The impact of illness perception and socio‐clinico‐demographic factors on perceived quality of life in children and adolescents with thalassemia intermedia

2019 ◽  
Vol 66 (7) ◽  
pp. e27735
Author(s):  
Zeze TH. Atwa ◽  
Wafaa Y. Abdel Wahed
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Illness Perception ◽  
Demographic Factors ◽  
Perceived Quality ◽  
Thalassemia Intermedia ◽  
Perceived Quality Of Life ◽  
The Impact

P–499 infertility impact on perceived quality of life and sexual satisfaction in Spanish women with primary and secondary infertility

2021 ◽  
Vol 36 (Supplement_1) ◽  
Author(s):  
N Uriart. Beitia ◽  
P Guerr. Mora ◽  
M Penad. Abilleira
Keyword(s):  
Quality Of Life ◽  
Sexual Satisfaction ◽  
Measurement Instrument ◽  
Perceived Quality ◽  
Secondary Infertility ◽  
Infertile Women ◽  
Fertility Treatments ◽  
Perceived Quality Of Life ◽  
The Impact

Abstract Study question Are there any differences relating to the perceived quality of life (QoL) and sexual satisfaction among infertile women? Summary answer There were no differences between women who already had a baby and those who did not relating to the perceived QoL and sexual satisfaction. What is known already Infertility is a medical disease with a high social component with a 16% prevalence. There have been many investigations regarding to the physical part of the infertility but the sexual and marital satisfaction has not been as intensively investigated. The importance of the psychological counseling in fertility treatments has already been proven, but the significance of sexual satisfaction on individual’s perception on QoL has not been as deeply studied. Study design, size, duration A transversal descriptive study was done. 313 heterosexual married women with fertility problems were recruited in collaboration with the Spanish patient association “Red Nacional de Infértiles”. The Fertility quality of life tool (FertiQoL) was selected to measure the perceived QoL and the Index of Sexual Satisfaction (ISS) was chosen to study the degree of sexual satisfaction. The data collection was made between January and February 2020 and all the information was gathered online. Participants/materials, setting, methods 313 women filled the questionnaire which had 4 different modules: A sociodemographic module (sex, age, studies, time trying to conceive, moment of treatment and offspring), two modules for each measurement instrument and a last module in which they could write their personal experiences regarding to the infertility journey. ANOVA and t-Student statistical analyses were done to compare the different independent variables. To see if FertiQoL could explain the sexual satisfaction a regression analysis was made. Main results and the role of chance To achieve 95% power (α = 0.05) and an effect size of 0.25, a minimum sample size of 210 was needed and a sample of 313 women was recruited. There were no statistical differences between women with previous offspring and those who did not in neither of the FertiQoL subscales (Emotional: 7,4 ± 3,884 vs. 7,34 ± 4,235; Mind/Body: 9,65 ± 5,098 vs. 8,66 ± 4,979; Relational: 16,88 ± 4,807 vs. 16,3 ± 4,956; Social: 10,52 ± 5,02 vs. 10,1 ± 4,801; Tolerability: 5,91 ± 4,114 vs. 6,65 ± 3,357; Environment: 12,71 ± 5,02 vs. 11,42 ± 4,963) nor in the ISS questionnaire (47,48 ± 6,488 vs. 47,22 ± 7,35). Regarding to the power of the FertiQoL instrument and the perceived QoL to predict the sexual satisfaction, the regression model showed that the sexual satisfaction could be explained in 26,3% of the cases by the relational and mind/body subscales of the FertiQol tool. This model showed the inherent relationship between marital and personal wellbeing in order to obtain a better sexual satisfaction. Limitations, reasons for caution As the study had a transversal design, no cause-effect relationships could be done. It would be desirable to establish a longitudinal study in order to determine a more accurate relationship between the studied variables. Wider implications of the findings: This study showed that the impact of infertility in women with secondary infertility diagnose could be at least as high as in women with primary infertility diagnose. FertiQoL would be a reasonable instrument to estimate the sexual satisfaction of infertile women. Sexology should be part of the infertility counselling programs. Trial registration number Not applicable

scholarly journals The Effect of Sports on Perceived Quality of Life of People with Visual Disability

2018 ◽  
Vol 20 (4) ◽  
pp. 289
Author(s):  
Ronailde Braga Guerra ◽  
Jaqueline Freitas de Oliveira Neiva ◽  
Pedro Manoel dos Santos ◽  
Ericson Oliveira de Aragão ◽  
Leonardo Pimenta ◽  
...  
Keyword(s):  
Quality Of Life ◽  
General Health ◽  
Perceived Quality ◽  
Visual Disability ◽  
Visual Disorder ◽  
Perceived Quality Of Life ◽  
Different Characteristics ◽  
The Impact ◽  
Physically Inactive

