scholarly journals An online survey to assess parents' preferences for learning about child health research

Nursing Open ◽  
2021 ◽  
Author(s):  
Lisa Knisley ◽  
Anne Le ◽  
Shannon D. Scott ◽  
Keyword(s):  
Child Health ◽  
Health Research ◽  
Online Survey ◽  
Child Health Research

scholarly journals An Online Survey to Assess Parents’ Preferences for Learning About Child Health Research 

2020 ◽  
Author(s):  
Lisa Knisley ◽  
Anne Le ◽  
Shannon D Scott
Keyword(s):  
Child Health ◽  
Health Research ◽  
Online Survey ◽  
Research Process ◽  
Stressful Situation ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Child Health Research ◽  
To Receive ◽  
Research Studies

Abstract Background: Child health research is crucial to finding safe and effective treatments for children. However, child health research can be challenging in that it can require significant resources. Additionally, parents may need to make the decision to participate in a study during a stressful situation, such as an emergency department visit. Although innovative study design and methodology are being used to try and address these challenges, a key component of conducting more efficient, relevant and successful child health research is finding better ways to engage and involve parents in the research process from study conception to dissemination of results. Methods: We employed a cross-sectional, survey design to seek feedback from parents on 1) how they would like to learn about potential child health research studies that their child could participate in; 2) whether they would like to learn more about the research studies they are participating in; and 3) how they would like to receive information about studies they are participating in. Results: The survey findings demonstrate that parents are interested in hearing about opportunities to participate in child health research, particularly during visits to their general practitioner/pediatrician or walk-in clinics. Most parents would like to receive updates on the progress, results, and researchers involved in studies their child has participated in. Parents would also like to be provided with support to participate in research studies (i.e., travel or child care). Conclusion: This study is part of a larger initiative that is re-examining recruitment and retention methods to inform research teams in planning child health studies. In order to involve a wider range of parents and children in current and future studies, there must be strong engagement strategies in place, developed with parents, to effectively and respectively share research opportunities, progress and results, and demonstrate that their participation matters.

scholarly journals Mixed methods study exploring parent engagement in child health research in British Columbia

BMJ Open ◽  
2019 ◽  
Vol 9 (5) ◽  
pp. e025404
Author(s):  
Jennifer Smith ◽  
Ian Pike ◽  
Mariana Brussoni ◽  
Lori Tucker ◽  
Louise Mâsse ◽  
...  
Keyword(s):  
British Columbia ◽  
Mixed Methods ◽  
Child Health ◽  
Health Research ◽  
Data Privacy ◽  
Online Survey ◽  
Research Process ◽  
Parent Perspectives ◽  
Online Platform ◽  
Child Health Research

ObjectivesThe objective of this study was to explore parent perspectives of and interest in an interactive knowledge translation platform called Child-Sized KT that proposes to catalyse the collaboration of patients, families, practitioners and researchers in patient-oriented research at British Columbia Children’s Hospital (BCCH).MethodsAn explanatory sequential mixed methods design was used over 1 year. Over 500 parents across BC completed an online survey, including a subsample of 102 parents who had accessed care at BCCH within the past 2 years. The survey explored parent perspectives about the value of their engagement at all stages of the research process and their interest in and concerns with using an online platform. Following the online survey, two focus groups were held with parents in the Vancouver area to explore themes emerging from the survey.ResultsParents expressed keen interest in engaging in research at BCCH. Parents perceived benefit from their input at all stages of the research process; however, they were most interested in helping to identify the problem, develop the research question and share the results. Although parents preferred online participation, they had concerns about protecting the privacy of their child’s information.ConclusionsParents see value in their involvement in all stages of child health research at BCCH. Their input suggests that Child-Sized KT, a hypothetical online platform, would facilitate meaningful stakeholder engagement in child health research, but should offer a customised experience and ensure the highest standard of data privacy and protection.

scholarly journals Ethical considerations referred to in child health research published in leading nursing journals: 2015–2019

2020 ◽  
Vol 27 (3) ◽  
Author(s):  
Yanni Wu ◽  
Michelle Howarth ◽  
Chunlan Zhou ◽  
Lixiao Yang ◽  
Xiaoling Ye ◽  
...  
Keyword(s):  
Child Health ◽  
Health Research ◽  
Ethical Considerations ◽  
Child Health Research

scholarly journals A systematic review of existing national priorities for child health research in sub-Saharan Africa

2005 ◽  
Vol 3 (1) ◽  
Author(s):  
George H Swingler ◽  
James H Irlam ◽  
William M Macharia ◽  
Félix Tietche ◽  
Martin M Meremikwu
Keyword(s):  
Systematic Review ◽  
Child Health ◽  
Health Research ◽  
Sub Saharan Africa ◽  
Sub Saharan ◽  
Child Health Research

The Child Health Research Centers program: 1990-2000

2001 ◽  
Vol 139 (6) ◽  
pp. 757-758 ◽  
Author(s):  
Karen K. Winer ◽  
Ephraim Levin ◽  
Gilman D. Grave ◽  
Duane F. Alexander
Keyword(s):  
Child Health ◽  
Health Research ◽  
Research Centers ◽  
Child Health Research

scholarly journals Child health research in Canada: Alive and well?

2004 ◽  
Vol 9 (6) ◽  
pp. 369-370
Author(s):  
Peter Rosenbaum
Keyword(s):  
Child Health ◽  
Health Research ◽  
Child Health Research
Sign in / Sign up

Export Citation Format

Share Document