PaPaS Scale Used in Daily Clinical Practice in University Hospital Motol in Prague: Are Children Referred to Pediatric Palliative Care Early Enough?

2019 ◽  
Author(s):  
Lucie Hrdlicková
Keyword(s):  
Palliative Care ◽  
Clinical Practice ◽  
Daily Clinical Practice ◽  
University Hospital ◽  
Pediatric Palliative Care

scholarly journals Aspects and Intensity of Pediatric Palliative Case Management Provided by a Hospital-Based Case Management Team: A Comparative Study Between Children With Malignant and Nonmalignant Disease

2017 ◽  
Vol 35 (1) ◽  
pp. 123-131 ◽  
Author(s):  
Charissa T. Jagt-van Kampen ◽  
Derk A. Colenbrander ◽  
Diederik K. Bosman ◽  
Martha A. Grootenhuis ◽  
Marijke C. Kars ◽  
...  
Keyword(s):  
Palliative Care ◽  
Case Management ◽  
Malignant Disease ◽  
Median Number ◽  
University Hospital ◽  
Pediatric Palliative Care ◽  
Intensive Case Management ◽  
Web Based ◽  
Nonmalignant Disease ◽  
Retrospective Study Design

Objectives: Anticipating case management is considered crucial in pediatric palliative care. In 2012, our children’s university hospital initiated a specialized pediatric palliative care team (PPCT) to deliver inbound and outbound case management for children with life-shortening disease. The aim of this report is to gain insight in the first 9 months of this PPCT. Methods: Aspects of care during the first 9 months of the PPCT are presented, and comparison is made between patients with malignant disease (MD) and nonmalignant disease (NMD) in a retrospective study design. Insight in the aspects of care of all patients with a life-shortening disease was retrieved from web-based files and the hour registrations from the PPCT. Results: Forty-three children were supported by the PPCT during the first 9 months: 22 with MD with a median of 50 (1-267) days and 29 minutes (4-615) of case management per patient per day and 21 patients with NMD with a median of 79.5 (5-211) days and 16 minutes of case management per day (6-64). Our data show significantly more interprofessional contacts for patients with MD and more in-hospital contacts for patients with NMD. The median number of admission days per patient was 11 (0-22) for MD (44% for anticancer therapy) and 44 (0-303) for NMD (36% for infectious diseases). Significance of Results: This overview of aspects of pediatric palliative case management shows shorter but more intensive case management for MD in comparison with NMD. This insight in palliative case management guides the design of a PPCT.

Daily clinical practice of mechanical ventilation in a Dutch university hospital: ICU vs. OR

2004 ◽  
Vol 21 (Supplement 32) ◽  
pp. 162
Author(s):  
E. K. Wolthuis ◽  
J. Hofland ◽  
M. B. Vroom ◽  
M. Dzoljic ◽  
M. J. Schultz
Keyword(s):  
Mechanical Ventilation ◽  
Clinical Practice ◽  
Daily Clinical Practice ◽  
University Hospital

scholarly journals Advancing Pediatric Palliative Care In a Low-Middle Income Country: An  Implementation Study, A challenging but not impossible task

2020 ◽  
Author(s):  
Ximena Garcia-Quintero ◽  
Luis Gabriel Parra-Lara ◽  
Angelica Claros-Hulbert ◽  
Maria Isabel Cuervo-Suarez ◽  
Wendy Gomez-Garcia ◽  
...  
Keyword(s):  
Palliative Care ◽  
Service Providers ◽  
Pediatric Population ◽  
Descriptive Analysis ◽  
Tertiary Care ◽  
Care Program ◽  
University Hospital ◽  
Pediatric Palliative Care ◽  
Middle Income ◽  
The Impact

