An Overview of Pediatric Palliative Care

2011 ◽  
pp. 3-13 ◽  
Author(s):  
Caprice Knapp ◽  
Vanessa Madden ◽  
Lindsey Woodworth ◽  
Susan Fowler-Kerry
Keyword(s):  
Palliative Care ◽  
Pediatric Palliative Care

Concepts of Pediatric Palliative Care in Medical Complex Children with Neurodegenerative Disease: Concurrent Care is an Option

2015 ◽  
Vol 46 (S 01) ◽  
Author(s):  
L. Freudenberg ◽  
J. Schallner ◽  
M. von der Hagen ◽  
S. Nolte-Buchholtz
Keyword(s):  
Palliative Care ◽  
Neurodegenerative Disease ◽  
Pediatric Palliative Care

FV 871. Pediatric Palliative Care of Duchenne Muscular Dystrophy in Germany

2018 ◽  
Author(s):  
Maria Janisch ◽  
Silke Nolte-Buchholtz ◽  
Maja von der Hagen
Keyword(s):  
Palliative Care ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Pediatric Palliative Care

scholarly journals Pediatric Palliative Care in the Heart Failure, Ventricular Assist Device and Transplant Populations: Supporting Patients, Families and Their Clinical Teams

Children ◽  
2021 ◽  
Vol 8 (6) ◽  
pp. 468
Author(s):  
Kyle D. Hope ◽  
Priya N. Bhat ◽  
William J. Dreyer ◽  
Barbara A. Elias ◽  
Jaime L. Jump ◽  
...  
Keyword(s):  
Heart Failure ◽  
Palliative Care ◽  
Heart Transplantation ◽  
Ventricular Assist Device ◽  
Mechanical Circulatory Support ◽  
Pediatric Palliative Care ◽  
Circulatory Support ◽  
Assist Device ◽  
Ventricular Assist ◽  
Patients With Heart Failure

Heart failure is a life-changing diagnosis for a child and their family. Pediatric patients with heart failure experience significant morbidity and frequent hospitalizations, and many require advanced therapies such as mechanical circulatory support and/or heart transplantation. Pediatric palliative care is an integral resource for the care of patients with heart failure along its continuum. This includes support during the grief of a new diagnosis in a child critically ill with decompensated heart failure, discussion of goals of care and the complexities of mechanical circulatory support, the pensive wait for heart transplantation, and symptom management and psychosocial support throughout the journey. In this article, we discuss the scope of pediatric palliative care in the realm of pediatric heart failure, ventricular assist device (VAD) support, and heart transplantation. We review the limited, albeit growing, literature in this field, with an added focus on difficult conversation and decision support surrounding re-transplantation, HF in young adults with congenital heart disease, the possibility of destination therapy VAD, and the grimmest decision of VAD de-activation.

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