scholarly journals Parent Perceptions of and Preferences for Participation in Child Health Research: Results from a Pediatric Practice-Based Research Network

2019 ◽  
Vol 32 (5) ◽  
pp. 685-694
Author(s):  
Stacey A. Engster ◽  
Carrie Fascetti ◽  
Kristine Daw ◽  
Evelyn Cohen Reis
2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Shelley M. Vanderhout ◽  
Catherine S. Birken ◽  
Maria Zaccaria Cho ◽  
Jonathon L. Maguire

Abstract Background Engaging parents in child health research can facilitate choosing relevant research questions, recruiting participants who reflect the diversity of large communities, and disseminating study results to communities in accessible ways. Main body Primary care well-child visit systems present a foundation for trusting relationships between families and clinicians, lending itself well to a system where health research is embedded into the delivery of health care. We provide an example of a practice-based research network called TARGet Kids!, which is a longitudinal cohort study of children from birth to adolescence. Researchers and clinicians have partnered with parents of children participating in TARGet Kids! to ensure child health research is centred on family values and preferences. A Parent And Clinician Team (PACT) was formed to set research priorities, co-design research protocols, troubleshoot issues, and communicate research to knowledge users. Conclusion This partnership will facilitate child health research which is feasible, relevant and inclusive for improving children’s health care and public health policy.


2020 ◽  
Vol 27 (3) ◽  
Author(s):  
Yanni Wu ◽  
Michelle Howarth ◽  
Chunlan Zhou ◽  
Lixiao Yang ◽  
Xiaoling Ye ◽  
...  

2005 ◽  
Vol 3 (1) ◽  
Author(s):  
George H Swingler ◽  
James H Irlam ◽  
William M Macharia ◽  
Félix Tietche ◽  
Martin M Meremikwu

2021 ◽  
pp. archdischild-2021-322636
Author(s):  
Katrina Cathie ◽  
Alastair G Sutcliffe ◽  
Srini Bandi ◽  
David Coghlan ◽  
Stephen W Turner ◽  
...  

BackgroundThe General and Adolescent Paediatric Research Network in the UK and Ireland (GAPRUKI) was established in 2016. The aims of GAPRUKI are to unite general paediatricians around the UK and Ireland, to develop research ideas and protocols, and facilitate delivery of multicentre research.ObjectivesTo undertake a research prioritisation exercise among UK and Ireland general paediatricians.MethodsThis was a four-phase study using a modified Delphi survey. The first phase asked for suggested research priorities. The second phase developed ideas and ranked them in priority. In the third phase, priorities were refined; and the final stage used the Hanlon Prioritisation Process to agree on the highest priorities.ResultsIn phase one, there were 250 questions submitted by 61 GAPRUKI members (66% of the whole membership). For phase two, 92 priorities were scored by 62 members and the mean Likert scale (1–7) scores ranged from 3.13 to 5.77. In a face-to-face meeting (phases three and four), 17 research questions were identified and ultimately 14 priorities were identified and ranked. The four priorities with the highest ranking focused on these three respiratory conditions: asthma, bronchiolitis and acute wheeze. Other priorities were in the diagnosis or management of constipation, urinary tract infection, fever, gastro-oesophageal reflux and also new models of care for scheduled general paediatric clinics.ConclusionResearch priorities for child health in the UK and Ireland have been identified using a robust methodology. The next steps are for studies to be designed and funded to address these priorities.


2001 ◽  
Vol 139 (6) ◽  
pp. 757-758 ◽  
Author(s):  
Karen K. Winer ◽  
Ephraim Levin ◽  
Gilman D. Grave ◽  
Duane F. Alexander

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