Quality of life domains important and relevant to family caregivers of advanced cancer patients in an Asian population: a qualitative study

2014 ◽  
Vol 24 (4) ◽  
pp. 817-828 ◽  
Author(s):  
Geok Ling Lee ◽  
Mandy Yen Ling Ow ◽  
Ramaswamy Akhileswaran ◽  
Grace Su Yin Pang ◽  
Gilbert Kam Tong Fan ◽  
...  
2021 ◽  
pp. 80-81
Author(s):  
.Ajay Kumar Kondeti ◽  
Ambedkar Yadala

Objectives: Family Caregivers (FCs) of cancer patients often suffer from impaired quality of life (QOL) due to stress arising from the responsibility of care giving. Thus, in this study we assessed family caregivers (FCs) quality of life and its association with demographic variables during inpatient palliative care (IPC) of their advanced cancer patients. Material and Methods: 211 FCs of advanced cancer patients were assessed using either English or Telugu versions of the Caregiver Quality of Life Cancer (CQOLC) index scales to evaluate their QOL. We used descriptive and correlation analyses to obtain statistical results.. Results: The summative mean CQOLC score was 54.42+/- 19.7. Statistically signicant higher scores were observed for FCs who reside in rural regions (p=0.27) and those who belong to Below poverty line (BPL) families (p=0.035) suggesting poor quality of life among these groups. High CQOLC score was noticed for socially backward (OBC's, SC and ST castes) communities, but statistically not signicant (p=0.210). Conclusion: FCs from rural regions and lower income groups experience poor QOL. Regular assessment, resource support and specialist care are needed for improving FCs quality of life.


2013 ◽  
Vol 14 (1) ◽  
pp. 139-146 ◽  
Author(s):  
Gemma Cramarossa ◽  
Liang Zeng ◽  
Liying Zhang ◽  
Ling-Ming Tseng ◽  
Ming-Feng Hou ◽  
...  

2015 ◽  
Vol 9 ◽  
Author(s):  
Donemico Fuoco ◽  
Jonathan di Tomasso ◽  
Caroline Boulos ◽  
Robert D Kilgour ◽  
Jose A Morais ◽  
...  

2021 ◽  
Author(s):  
Johanna Sommer ◽  
Christopher Chung ◽  
Dagmar M. Haller ◽  
Sophie Pautex

Abstract Background: Patients suffering from advanced cancer often loose contact with their primary care physician (PCP) during oncologic treatment and palliative care is introduced very late.The aim of this pilot study was to test the feasibility and procedures for a randomized trial of an intervention to teach PCPs a palliative care approach and communication skills to improve advanced cancer patients’ quality of life. Methods: Observational pilot study in 5 steps. 1) Recruitment of PCPs. 2) Intervention: training on palliative care competencies and communication skills addressing end-of-life issues.3) Recruitment of advanced cancer patients by PCPs. 4) Patients follow-up by PCPs, and assessment of their quality of life by a research assistant 5) Feedback from PCPs using a semi-structured focus group and three individual interviews with qualitative deductive theme analysis.Results: 8 PCPs were trained. PCPs failed to recruit patients for fear of imposing additional loads on their patients. PCPs changed their approach of advanced cancer patients. They became more conscious of their role and responsibility during oncologic treatments and felt empowered to take a more active role picking up patient’s cues and addressing advance directives. They developed interprofessional collaborations for advance care planning. Overall, they discovered the role to help patients to make decisions for a better end-of-life.Conclusions: PCPs failed to recruit advanced cancer patients, but reported a change in paradigm about palliative care. They moved from a focus on helping patients to die better, to a new role helping patients to define the conditions for a better end-of-life.Trial registration : The ethics committee of the canton of Geneva approved the study (2018-00077 Pilot Study) in accordance with the Declaration of Helsinki


2014 ◽  
Vol 22 (10) ◽  
pp. 2783-2791 ◽  
Author(s):  
Sophie Schur ◽  
Alexandra Ebert-Vogel ◽  
Michaela Amering ◽  
Eva Katharina Masel ◽  
Marie Neubauer ◽  
...  

2007 ◽  
Vol 21 (3) ◽  
pp. 199-205 ◽  
Author(s):  
Michael A Echteld ◽  
Lia van Zuylen ◽  
Marjolein Bannink ◽  
Erica Witkamp ◽  
Carin CD Van der Rijt

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