Perspectives of parents and tutors on a self-management program for parents/guardians of children with long-term and life-limiting conditions: “a life raft we can sail along with”

2008 ◽  
Vol 36 (7) ◽  
pp. 871-884 ◽  
Author(s):  
Julie Barlow ◽  
Laura Swaby ◽  
Andrew Turner
2017 ◽  
Vol 07 (05) ◽  
Author(s):  
Gilles Devouassoux ◽  
Nathalie Freymond ◽  
Laurent Laforest ◽  
Thierry Vitry ◽  
Alexis Cazaux ◽  
...  

2021 ◽  
Vol 4 (12) ◽  
pp. e2137492
Author(s):  
Hyekyun Rhee ◽  
Tanzy Love ◽  
Mona N. Wicks ◽  
Laurene Tumiel-Berhalter ◽  
Elizabeth Sloand ◽  
...  

2001 ◽  
Vol 38 (4) ◽  
pp. 321-330 ◽  
Author(s):  
Deborah O. Lucas ◽  
Louise O. Zimmer ◽  
John E. Paul ◽  
Donna Jones ◽  
Gary Slatko ◽  
...  

2003 ◽  
Vol 36 (4) ◽  
pp. 410-419 ◽  
Author(s):  
Russell E Glasgow ◽  
Shawn M Boles ◽  
H.Garth McKay ◽  
Edward G Feil ◽  
Manuel Barrera

2021 ◽  
Vol 7 (4) ◽  
pp. 205521732110544
Author(s):  
Julia Norton ◽  
Sandra Joos ◽  
Michelle H Cameron ◽  
Cinda L Hugos

Background A multicomponent group MS fatigue self-management program reduced fatigue impact compared to a rigorous control 12 months after enrollment. Objectives Assess and compare changes between groups in fatigue impact and behavior changes implemented 5–6 years after enrollment. Methods The Modified Fatigue Impact Scale (MFIS) and a behavior change questionnaire were administered 5–6 years after enrollment. Results There were no significant changes in mean MFIS scores within or between groups from baseline to 5–6 years later. Behavior changes were of similar frequency in both groups. Conclusion Fatigue impact was stable and behavior changes were similar between groups 5–6 years after a fatigue self-management program.


Author(s):  
Hyekyun Rhee ◽  
Tanzy Love ◽  
Donald Harrington ◽  
Leanne Walters ◽  
Jennifer Mammen ◽  
...  

PLoS ONE ◽  
2017 ◽  
Vol 12 (3) ◽  
pp. e0173601 ◽  
Author(s):  
Lieve Roets-Merken ◽  
Sytse Zuidema ◽  
Myrra Vernooij-Dassen ◽  
Marianne Dees ◽  
Pieter Hermsen ◽  
...  

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