scholarly journals Documentation of Fertility Preservation Discussions for Young Adults With Cancer: Examining Compliance With Treatment Guidelines

2016 ◽  
Vol 14 (3) ◽  
pp. 301-309 ◽  
Author(s):  
John M. Salsman ◽  
Betina Yanez ◽  
Kristin N. Smith ◽  
Jennifer L. Beaumont ◽  
Mallory A. Snyder ◽  
...  
2019 ◽  
Vol 64 (2) ◽  
pp. S104
Author(s):  
Diane Chen ◽  
Moira A. Kyweluk ◽  
Afiya Sajwani ◽  
Elisa J. Gordon ◽  
Emilie K. Johnson ◽  
...  

2019 ◽  
Vol 3 (1) ◽  
Author(s):  
Philip D Poorvu ◽  
A Lindsay Frazier ◽  
Angela M Feraco ◽  
Peter E Manley ◽  
Elizabeth S Ginsburg ◽  
...  

AbstractCancer treatments may compromise the fertility of children, adolescents, and young adults, and treatment-related infertility represents an important survivorship issue that should be addressed at diagnosis and in follow-up to ensure optimal decision-making, including consideration of pursuing fertility preservation. Risk of infertility varies substantially with patient and treatment factors. The ability to accurately assess fertility risk for many patients is hampered by limitations of the current literature, including heterogeneity in patient populations, treatments, and outcome measures. In this article, we review and synthesize the available data to estimate fertility risks from modern cancer treatments for both children and adult cancer survivors to enable clinicians to counsel patients about future fertility.


2020 ◽  
Vol 16 (6) ◽  
pp. e488-e497
Author(s):  
Talia Greenspoon ◽  
Rebecca Charow ◽  
Janet Papadakos ◽  
Mahsa Samadi ◽  
Anne Marie Maloney ◽  
...  

PURPOSE: Fertility is an important issue for adolescents and young adults with cancer facing potential infertility. Egg cryopreservation options exist, but information is sometimes overwhelming. We evaluated a fertility preservation educational video and assessed patient and family knowledge and impressions at pre- and post-video timepoints. METHODS: We developed a whiteboard video to explain egg cryopreservation to patients and families. The video was evaluated on the basis of patient education best practices (readability, understandability, actionability). Participants were recruited using convenience sampling in oncology clinics. They completed questionnaires before and after watching to assess knowledge and interest. Inclusion criteria were patients age 13-39 years and minimum 1 month from diagnosis. Descriptive statistics, correlation analyses, and mean comparisons were conducted. RESULTS: The video script read at a grade 8 reading level. Average understandability and actionability scores were below the acceptable standard. We recruited 108 patients (mean age, 27 years) and 39 caregivers/partners. Patients’ knowledge about fertility preservation increased after viewing the video. Interest was high before and after, and satisfaction was high for both patients and caregivers. Participants appreciated information on process, procedure, and delivery but desired more information on logistics, including cost. CONCLUSION: A targeted patient education video about fertility preservation options can build knowledge and encourage discussions about infertility. The video can be used as a model for videos on related topics to provide accurate information in a youth-friendly medium; however, following patient education best practices for readability, understandability, and actionability may increase video effectiveness. Future research should assess how audiovisual patient education material affects patient behavior.


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