for children with special health care needs (CSHCN). Those core outcomes include the following: 1) families of CSHCN will partner in decision making and will be satisfied with the services that they receive; 2) CSHCN will receive coordinated, ongoing comprehensive care within a medical home; 3) families of CSHCN will have adequate private and/or public insurance to pay for the services that they need; 4) children will be screened early and continuously for special health care needs; 5) community-based service systems will be organized so that families can use them easily; and 6) youths with special health care needs will receive the services necessary to make transitions to adult life, including adult health care, work, and independence. Methods. A national household survey was conducted using telephone interviews. We analyzed data on 38 866 CSHCN included in the 2001 National Survey of CSHCN and 13 579 children included in the 2001 National Health Interview Survey. We assessed the proportion of US children who met each of the 6 core outcomes for CSHCN using data from 2 surveys. Results. Success rates ranged from 6% (the core outcome on successful transition to adulthood) to 74% (the core outcome on organization of the service system). For 5 of the 6 core outcomes, success rates exceeded 50%. Conclusion. Our results indicate that, for the most part, the United States is well positioned to meet the 6 core outcomes. However, much more work lies ahead before success can be claimed. This is especially true for the core outcome on transition to adulthood, for which only 6% of children in the target population are now meeting this goal.

Adolescents with special health care needs in the United States: prevalence, profile and charges for physical and emotional conditions

2003 ◽  
Vol 32 (2) ◽  
pp. 148-149
Author(s):  
Susan M. Yussman ◽  
Sheryl A. Ryan ◽  
Jonathan D. Klein ◽  
Peggy Auinger ◽  
Andrew W. Dick ◽  
...  
Keyword(s):  
United States ◽  
Health Care ◽  
The United States ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health

Access to Care for Youth with Special Health Care Needs in the Transition to Adulthood

2008 ◽  
Vol 43 (1) ◽  
pp. 23-29 ◽  
Author(s):  
Debra S. Lotstein ◽  
Moira Inkelas ◽  
Ron D. Hays ◽  
Neal Halfon ◽  
Robert Brook
Keyword(s):  
Health Care ◽  
Access To Care ◽  
Transition To Adulthood ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health

Recognizing disparities in health care for children with special health care needs

2018 ◽  
Vol 13 (3) ◽  
pp. 112-119
Author(s):  
Christie Crump
Keyword(s):  
Health Care ◽  
The United States ◽  
Special Health Care Needs ◽  
Full Potential ◽  
Healthy Children ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Major Factors ◽  
Special Health

Introduction There is a significant disparity in the United States between the health care received by children with special health care needs versus physically healthy children. Objective The objective of the paper is to show that children with special needs receive less than adequate health care overall. This disparity affects the quality of life for these children and influences their ability to live their lives to their full potential. Methods Research was conducted by examining multiple studies with a focus on six major factors that play a role in creating this disparity. Results The findings show an alarming trend in the access and delivery of health care to children with special health care needs. Conclusions Solutions to correcting the disparities are possible, but it will take a full understanding of the issues, perseverance, dedication, and hard work on the part of families, physicians, legislators, and others genuinely interested in creating an equal health care system for all children.

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