Abstract Background: The disparities in access to pediatric palliative care and pain management in Latin America remains an unaddressed global health issue. Efforts to improve the development of Palliative Care (PC) provision have traditionally targeted services for adults, leaving the pediatric population unaddressed. Examples of such services are scarce and should be portrayed in scientific literature to inform decision-makers and service providers on models of care available to tackle the burden of Pediatric Palliative Care (PPC) in Low-and middle-income countries (LMIC). The purpose of this study is to describe the implementation of a pediatric palliative care program, “Taking Care of You ” (TCY) , in a tertiary care, university hospital in Cali, Colombia. Methods: A program’s database was built with children between 0 to 18 years old and their families, from year 2017 to 2019. Descriptive analysis was carried out to evaluate the impact of the program and service delivery. A theory-based method was directed to describe the PPC program, according to the implementation of self-designed taxonomy, mapping theoretical levels and domains. Clinical outcomes in patients were included in the analysis. Results: Since 2017 the program has provided PPC services to 1.965 children. Most of them had an oncologic diagnosis and were referred from hospitalization services (53%). The number of ambulatory patients increased by 80% every trimester between 2017-2018. A 50% increase was reported in hospitalization, emergency, and intensive care units during the same time period. Conclusions: The program addressed a gap in the provision of PPC to children in Cali. It shows effective strategies used to implement a PPC program and how the referral times, coordination of care, communication with other hospital services were improved while providing compassionate/holistic care to children with life-limiting and threatening diseases and in end-of-life. The implementation of this program has required the onset of specific strategies and arrangements to promote awareness and education proving it a hard task, yet not impossible.

scholarly journals Staying Present to Youth with an Unknown Future

2014 ◽  
Vol 1 (1) ◽  
Author(s):  
Susan Poitras
Keyword(s):  
Palliative Care ◽  
Clinical Practice ◽  
Pediatric Palliative Care ◽  
Future Thinking ◽  
Doctoral Study ◽  
Life Threatening Illness ◽  
The Future ◽  
Life Threatening ◽  
Research Findings

The intention of this workshop is to provide an opportunity to explore the various dimensions of clinical practice known to support and enhance coping in adolescents living with a life-threatening illness. The objectives are to: 1) Present recent research findings related to the future thinking activities of adolescents in pediatric palliative care; 2) Acknowledge that these findings stretch us as clinicians to “sit with” and \"create time for\" the youth’s exploration of future in the context of an anticipated shortened life; 3) Discuss several cases and provide experiential activities that can prepare the clinician in ‘being with’ and ‘staying present’ to youth who are exploring their future that remains unknown by virtue of the trajectory of illness.The workshop will be broken down into three parts. In the first 30 minutes the findings from a doctoral study aimed at examining the future thinking of adolescents living with a progressive life-threatening neurodegenerative illness will be presented and discussed. Secondly, consideration will be given to how clinicians can mindfully prepare themselves for supporting adolescents and to consider aspects of the clinical self in our work with this population and finally, through both storytelling and the facilitation of active experiential activities, the presenters will share stories and ideas that have been integrated into existing practices.

scholarly journals Reducing the greenhouse gas emissions from halogenated agents in daily clinical practice: An audit at the University Hospital of Bordeaux

2020 ◽  
Vol 39 (5) ◽  
pp. 685-687
Author(s):  
Jean-Claude Pauchard ◽  
Gauthier Gress ◽  
Matthieu Biais ◽  
Hélène Beloeil ◽  
Karine Nouette-Gaulain
Keyword(s):  
Clinical Practice ◽  
Greenhouse Gas Emissions ◽  
Greenhouse Gas ◽  
Daily Clinical Practice ◽  
University Hospital ◽  
Gas Emissions ◽  
The University

scholarly journals Advancing Pediatric Palliative Care In A Low-Middle Income Country: A Descriptive Analysis of the Implementation, A challenging But Not Impossible Task

2020 ◽  
Author(s):  
Ximena Garcia-Quintero ◽  
Luis Gabriel Parra-Lara ◽  
Angelica Claros-Hulbert ◽  
Maria Isabel Cuervo-Suarez ◽  
Wendy Gomez-Garcia ◽  
...  
Keyword(s):  
Palliative Care ◽  
Service Providers ◽  
Pediatric Population ◽  
Descriptive Analysis ◽  
Tertiary Care ◽  
Care Program ◽  
University Hospital ◽  
Pediatric Palliative Care ◽  
Middle Income ◽  
The Impact

