Incorporating Healthcare Transition Readiness Assessment

2018 ◽  
pp. 119-128
Author(s):  
Lisa A. Schwartz ◽  
Alexandra M. Psihogios ◽  
Emily M. Fredericks
2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 73-73
Author(s):  
Vaibhav Agrawal ◽  
Kristina K. Blessing ◽  
Andrea Berger ◽  
Amanda Schleicher ◽  
Mike Styer ◽  
...  

73 Background: Childhood cancer patients have distinct health-related needs as they transition from patient to survivor and from pediatric to adult-based care. This study used the Transition Readiness Assessment Questionnaire (TRAQ) to assess transition readiness and compare variation in readiness perceptions between patients, parents, and physicians. Methods: The TRAQ was completed by patients between ages 12 to 26 and their parent and oncologist at Geisinger Medical Center from Sept. 2015 to Dec. 2016. Surveys were scored according to validated methods (min. 1, max. 5). Statistical analysis was completed using SAS 9.4. Results: The study enrolled 49 patients, including 6 patients (12.2%) and 43 survivors (87.8%). There were 29 males (59.2%). The patient’s mean age at the time of survey was 18.4 years. Cancer types included: acute lymphoblastic leukemia (n = 17), lymphoma (n = 12), and sarcoma (n = 7). There were no significant differences in overall TRAQ scores between parents, patients, and physicians (mean 3.2, 3.5, and 3.7, respectively). The highest interobserver agreement was seen between patients and parents; the lowest was seen between physicians and patients. The greatest competency was assessed in the activity of talking with providers, and the lowest was measured in appointment keeping. In the domain of tracking health issues, providers assigned higher scores than patients (p = 0.003) and parents (p = 0.001). In the skill of talking with providers, patients ranked themselves higher than providers (p = 0.003). There was no significant variation in scores based on disease type, length of therapy, or insurance type. Patient age at diagnosis, patient age at therapy completion, and patient age at survey were correlated with higher patient (p = 0.004, p = 0.002, p = 0.0001, respectively), parent (p = 0.017, p = 0.019, p = 0.0001, respectively), and physician (p = 0.027, p = 0.03, p = 0.0001, respectively) scores. Conclusions: This study demonstrated that the overall assessment of transition readiness in the adolescent and young adult oncology population was similar between patients, parents, and physicians. The TRAQ is a tool that can be effectively used to guide healthcare transition in this population.


2020 ◽  
Vol 14 (Supplement_1) ◽  
pp. S668-S668
Author(s):  
N Rohatinsky ◽  
T Risling ◽  
M Kumaran ◽  
L A Hellsten

Abstract Background Canada has over 270,000 individuals living with inflammatory bowel disease (IBD). Over 7000 children and adolescents have been diagnosed and these numbers are continuing to increase. Due to the chronic, life long nature of IBD, more adolescents are transitioning from paediatric to adult healthcare environments than ever before. There is great need to ensure that adolescents are properly supported through this transitional period to ensure that their health outcomes are maximised. IBD nurses are integral members of the transition team; however, their perspectives on priority transition readiness factors are limited. Therefore, the purpose of this study was for Canadian IBD nurses to prioritise healthcare transition readiness assessment factors. Methods An anonymous survey was created and distributed to IBD nurses across Canada. Nine transition topic categories with several transition statements within each category were identified based on a previous scoping review and expert opinion. Nurses were asked to rank the top three statements under each category. Results Fifty-six Canadian IBD nurses participated in the survey. The highest priority statement that was most frequently identified as the top selection under each transition topic category is listed below. Conclusion IBD nurses identified key transition readiness factors that will ultimately allow young adults to self-manage their IBD; promote successful transition into adult care; and allow for positive health outcomes.


2014 ◽  
Vol 14 (4) ◽  
pp. 415-422 ◽  
Author(s):  
David L. Wood ◽  
Gregory S. Sawicki ◽  
M. David Miller ◽  
Carmen Smotherman ◽  
Katryne Lukens-Bull ◽  
...  

2021 ◽  
Vol 59 ◽  
pp. 188-195
Author(s):  
Kiana Johnson ◽  
Matthew McBee ◽  
John Reiss ◽  
William Livingood ◽  
David Wood

2019 ◽  
Vol 37 (4) ◽  
pp. 347-352 ◽  
Author(s):  
Jacqueline T. Chan ◽  
Jinal Soni ◽  
Deepank Sahni ◽  
Stelios Mantis ◽  
Claudia Boucher-Berry

2020 ◽  
Vol 5 (3) ◽  
pp. 487-495
Author(s):  
Sarah J. Clark ◽  
Nicholas J. Beimer ◽  
Acham Gebremariam ◽  
Linda L. Fletcher ◽  
Anup D. Patel ◽  
...  

Author(s):  
Anjali Oberoi ◽  
Alyssa Patterson ◽  
Amy Sobota

Background/Objectives: Adolescents and young adults (AYA) with sickle cell disease (SCD) face challenges related to the disease and its treatment. The Transition Readiness Assessment Questionnaire (TRAQ) is a self-report tool for assessing transition readiness for youth with special health care needs (YSHCN), including SCD. This study uses the TRAQ to understand transition readiness in patients with SCD treated at the Boston Medical Center, evaluates associations between TRAQ scores and transition outcomes (e.g., EDr, EDu), and compares TRAQ scores in this population with other YSHCN. Methods: We reviewed electronic medical records of AYA with SCD who completed the TRAQ in the pediatric hematology clinic between January 1, 2019, and March 1, 2020, and categorized healthcare encounters to calculate EDu and EDr. We used t-tests and ANOVA models to analyze mean TRAQ scores, sex, age, genotype, EDu, and EDr. Results: The sample was 45 AYA patients with SCD between 13 and 22 years old. The mean TRAQ score for the overall patient sample was 3.67. Mean TRAQ scores did not significantly vary by sex or genotype but did significantly increase with age. TRAQ scores were lower in the SCD population than in other YSHCN. TRAQ scores did not correlate to EDu or EDr. Conclusions: AYA patients with SCD have lower transition readiness than other populations of YSHCN. The age of 18 may not be the most reliable attribute of readiness, though older patients do have higher readiness. The relationship between TRAQ scores, EDr, and EDu is not clear and requires further evaluation.


2019 ◽  
Vol 64 (2) ◽  
pp. S23
Author(s):  
Constance M. Wiemann ◽  
Jean L. Raphael ◽  
Beth H. Garland ◽  
Albert C. Hergenroeder ◽  
Marietta M. de Guzman ◽  
...  

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