A prática esportiva melhora a qualidade de vida de pessoas com diferentes características, mas ainda não há informações sobre o impacto do esporte na qualidade de vida de pessoas com deficiência visual. O objetivo deste estudo foi identificar a percepção da qualidade de vida de atletas cegos de futebol de cinco e de goalball e compará-la com a qualidade de vida percebida de pessoas com deficiência visual fisicamente inativas. Trinta e sete homens com deficiência visual, separados em três grupos: 12 atletas de futebol de cinco (idade: M = 27,3 anos, DP = 10,2), 13 atletas de goalball (idade: M = 30,3 anos, DP = 7,0) e 12 pessoas fisicamente inativas (idade: M = 25,3 anos, DP = 2,3), responderam ao questionário WHOQOL-Bref. Atletas com deficiência visual obtiveram maior pontuação na Qualidade de Vida Global e Saúde Geral e em todos os domínios do WHOQOL-Bref do que pessoas fisicamente inativas. Não houve diferença entre a qualidade de vida percebida dos atletas de futebol e de goalball. Portanto, a despeito do tipo de esporte, sua prática está relacionada a uma melhor qualidade de vida de pessoas com deficiência visual.Palavras-chave: Cego. Futebol de Cegos. Futebol de Cinco. Goalball. WHOQOL-Bref.AbstractSports practice improves quality of life of people with different characteristics, but there is still no information about the impact of sport on quality of life among people with visual disorder. The aim of this study was to identify the perceived quality of life of blind football and goalball athletes and to compare it to perceived quality of life of physically inactive people with visual disorder. Thirty seven men with visual disorder, separated into three groups: 12 blind football athletes (age: M = 27.3 years, SD = 10.2), 13 goalball athletes (age: M = 30.3 years, SD = 7.0) and 12 physically inactive people (age: M = 25.3 years, SD = 2.3), answered the WHOQOL-Bref questionnaire. Athletes with visual disorder obtained a higher score in the Overall Quality of Live and General Health and in all domains of the WHOQOL-Bref than physically inactive people. There was no difference between the perceived quality of life of football and goalball athletes. Therefore, despite the type of sport, its practice is related to a better quality of life of people with visual disorder.Keywords: Blind. Blind Football. Football Five-a-side. Goalball. WHOQOL-Bref.

scholarly journals The Relationship Between Responsible Tourism Practice, Destination Sustainability and Quality of Life: Perspective of Marine National Park Communities

2021 ◽  
Vol 16 (5) ◽  
pp. 895-901
Author(s):  
Thanin Sangkhaduang ◽  
Parichart Visuthismajarn ◽  
Noodchanath Kongchouy
Keyword(s):  
Quality Of Life ◽  
National Park ◽  
Structural Equation ◽  
Perceived Quality ◽  
Ethical Consumption ◽  
Equation Modeling ◽  
Perceived Quality Of Life ◽  
The Impact ◽  
Responsible Tourism

An ideal responsible tourism practice has become the most significant role and principle for modern sustainable tourism development concept. Responsible tourism practice promotes better for tourists visit and enhances the quality of life of host communities in the destination by encouraging ethical consumption and production in all stakeholders. This paper attempted to determine the impact of host communities’ perceived responsible tourism practice on perceived destination sustainability and their quality of life as well as the impact of host communities’ perceived destination sustainability on perceived quality of life. The study was conducted with 355 participants from host communities in Haad Chao Mai Marine National Park, Thailand. Self-administered questionnaires were used to collect the data. The collected data were analyzed by using structural equation modeling (SEM). The results revealed that perceived responsible tourism practice had a significant impact on perceived destination sustainability and perceived quality of life. Additionally, perceived destination sustainability influenced perceived quality of life. As such, embedding responsible tourism practice in destination development plan can enable destination sustainability and better quality of life of host communities and it might make the park successful ecotourism destination.

