Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study

2012 ◽  
Vol 22 (5) ◽  
pp. 1096-1103 ◽  
Author(s):  
Jonathan Koffman ◽  
Myfanwy Morgan ◽  
Polly Edmonds ◽  
Peter Speck ◽  
Richard Siegert ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Ethnic Groups ◽  
Advanced Cancer

scholarly journals Compounded trauma: A qualitative study of the challenges for refugees living with advanced cancer

2021 ◽  
pp. 026921632110002
Author(s):  
Ping Guo ◽  
Sawsan Alajarmeh ◽  
Ghadeer Alarja ◽  
Waleed Alrjoub ◽  
Ayman Al-Essa ◽  
...  
Keyword(s):  
Social Support ◽  
Qualitative Study ◽  
Advanced Cancer ◽  
Psychosocial Support ◽  
Large Population ◽  
Community Support ◽  
Support Network ◽  
Psychosocial Needs ◽  
Physical And Mental Health ◽  
The Impact

Background: Although palliative care is now an essential health service under Universal Health Coverage, ensuring access and appropriate care for refugees is a specific challenge for this large population. Aim: To identify the needs and experiences of adult refugees in Jordan with advanced cancer and informal caregivers. Design: A qualitative study using semi-structured interviews. Setting/participants: Participants were purposively sampled at two Jordanian hospitals to achieve heterogeneity by age, gender, country of origin, and primary diagnosis. Results: Twenty-nine refugees (22 patients, 7 caregivers) participated, and four themes were generated: (1) Psychological distress and sustaining social support. Refugees often experienced unmet psychosocial needs. However, psychosocial support was reported either absent or limited. (2) Knowledge and uncertainty. Lack of information and poor communication between healthcare providers and patients caused significant distress due to uncertainty. (3) Family anxiety and support roles. Being away from the home country cut patients and caregivers off from their wider social support network, which added increased anxiety and responsibilities to caregivers. (4) Compounded trauma and poverty. Many refugees have experienced trauma related to war that may affect their physical and mental health. They faced serious financial crises caused by the rising cost of medicines and treatment. Conclusions: This study reveals the impact of fractured families and networks on social support in advanced cancer, and the compounding trauma of the disease for refugees. Detailed person-centred assessment and emphasis on psychosocial support is essential, and home-based care should not presume community support for patients to remain at home.

scholarly journals ‘I'll be in a safe place’: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012134 ◽  
Author(s):  
Lesley A Henson ◽  
Irene J Higginson ◽  
Barbara A Daveson ◽  
Clare Ellis-Smith ◽  
Jonathan Koffman ◽  
...  
Keyword(s):  
Emergency Department ◽  
Qualitative Study ◽  
Advanced Cancer ◽  
Emergency Department Care ◽  
Safe Place

Quality of life domains important and relevant to family caregivers of advanced cancer patients in an Asian population: a qualitative study

2014 ◽  
Vol 24 (4) ◽  
pp. 817-828 ◽  
Author(s):  
Geok Ling Lee ◽  
Mandy Yen Ling Ow ◽  
Ramaswamy Akhileswaran ◽  
Grace Su Yin Pang ◽  
Gilbert Kam Tong Fan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Asian Population ◽  
Life Domains ◽  
Advanced Cancer Patients

scholarly journals Factors affecting successful induced lactation process among Malaysian women: a qualitative study

2020 ◽  
Vol 122 (10) ◽  
pp. 3049-3063
Author(s):  
Norsyamlina Che Abdul Rahim ◽  
Zaharah Sulaiman ◽  
Tengku Alina Tengku Ismail ◽  
Tahir Aris
Keyword(s):  
Qualitative Study ◽  
Ethnic Groups ◽  
Treatment Plan ◽  
Positive Influence ◽  
Recall Bias ◽  
Content Type ◽  
Factors Affecting ◽  
Daily Schedule ◽  
East Malaysia ◽  
Data Saturation

PurposeThis qualitative study was to understand the factors affecting successful adoptive breastfeeding among women who underwent induced lactation process.Design/methodology/approachThis study conducted in-depth interviews among induced lactation women in five states based on five regions [South (Johor), Central (Selangor), North (Penang), East (Kelantan) and East Malaysia (Sabah)]. The interviews have been consented, audio-recorded then transcribed verbatim, followed by identification of emerging themes.FindingsData saturation was achieved after interviewing a total of 23 induced lactation women. There were six main themes that emerged to describe factors affecting successful induced lactation process: (1) support and encouragement, (2) diet supplementation, (3) breastfeeding devices support, (4) incorporating treatment plan in the daily schedule, (5) high determination and pleasant attitude and (6) being informed on induced lactation process.Research limitations/implicationsThere can be recall bias among the respondents since the information was collected retrospectively, one to two years after the induced lactation practice completed. Due to that, we cannot rule out recall bias in the responses given in the interviews. In this study, induced lactation women barely were ethnic Malay Muslims. Thus, comparisons to other ethnic groups were not possible. This was due to the difficulty to get participation from induced lactation mother of other ethnic groups in the study. Even though the success is demonstrated, a significant limitation is that the ratio between Muslims and non-Muslims cannot be performed for the reason that the respondents only consists of Muslims alone.Originality/valueThe benefits of breastfeeding by an adoptive woman are numerous for both the mother and baby. There are multifactors involved in successful induced lactation process. After experiencing induced lactation, all respondents agreed that it has prepared them to be real mothers and breastfeeding is a pleasurable experience. All respondents corresponded to breastfeeding have a positive influence in the aspect of affection and touch. A mother who feels confident in her ability to lactate and is reassured by those around her will be most likely to feel successful in this great attempt.

scholarly journals The role of empathic nursing telephone interventions with advanced cancer patients: A qualitative study

2021 ◽  
Vol 50 ◽  
pp. 101863
Author(s):  
I. Torres-Vigil ◽  
M.Z. Cohen ◽  
R.M. Million ◽  
E. Bruera
Keyword(s):  
Qualitative Study ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Advanced Cancer Patients

scholarly journals Ethical challenges in family caregivers of patients with advanced cancer – a qualitative study

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Anneke Ullrich ◽  
Marianna Theochari ◽  
Corinna Bergelt ◽  
Gabriella Marx ◽  
Katharina Woellert ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Ethical Challenges
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