Home Based Self-management of Chronic Diseases

Author(s):  
William Burns ◽  
Chris Nugent ◽  
Paul McCullagh ◽  
Huiru Zheng ◽  
Norman Black ◽  
...  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Connie Schumacher ◽  
Darly Dash ◽  
Fabrice Mowbray ◽  
Lindsay Klea ◽  
Andrew Costa

Abstract Background Home care clients are typically older and have some degree of medical, physical, cognitive or social conditions that require formal or informal support to promote healthy aging in the community. Home care clients contribute a significant proportion of health service use, including emergency department visits. The DIVERT-CARE trial introduced a cardio-respiratory management model to improve client motivation, symptoms and rates of unwarranted health service use. Our objective was to explore the perceptions and experiences of individuals who participated in the DIVERT-CARE self-management support and education intervention. Methods A qualitative study was nested within a pragmatic randomized control trial and conducted following a 15-week multi-component cardio-respiratory intervention. A phenomenological descriptive design was employed using thematic analysis. Post-intervention, clients and their caregivers were invited to participate in a semi-structured telephone interview. Interview questions were designed to elicit the experience with the intervention components. Results A total of 29 interviews were completed from June 2018 to March 2020 from participants in Ontario, Newfoundland, and British Columbia. Three themes were identified; self-care trajectory and burden of responsibility, learning and behaviour change, and feeling connected pre-emptively to care providers, the information and medical advice, and connection through the therapeutic relationship. Conclusions Home care clients experience unique challenges in managing cardio-respiratory related chronic disease. Home-based interventions fostered a therapeutic relationship of connectedness while equipping clients with necessary knowledge and skills. These results inform recommendations for community nursing, and home-based self-management supports for older community-residing individuals.


Author(s):  
Becky L. Faett ◽  
David M. Brienza ◽  
Mary Jo Geyer ◽  
Leslie A Hoffman

The purpose of this study was to evaluate the usability of telerehabilitation as a method of teaching self-management for chronic swelling of the lower limbs in persons with limited mobility. An in-home telerehabilitation self-management education protocol for chronic swelling of the lower limbs, termed Telerehabilitation to Empower You to Manage and Prevent Swelling (TR-PUMPS), was implemented using the Versatile and Integrated System for Telerehabilitation (VISYTER) software platform. Participants (n=11) were 36-79 years old, predominately female (72.7%) and diagnosed with a variety of health conditions. Participants’ perceived usability scores of the remote delivery of TR-PUMPS was high with a median score of 6.67 (range 4.90 - 7.00) on a Likert scale: 1= disagree to 7= agree. There was no correlation between participants’ familiarity with information technology and their perception of telerehabilitation usability. These results support telerehabilitation as a viable method for teaching a home-based, self-management


2021 ◽  
pp. 136749352110136
Author(s):  
Logan J Camp-Spivey ◽  
Ayaba Logan ◽  
Michelle Nichols

The primary aim of this integrative review was to critically evaluate and synthesize published, peer-reviewed research to better understand self-management strategies of children and adolescents with chronic diseases. This review was guided by Whittemore and Knafl’s methodological framework. The Pediatric Self-management Model provided the theoretical framework for understanding how self-management behaviors operate within the domains of individual, family, community, and healthcare systems. In June 2019, the electronic databases of EBSCOhost, PubMed, and Scopus, along with reference lists of applicable studies, were searched for appropriate publications. The initial searches yielded 920 citations. Of these, 11 studies met inclusion criteria. A key finding was that involving children and adolescents in the design and delivery phases of interventions was most effective in improving self-management when the interventions did not outweigh cognitive ability or maturity level. In addition, incorporating self-efficacy promotion into self-management interventions may lead to greater sense of responsibility and improved health outcomes. In terms of intervention delivery of self-management strategies, the use of technological platforms and devices was revealed as a promising avenue for youth. A final implication was the importance of family members, peers, and healthcare providers in supporting children and adolescents in adopting self-management behaviors.


2015 ◽  
Author(s):  
◽  
Kyung Jung Han

[ACCESS RESTRICTED TO THE UNIVERSITY OF MISSOURI AT REQUEST OF AUTHOR.] The purpose of the overall study was to explore more effective ways of creating tailored health messages for technology-based interventions in order to help self-management of chronic diseases. The overall study is twofold: Study 1 -- systematic review and Study 2 -- experimental study. Conducting Study 1 -- review study -- has shed light on the current status of research on technology-based interventions for managing chronic diseases. Specifically, the study considered methodological quality and features of interventions as indices in order to improve the effectiveness of the technology-based interventions for chronic diseases. Accordingly, given personal value orientation and freedom threat, Study 2 investigated these as potential elements to be included in tailored health messages and leading to more or less persuasive effects for self-management. It examined whether invoking an individual’s personal value orientation between two extreme value orientations--self-enhancement and self-transcendence--and threatening an individual’s freedom in health news messages on diabetes can cause psychological reactance and affect compliance with suggested health behaviors. The details of each study will be explained.


Author(s):  
Harald Reiter ◽  
Joerg Habetha

Personal healthcare enables prevention and early diagnosis in daily life and is centered on the patient. There is a need for a new personal healthcare paradigm in the treatment of chronic diseases. This will be achieved by new technologies that are currently explored (e.g., in European Research projects such as MyHeart and HeartCycle). These projects develop technologies and application concepts for the (self-)management of chronic diseases in patients’ homes with special emphasis on usability and ease-of-use (e.g., wearable sensors and processing units that can even be integrated into the patient’s clothes). These technologies allow empowering patients, fostering self-management and therefore reducing cost, and improving patients’ quality of life.


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