scholarly journals Specialized palliative care services are associated with improved short- and long-term caregiver outcomes

2007 ◽  
Vol 16 (6) ◽  
pp. 585-597 ◽  
Author(s):  
Amy P. Abernethy ◽  
David C. Currow ◽  
Belinda S. Fazekas ◽  
Mary A. Luszcz ◽  
Jane L. Wheeler ◽  
...  
2017 ◽  
Vol 23 (3) ◽  
pp. 331
Author(s):  
Dhritiman Datta ◽  
Gautam Majumdar ◽  
Shiromani Debbarma ◽  
Badan Janapati ◽  
AmitKumar Datta

PLoS ONE ◽  
2019 ◽  
Vol 14 (1) ◽  
pp. e0210056 ◽  
Author(s):  
Gaëlle Vanbutsele ◽  
Luc Deliens ◽  
Veronique Cocquyt ◽  
Joachim Cohen ◽  
Koen Pardon ◽  
...  

2019 ◽  
pp. 119-134
Author(s):  
Alisa Savetamal ◽  
Kristin Edwards

Burn injury can be a life-changing event for many patients, requiring prolonged hospitalization, multiple operative procedures, and extensive physical rehabilitation after hospital discharge. For the burn team, the challenges of caring for burn injuries are compounded by the psychosocial needs of the patients, many of whom have underlying medical, psychiatric, or substance abuse problems or some combination of all of these. Integrating palliative care services into the burn team is a valuable adjunct for the patients, families, and care teams involved in burn injury. Palliative care provides a framework for considering not only the acute needs of the burn patient but also the other underlying issues that may affect the patient’s hospital course, recovery, and long-term goals.


2012 ◽  
Vol 7 (2) ◽  
pp. 374-381
Author(s):  
Tatsuya Morita ◽  
Nobuya Akizuki ◽  
Satoshi Suzuki ◽  
Hiroya Kinoshita ◽  
Yutaka Shirahige ◽  
...  

2016 ◽  
Vol 34 (6) ◽  
pp. 532-546 ◽  
Author(s):  
Kathleen Leemans ◽  
L. Deliens ◽  
L. Van den Block ◽  
R. Vander Stichele ◽  
A. L. Francke ◽  
...  

Background: A feasibility evaluation of a comprehensive quality indicator set for palliative care identified the need for a minimal selection of these indicators to monitor quality of palliative care services with short questionnaires for the patients, caregivers, and family carers. Objectives: To develop a minimal indicator set for efficient quality assessment in palliative care. Design: A 2 round modified Research ANd Development corporation in collaboration with the University of California at Los Angeles (RAND/UCLA) expert consultation. Setting/Patients: Thirteen experts in palliative care (professionals and patient representatives). Measurements: In a home assignment, experts were asked to score 80 developed indicators for “priority” to be included in the minimal set on a scale from 0 (lowest priority) to 9 (highest priority). The second round consisted of a plenary meeting in which the minimal set was finalized. Results: Thirty-nine of the 80 indicators were discarded, while 19 were definitely selected after the home assignment, and 22 were proposed for discussion during the meeting; 12 of these survived the selection round. The final minimal indicator set for palliative care consists of 5 indicators about the physical aspects of care; 6 about the psychosocial aspects of care; 13 about information, communication, and care planning; 5 about type of care; and 2 about continuity of care. Conclusion: A minimal set of 31 indicators reflecting all the important issues in palliative care was created for palliative care services to assess the quality of their care in a quick and efficient manner. Additional topic-specific optional modules are available for more thorough assessment of specific aspects of care.


2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 127-127
Author(s):  
Constance Dahlin ◽  
Joshua Nyambose ◽  
Gail Merriam ◽  
Cherline Gene

127 Background: The CDC comprehensive cancer initiatives value comprehensive quality care within its mission and program development. Currently, over 75% of hospitals in the United States have palliative care services for cancer patients (CAPC 2011). In order to promote access to quality palliative care in the community outside the hospital, an evaluation is essential. The CDC model of comprehensive cancer care and prevention control structure is an appropriate mechanism to perform such an evaluation. From 2014-2015, the Massachusetts Comprehensive Cancer and Prevention Control Network Palliative Care Workgroup performed a survey to hospitals, home health agencies, hospices, long term care facilities, and community providers to determine palliative care services available to cancer patients across the state. Methods: Using the National Consensus Project for Quality Palliative Care Clinical Practice Guidelines, a robust palliative survey tool was created by the Massachusetts Comprehensive Cancer and Prevention Control Palliative Care Workgroup. It was individualized to each of the following settings - hospitals, home health organizations, hospices, skilled nursing facilities, and community health agencies. Follow-up telephonic key informant interviews regarding palliative care services were conducted within the various settings, service organizations, and insurers. Results: The results of qualitative and quantitative data will be concluded in August. Initial results reveal significant disparities in access to palliative care across by geography and setting of care. Hospices and hospitals had the most access to palliative care services. Long term care settings and community health settings had the least access. Conclusions: Data reveals disparities in palliative care access within Massachusetts by geography, race, and setting of cancer care. This data will serve as the basis of regional networks to promote better access to palliative care for cancer patients across all settings. It is hoped this evaluation process will serve as a model for other states to perform a similar evaluation.


Author(s):  
Maria Flynn ◽  
Dave Mercer

Palliative care is a specialized area of nursing practice, but also one which embraces all people who are living with a life-limiting or life-threatening illness. The purpose of palliative care is to enable a person and their family or significant others to live as full a life as possible within the constraints of the health condition. Palliative interventions often begin at an early stage of a long-term or life-limiting illness and may be concurrent with active treatment interventions. Palliative care continues until death, and although many palliative care services are delivered by specialist teams, general nurses will also be involved with people in a range of clinical or domestic environments. This chapter discusses the general principles of palliative care and considers how these may be translated into general nursing practices.


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