scholarly journals The experiences of people with dementia and their carers participating in individual cognitive stimulation therapy

2017 ◽  
Vol 32 (12) ◽  
pp. e34-e42 ◽  
Author(s):  
Phuong Leung ◽  
Lauren Yates ◽  
Vasiliki Orgeta ◽  
Fara Hamidi ◽  
Martin Orrell
Keyword(s):  
Cognitive Stimulation ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Individual Cognitive Stimulation Therapy

Should we use individual cognitive stimulation therapy to improve cognitive function in people with dementia?

BMJ ◽  
2012 ◽  
Vol 344 (feb15 1) ◽  
pp. e633-e633 ◽  
Author(s):  
M. Orrell ◽  
B. Woods ◽  
A. Spector
Keyword(s):  
Cognitive Function ◽  
Cognitive Stimulation ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Individual Cognitive Stimulation Therapy

scholarly journals An Individual Cognitive Stimulation Therapy App for People With Dementia: Development and Usability Study of Thinkability (Preprint)

2019 ◽  
Author(s):  
Harleen Kaur Rai ◽  
Justine Schneider ◽  
Martin Orrell
Keyword(s):  
Public Involvement ◽  
Technology Development ◽  
Complex Interventions ◽  
Cognitive Stimulation ◽  
Feasibility Trial ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Mental Stimulation ◽  
Agile Approach ◽  
Individual Cognitive Stimulation Therapy

BACKGROUND There is a lack of technological resources for the mental stimulation and communication of people with dementia, which can be helpful in improving cognition and quality of life. Paper-based individual cognitive stimulation therapy (iCST) for people with dementia has the potential to be adapted to a touchscreen format. This can improve accessibility and provide mental stimulation using interactive features. There is a need for a rigorous and systematic approach toward development, leading to improved suitability and implementation of the intervention, so that more people can benefit from its use. OBJECTIVE This study aims to develop and investigate the usability of Thinkability, an iCST app that can be used by people with dementia and carers on touchscreen tablets. METHODS The Medical Research Council framework for evaluating complex interventions and the Centre for eHealth Research roadmap served as frameworks for the stages of intervention and technology development. The development of the iCST app itself adopted an agile approach with elements from action research. Hence, it was developed in 3 successive <i>sprints</i> and was evaluated by relevant stakeholders at each sprint. Sprint 1 included 2 patient and public involvement (PPI) consultation meetings, sprint 2 included 1 PPI consultation meeting, and 4 focus groups and 10 individual interviews were organized in sprint 3. A feasibility trial is currently underway. RESULTS The findings from each sprint were used to inform the development. Sprint 1 helped to identify the relevant evidence base and explored the attitudes of people with dementia and carers toward a potential iCST app. In sprint 2, an initial prototype was evaluated in a small PPI consultation meeting. In sprint 3, feedback was gathered through a qualitative study on the quality and perceived effectiveness of the iCST app. It was well received by people with dementia and carers. A need for more updated and personalized content was highlighted. CONCLUSIONS This study proves that an agile approach toward technology development involving all relevant stakeholders is effective in creating suitable technology. Adding to our previous knowledge of noncomputerized cognitive stimulation therapy, the release of the iCST app will make this psychosocial intervention accessible to more users worldwide.

scholarly journals An Individual Cognitive Stimulation Therapy App for People With Dementia: Development and Usability Study of Thinkability

JMIR Aging ◽  
10.2196/17105 ◽  
2020 ◽  
Vol 3 (2) ◽  
pp. e17105
Author(s):  
Harleen Kaur Rai ◽  
Justine Schneider ◽  
Martin Orrell
Keyword(s):  
Public Involvement ◽  
Technology Development ◽  
Complex Interventions ◽  
Cognitive Stimulation ◽  
Feasibility Trial ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Mental Stimulation ◽  
Agile Approach ◽  
Individual Cognitive Stimulation Therapy

Background There is a lack of technological resources for the mental stimulation and communication of people with dementia, which can be helpful in improving cognition and quality of life. Paper-based individual cognitive stimulation therapy (iCST) for people with dementia has the potential to be adapted to a touchscreen format. This can improve accessibility and provide mental stimulation using interactive features. There is a need for a rigorous and systematic approach toward development, leading to improved suitability and implementation of the intervention, so that more people can benefit from its use. Objective This study aims to develop and investigate the usability of Thinkability, an iCST app that can be used by people with dementia and carers on touchscreen tablets. Methods The Medical Research Council framework for evaluating complex interventions and the Centre for eHealth Research roadmap served as frameworks for the stages of intervention and technology development. The development of the iCST app itself adopted an agile approach with elements from action research. Hence, it was developed in 3 successive sprints and was evaluated by relevant stakeholders at each sprint. Sprint 1 included 2 patient and public involvement (PPI) consultation meetings, sprint 2 included 1 PPI consultation meeting, and 4 focus groups and 10 individual interviews were organized in sprint 3. A feasibility trial is currently underway. Results The findings from each sprint were used to inform the development. Sprint 1 helped to identify the relevant evidence base and explored the attitudes of people with dementia and carers toward a potential iCST app. In sprint 2, an initial prototype was evaluated in a small PPI consultation meeting. In sprint 3, feedback was gathered through a qualitative study on the quality and perceived effectiveness of the iCST app. It was well received by people with dementia and carers. A need for more updated and personalized content was highlighted. Conclusions This study proves that an agile approach toward technology development involving all relevant stakeholders is effective in creating suitable technology. Adding to our previous knowledge of noncomputerized cognitive stimulation therapy, the release of the iCST app will make this psychosocial intervention accessible to more users worldwide.

