Palliative Care in Burn and Thermal Injury

2019 ◽  
pp. 119-134
Author(s):  
Alisa Savetamal ◽  
Kristin Edwards

Burn injury can be a life-changing event for many patients, requiring prolonged hospitalization, multiple operative procedures, and extensive physical rehabilitation after hospital discharge. For the burn team, the challenges of caring for burn injuries are compounded by the psychosocial needs of the patients, many of whom have underlying medical, psychiatric, or substance abuse problems or some combination of all of these. Integrating palliative care services into the burn team is a valuable adjunct for the patients, families, and care teams involved in burn injury. Palliative care provides a framework for considering not only the acute needs of the burn patient but also the other underlying issues that may affect the patient’s hospital course, recovery, and long-term goals.

2017 ◽  
Vol 23 (3) ◽  
pp. 331
Author(s):  
Dhritiman Datta ◽  
Gautam Majumdar ◽  
Shiromani Debbarma ◽  
Badan Janapati ◽  
AmitKumar Datta

2015 ◽  
Vol 33 (29_suppl) ◽  
pp. 127-127
Author(s):  
Constance Dahlin ◽  
Joshua Nyambose ◽  
Gail Merriam ◽  
Cherline Gene

127 Background: The CDC comprehensive cancer initiatives value comprehensive quality care within its mission and program development. Currently, over 75% of hospitals in the United States have palliative care services for cancer patients (CAPC 2011). In order to promote access to quality palliative care in the community outside the hospital, an evaluation is essential. The CDC model of comprehensive cancer care and prevention control structure is an appropriate mechanism to perform such an evaluation. From 2014-2015, the Massachusetts Comprehensive Cancer and Prevention Control Network Palliative Care Workgroup performed a survey to hospitals, home health agencies, hospices, long term care facilities, and community providers to determine palliative care services available to cancer patients across the state. Methods: Using the National Consensus Project for Quality Palliative Care Clinical Practice Guidelines, a robust palliative survey tool was created by the Massachusetts Comprehensive Cancer and Prevention Control Palliative Care Workgroup. It was individualized to each of the following settings - hospitals, home health organizations, hospices, skilled nursing facilities, and community health agencies. Follow-up telephonic key informant interviews regarding palliative care services were conducted within the various settings, service organizations, and insurers. Results: The results of qualitative and quantitative data will be concluded in August. Initial results reveal significant disparities in access to palliative care across by geography and setting of care. Hospices and hospitals had the most access to palliative care services. Long term care settings and community health settings had the least access. Conclusions: Data reveals disparities in palliative care access within Massachusetts by geography, race, and setting of cancer care. This data will serve as the basis of regional networks to promote better access to palliative care for cancer patients across all settings. It is hoped this evaluation process will serve as a model for other states to perform a similar evaluation.


2007 ◽  
Vol 16 (6) ◽  
pp. 585-597 ◽  
Author(s):  
Amy P. Abernethy ◽  
David C. Currow ◽  
Belinda S. Fazekas ◽  
Mary A. Luszcz ◽  
Jane L. Wheeler ◽  
...  

Author(s):  
Maria Flynn ◽  
Dave Mercer

Palliative care is a specialized area of nursing practice, but also one which embraces all people who are living with a life-limiting or life-threatening illness. The purpose of palliative care is to enable a person and their family or significant others to live as full a life as possible within the constraints of the health condition. Palliative interventions often begin at an early stage of a long-term or life-limiting illness and may be concurrent with active treatment interventions. Palliative care continues until death, and although many palliative care services are delivered by specialist teams, general nurses will also be involved with people in a range of clinical or domestic environments. This chapter discusses the general principles of palliative care and considers how these may be translated into general nursing practices.


2022 ◽  
Vol 0 ◽  
pp. 1-6
Author(s):  
Manju Nair ◽  
Anupama Augustine

Objectives: Palliative care units under Local Self-Government Institutions (LSGIs) are increasing in number in the state of Kerala, India, since the announcement of the Pain and Palliative Care Policy, 2008. Whether these units are functioning with a view to materialise the long-term objectives, following the guidelines stipulated by the Government of Kerala and serve the neediest patients with quality care are a matter of debate. Hence, a microlevel study of the palliative care unit is attempted. The aims of the study were to understand the extent to which the structure and nature of functioning of the Pain and Palliative Care Unit under LSGI comply with guidelines set by the Pain and Palliative Care Policy of the Government of Kerala and to check whether the palliative care services are reaching the needy and, if so, are they provided to patients in good quality. Materials and Methods: The award winning Pain and Palliative Care Unit attached to LSGI is selected for analysis and a hybrid research design is followed. Data are collected from 25 patients and their caregivers selected randomly. Mean score of satisfaction level on the basis of Quality care questionnaire -Palliative care is used. Results: Sample unit complies with the revised guidelines of 2015, Pain and Palliative Care Policy. It serves the neediest patients and the quality of care is satisfactory. Conclusion: The study reaffirms the strength of the public health model in palliative care which can provide quality care to the neediest patients.


Author(s):  
Praveena Daya A. ◽  
Sonali Sarkar ◽  
Sitanshu Sekhar Kar

Background: There is an increasing need to provide palliative care services globally. All these chronic, life limiting diseases not only affect the patients but also affect their caregivers in various aspects. The aim of the study was to assess the needs of caregivers of people requiring palliative care in an urban area of Pondicherry, South India.Methods: An exploratory descriptive study was conducted in 1004 households with 3554 individuals in two selected areas under an urban PHC in Pondicherry. Needs of the 21 caregivers who provided care for 22 patients were studied using Needs Assessment Tool: Progressive Disease (NAT: PD). Data was analysed using IBM SPSS Software version 20. Levels of concern for various domains were rated subjectively as none, some, significant and expressed in proportions. Content analysis was done for the qualitative data after translation and transcription.Results: Caregivers faced physical, psychological, financial, social and spiritual issues related to care-giving. Physical issues reported were sleeplessness, fatigue and back pain. Common psychological issues reported were depression, hopelessness and getting tensed frequently. Financial issues of caregivers were related to loss of income and loss of family savings for the treatment charges of patients. Social issues observed were avoiding going out or attending festivals, lack of social support and lack of time to spend enough time with their spouse and children.Conclusions: Caregivers are exposed to a long-term stress starting from the diagnosis of the patient’s illness continuing even after the death of patient. So in this way the caregivers are exposed to higher level of stress than the patients, which needs to be addressed appropriately. 


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