Abstract Background: The abyss of access to palliative care and pain management in Latin America remains to be an unaddressed global health issue. Efforts to improve the development level of Palliative Care (PC) provision have traditionally targeted services for adults, leaving the pediatric population unaddressed. Examples of such services are scarce and should be portrayed in scientific literature to inform decision-makers and service providers on models of care available to tackle the burden of Pediatric Palliative Cares (PPC) in Low-and middle-income countries (LMIC). The purpose of this study is to describe the implementation of a pediatric palliative care program “Taking Care of You” (TCY), in a tertiary care university hospital in Cali, Colombia. Methods: A program’s database was built with children between 0 to 18 years old and their families, from year 2017 to 2019. Descriptive analysis to evaluate the impact of the program and service delivery was conducted. A theory-based method was directed to describe the PPC program, according to the implementation of self-designed taxonomy, mapping theoretical levels and domains. Clinical outcomes in patients were included in the analysis. Results: Since 2017 the program has provided PPC services to 1.965 children. Most of them had an oncologic diagnosis and were referred from hospitalization services (53%). The number of outpatients increased by 80% every trimester between 2017-2018. A 50% increase was reported in hospitalization, emergency, and intensive care units during the same time period. Conclusions: The program addressed a gap in the provision of PPC to children in Cali. It shows effective strategies used to implement a program, and how the referral times, coordination of care, communication with other hospital services were improved. Providing compassionate/holistic care to children with Life-limiting and threatening diseases, and in end-of-life. The implementation of this program has required the onset of specific strategies and arrangements to promote awareness and education proving it a hard task, yet not impossible.

scholarly journals Advancing Pediatric Palliative Care In a Low-Middle Income Country: An  Implementation Study, A challenging but not impossible task

2020 ◽  
Author(s):  
Ximena Garcia-Quintero ◽  
Luis Gabriel Parra-Lara ◽  
Angelica Claros-Hulbert ◽  
Maria Isabel Cuervo-Suarez ◽  
Wendy Gomez-Garcia ◽  
...  
Keyword(s):  
Palliative Care ◽  
Service Providers ◽  
Pediatric Population ◽  
Descriptive Analysis ◽  
Tertiary Care ◽  
Care Program ◽  
University Hospital ◽  
Pediatric Palliative Care ◽  
Middle Income ◽  
The Impact

Abstract Background: The abyss of access to pediatric palliative care and pain management in Latin America remains to be an unaddressed global health issue. Efforts to improve the development level of Palliative Care (PC) provision have traditionally targeted services for adults, leaving the pediatric population unaddressed. Examples of such services are scarce and should be portrayed in scientific literature to inform decision-makers and service providers on models of care available to tackle the burden of Pediatric Palliative Cares (PPC) in Low-and middle-income countries (LMIC). The purpose of this study is to describe the implementation of a pediatric palliative care program “Taking Care of You ” (TCY) , in a tertiary care university hospital in Cali, Colombia. Methods: A program’s database was built with children between 0 to 18 years old and their families, from year 2017 to 2019. Descriptive analysis to evaluate the impact of the program and service delivery was conducted. A theory-based method was directed to describe the PPC program, according to the implementation of self-designed taxonomy, mapping theoretical levels and domains. Clinical outcomes in patients were included in the analysis. Results: Since 2017 the program has provided PPC services to 1.965 children. Most of them had an oncologic diagnosis and were referred from hospitalization services (53%). The number of outpatients increased by 80% every trimester between 2017-2018. A 50% increase was reported in hospitalization, emergency, and intensive care units during the same time period. Conclusions: The program addressed a gap in the provision of PPC to children in Cali. It shows effective strategies used to implement a program, and how the referral times, coordination of care, communication with other hospital services were improved. Providing compassionate/holistic care to children with Life-limiting and threatening diseases, and in end-of-life. The implementation of this program has required the onset of specific strategies and arrangements to promote awareness and education proving it a hard task, yet not impossible.

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