scholarly journals Individual Cognitive Stimulation Therapy for dementia (iCST): study protocol for a randomized controlled trial

Trials ◽  
2012 ◽  
Vol 13 (1) ◽  
Author(s):  
Martin Orrell ◽  
Lauren A Yates ◽  
Alistair Burns ◽  
Ian Russell ◽  
Robert T Woods ◽  
...  
Keyword(s):  
Randomized Controlled Trial ◽  
Study Protocol ◽  
Controlled Trial ◽  
Cognitive Stimulation ◽  
Randomized Controlled ◽  
Cognitive Stimulation Therapy ◽  
Individual Cognitive Stimulation Therapy

scholarly journals An evaluation of Cognitive Stimulation Therapy sessions for people with dementia and a concomitant support group for their carers

Dementia ◽  
2016 ◽  
Vol 16 (8) ◽  
pp. 985-1003 ◽  
Author(s):  
Jan Bailey ◽  
Paul Kingston ◽  
Simon Alford ◽  
Louise Taylor ◽  
Edward Tolhurst
Keyword(s):  
Support Groups ◽  
Support Group ◽  
Qualitative Data ◽  
Cognitive Stimulation ◽  
Structured Interviews ◽  
Post Intervention ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Quasi Experimental ◽  
The Impact

This research aimed to ascertain the impact of a pragmatic Cognitive Stimulation Therapy course of 10 sessions on the cognitive function of people living with dementia and whether attending a concomitant carers support group was beneficial to carers. A mixed method quasi-experimental approach was adopted; data were collected pre- and post-intervention. The quantitative arm utilised three validated questionnaires rated by the carers. Qualitative data were collected via semi-structured interviews with carers regarding their perceptions of the impact of Cognitive Stimulation Therapy and the carers support group. Quantitative data analysis found no statistically significant differences within or between groups. The qualitative data demonstrated that carers perceived Cognitive Stimulation Therapy had some benefits for the people living with dementia, especially social benefits. Carers also perceived that attending the carers support group was beneficial for them in terms of gaining a better understanding of dementia, developing coping skills and having peer support. The study was limited in scale and further research with a larger sample, using direct measures of the impact of Cognitive Stimulation Therapy with people living with dementia and supplementary research exploring which characteristic of carers support groups are effective would be worthwhile.

scholarly journals Cognitive stimulation therapy in dementia care: exploring the views and experiences of service providers on the barriers and facilitators to implementation in practice using Normalization Process Theory

2017 ◽  
Vol 29 (11) ◽  
pp. 1869-1878 ◽  
Author(s):  
Claire Dickinson ◽  
Grant Gibson ◽  
Zoe Gotts ◽  
Lynne Stobbart ◽  
Louise Robinson
Keyword(s):  
Psychosocial Intervention ◽  
Cost Effective ◽  
Dementia Care ◽  
Normalization Process Theory ◽  
Cognitive Stimulation ◽  
Process Theory ◽  
Evidence Based ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Normalization Process

ABSTRACTBackground:Cognitive stimulation therapy (CST) is an evidence-based, cost-effective psychosocial intervention for people with dementia but is currently not a standard part of post-diagnostic care. This qualitative study explored the views and experiences of dementia care providers on the barriers and facilitators to its implementation in usual care.Method:Thirty four semi-structured interviews (24 participants) were conducted across four dementia care sites in the North of England; ten were follow-up interviews. Data were analyzed using thematic analysis and then mapped to the Normalization Process Theory framework.Results:Participants considered CST a “good fit” with their “preferred” ways of working and goals of dementia care namely the provision of person-centered services. For facilitators delivering the intervention, compared to other behavioral interventions, CST was seen to offer benefits to their work and was easy to understand as an intervention. Training in CST and seeing benefits for clients were important motivators. Time and resources were crucial for the successful implementation of CST. Participants were keen to objectively measure benefits to participants but unsure how to do this.Conclusions:CST is a cost-effective psychosocial intervention for people with dementia, recommended by national guidance. Despite our findings which show that, using the NPT framework, there are more facilitators than barriers to the implementation of CST, it is still not a standard part of post-diagnostic dementia care. Further research is needed to explore the reasons for this implementation gap in ensuring evidence-based care in translated into practice.

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