Abstract W P323: Factors Influencing Perception of Quality of Life Following Stroke

Stroke ◽  
2014 ◽  
Vol 45 (suppl_1) ◽  
Author(s):  
Shelly Ozark ◽  
Andrea D Boan ◽  
Tanya N Turan ◽  
Charles Ellis ◽  
David L Bachman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Functional Outcomes ◽  
Multivariate Analyses ◽  
Functional Independence ◽  
Perceived Quality ◽  
Insurance Status ◽  
Perceived Quality Of Life ◽  
History Of ◽  
The Impact

Background: Stroke is a leading cause of adult disability and reduction in quality of life, but little is known about the social, demographic, clinical and functional elements that contribute to perceived quality of life after stroke. Objective: To determine the factors associated with patient perception of the effect that stroke has on quality of life. Methods: The STEP-South Carolina Project surveyed 162 stroke survivors one year after their event, assessing clinical and functional outcomes and patient perceptions of the magnitude of the impact of stroke on their quality of life (“no effect”, “some effect”, or “great effect”). Multivariate analyses were performed to determine the relationship between the patients’ perceived effect of stroke on quality of life and demographic features, functional abilities, stroke severity, and medical comorbidities. Results: Multivariate analyses showed no difference in age, race, gender or insurance status. As shown in the table, multivariate analyses (adjusted for NIHSS, age, race, gender, and insurance status) demonstrated that a history of prior stroke, use of therapy services, lower functional independence in ADLs, not driving, and history of diabetes were associated with a patient’s perception of a “greater effect” on quality of life. Conclusion: The perception of the impact of stroke on quality of life is influenced by both functional outcomes and clinical factors post-stroke. Further study is needed to find ways of mitigating these factors to improve patient perceived quality of life.

P–507 In It together: A Dyadic approach to assessing the health-related Quality of Life and Depression among infertile couples

2021 ◽  
Vol 36 (Supplement_1) ◽  
Author(s):  
N K Ghuman
Keyword(s):  
Quality Of Life ◽  
Severe Depression ◽  
Demographic Factors ◽  
Perceived Quality ◽  
Cross Sectional ◽  
Perceived Quality Of Life ◽  
Prevalence Of Depression ◽  
Infertile Couples ◽  
Socio Demographic Factors

Abstract Study question Is there a difference in perceived quality of life (QOL) and prevalence of depression between partners with infertility and to determine whether socio-demographic factors influence the same? Summary answer Among infertile couples, there was high degree of congruence in perceived quality of life and prevalence of depression was similar among partners What is known already Impairment of Quality of life and psychological ramifications of infertility are often not easy to recognize and are frequently overlooked by couples and clinicians alike. The focus of available studies is largely women’s reaction to infertility and couple-based studies are limited at best especially in developing countries. Impact of socio-demographic factors on QOL and depression prevalence have not been studied in depth in couple-based studies. Study design, size, duration A prospective, cross-sectional study of infertile couples in setting of western India over a period of one year. In total, 130 couples (260 participants) attending the fertility clinic at a tertiary level teaching hospital were interviewed cross-sectionally, following due approval from the institutional ethical committee. Participants/materials, setting, methods Couples’ socio-demographic and clinical details were recorded. Couples were requested to complete the WHOQOL-BREF instrument and Beck Depression Inventory (BDI). Analysis was performed using the statistical package SPSS, version 21, (International Business Machines Corp., Released 2012, Version 21.0.) and p-value of < 0.05 was considered statistically significant. Data was analyzed using paired t-test, one-way multivariate linear variance analysis and regression and correlation models. Main results and the role of chance Out of 130 couples (260 participants), data 214 participants (107 couples) was included in Quality of Life score assessment and from 228 participants (114 couples) were included in the final depression analysis. Mean Quality of life (QOL) scores between men and women showed a strong agreement within psychological, social, environmental domains (r = 0.70, 0.67 and 0.69 likewise) and moderate association for physical domain (r = 0.59). Presence of depressive symptoms was associated with significantly impaired QOL scores through all domains. Depression was present in 30.6% of female partners with 18.4% having mild, 9.6% having moderate and 2.6% having severe depression. Corresponding figures in male partners were 27.2%, 20.2%, 6.1% with 0.9% case of severe depression. Pearson correlation between female partner BDI scores and male partner scores was highly statistically significant with a correlation coefficient of 0.745, significant at 0.01 level (99% confidence interval). Presence of depression was not found to be significantly associated with couples’ age, education status, income status, presence of previous living child in the family and the duration of infertility using multinomial logistic regression model. Limitations, reasons for caution Being a questionnaire based study, there is predisposition to certain degree of inaccuracy of responses. The Cross-sectional design of the study allows estimation of variance and association but not causation. Wider implications of the findings: Screening and psychoeducation should be couple based considering the couple as one unit which is likely to improve the mental wellbeing of the couple as a whole. All infertile couples should be screened and offered counselling irrespective of their socio-demographic background. Trial registration number AIIMS/IEC/2018/677

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